EPILEPSY FOUNDATION OF AMERICA

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Financial Vulnerability Assessment (Tuckman-Chang)

4 risk indicators measuring financial stability and operational resilience

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Financial Trends

Organization Details

Formation Year

1967

Legal Domicile

Principal Officer

WANDA COOK

Phone

8003321000

Tax Period

2024-07-01 to 2025-06-30

EPILEPSY FOUNDATION OF AMERICA, founded in 1967, is a mid-sized nonprofit in the Diseases & Disorders sector that reported $16.2M in total revenue in fiscal year 2024. Expenses of $19.0M exceeded revenue, resulting in a 17% operating deficit.

Mission

TO IMPROVE THE LIVES OF PEOPLES AFFECTED BY EPILEPSY THROUGH EDUCATION, ADVOCACY, RESEARCH, AND CONNECTION.

Program Service Accomplishments

Program 1

Expenses: $10,433,192 Revenue: $338,780

ADVOCACY AND SERVICES FOR INDIVIDUALS, FAMILIES, AND COMMUNITIES - DESIGNED TO ENSURE THAT ALL PEOPLE LIVING WITH EPILEPSY AND SEIZURE DISORDERS, AND THIER FAMILIES AND COMMUNITIES, RECEIVE THE BEST POSSIBLE SERVICES AND CARE. THE FOUNDATION DEVELOPS NATIONWIDE PROGRAMS AVAILABLE THROUGH ITS NETWORK OF NEARLY FIFTY LOCAL EPILEPSY FOUNDATIONS AND CAN ALSO BE FOUND ON EPILEPSY.COM. PROGRAMS AND INITIATIVES FOCUS ON ENGAGING PARENTS, CHILDREN AND ADULTS ON IMPROVING THEIR QUALITY OF LIFE. THE FOUNDATION ALSO HAS PROGRAMS DEDICATED TO ENDING EARLY DEATH FROM EPILEPSY AND IMPROVING OVERALL WELLNESS. THE PROGRAMS ARE DESIGNED TO BE CULTURALLY AND ETHNICALLY DIVERSE. THE FOUNDATION AND ITS GRASSROOTS VOLUNTEERS ACROSS THE COUNTRY ADVOCATE AT THE FEDERAL AND STATE LEVELS TO SECURE FUNDING FOR EPILEPSY PROGRAMS.

Program 2

Expenses: $2,739,509 Revenue: $100,000

PUBLIC HEALTH, EDUCATION, AND AWARENESS - PROVIDES EDUCATIONAL AND SUPPORTING SERVICES THAT CREATE AND PROMOTE PUBLIC AWARENESS SURROUNDING EPILEPSY. THE PROGRAM UTILIZES TRADITIONAL AND DIGITAL...

PUBLIC HEALTH, EDUCATION, AND AWARENESS - PROVIDES EDUCATIONAL AND SUPPORTING SERVICES THAT CREATE AND PROMOTE PUBLIC AWARENESS SURROUNDING EPILEPSY. THE PROGRAM UTILIZES TRADITIONAL AND DIGITAL MEDIA CHANNELS INCLUDING SOCIAL MEDIA AND THROUGH THE DIRECT MAIL PROGRAM WHICH SERVE THE DUAL PURPOSE OF RAISING FUNDS FOR THE FOUNDATION AND INCREASING AWARENESS OF THE FOUNDATION'S CAUSE. THE FOUNDATION EDUCATES THROUGH ENGAGEMENT WITH MEDIA SOURCES, AND PARTNERSHIPS WITH OTHER NON-PROFITS AND PROFESSIONAL AND GOVERNMENT ORGANIZATIONS. IN ADDITION, THE FOUNDATION ESTABLISHED THE EPILEPSY LEARNING HEALTHCARE SYSTEM (ELHS) NETWORK, WHICH IS A PUBLIC HEALTH INITIATIVE TO DRIVE QUALITY HEALTH SERVICES RESEARCH TO IMPROVE MEDICAL OUTCOMES FOR PEOPLE WITH EPILEPSY.

Program 3

Expenses: $1,248,841

RESEARCH, INNOVATION, AND NEW THERAPIES - ACCELERATES THE DEVELOPMENT OF INNOVATIVE THERAPIES, PREVENTION, AND CURES FOR ALL FORMS OF EPILEPSIES, AND SEEKS TO ADDRESS THE GAP IN THE RESEARCH AND...

RESEARCH, INNOVATION, AND NEW THERAPIES - ACCELERATES THE DEVELOPMENT OF INNOVATIVE THERAPIES, PREVENTION, AND CURES FOR ALL FORMS OF EPILEPSIES, AND SEEKS TO ADDRESS THE GAP IN THE RESEARCH AND COMMERCIALIZATION CONTINUUM. THE MAIN OBJECTIVE IS TO DEVELOP AN EPILEPSY RESEARCH ECOSYSTEM THAT COVERS ALL PARTS OF THERAPY, FROM IDEA TO MARKET. THE FOUNDATION'S RESEARCH INITIATIVES INCLUDE: INNOVATION PROGRAMS THAT TEST NEW IDEAS AND FOLLOW NEW RESEARCH LEADS AND ENGAGEMENT PROGRAMS THAT IMPROVE COMMUNICATION BETWEEN PEOPLE WITH EPILEPSY, THEIR FAMILIES, ADVOCATES, RESEARCHERS, AND INVESTORS. DIGITAL TOOLS THAT SUPPORT RESEARCH INFRASTRUCTURE. FUNDING THAT SUPPORTS YOUNG RESEARCHERS TO BRING THEIR IDEAS TO LIFE. PRACTICE SOLUTIONS TO ERADICATE SUDDEN AND UNEXPECTED DEATH IN EPILEPSY (SUDEP).

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Trantor Score

Financial Health Score (300–850) · Liquidity · Solvency · Sustainability · Efficiency

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Liquidity (40%) • Solvency (30%) • Sustainability (20%) • Efficiency (10%)

Financial Overview (2024)

Revenue Breakdown

Contributions & Grants $16,885,704

Program Service Revenue $438,780

Investment Income $150,675

Other Revenue $-1,296,389

TOTAL REVENUE $16,178,770

Expense Breakdown

Grants Paid $327,949

Salaries & Benefits $10,139,110

Fundraising Expenses $1,707,821

Program Expenses $14,421,542

Other Expenses $8,216,746

TOTAL EXPENSES $18,974,202

Year-over-Year Comparison

	2024	2023	Change
Revenue	$16,178,770	$15,593,499	+0.0%
Expenses	$18,974,202	$16,514,182	+0.1%
Net Income	$-2,795,432	$-920,683	+2.0%

Key Indicators

✓ Grants to Organizations ✗ Grants to Individuals ✓ Lobbying ✗ Political Activity ✓ Foreign Activities ✗ Donor Advised Fund ✓ Schedule B Required

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Financial Health Indicators

Comprehensive financial analysis: Altman Z-Score, liquidity, solvency, sustainability, efficiency, and growth metrics

Financial Distress Indicator

Liquidity & Cash Position

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Altman Z-Score • Liquidity Ratios • Solvency Analysis • Growth Indicators • Efficiency Metrics

Governance

Voting Members

Independent Members

Employees

Volunteers

1000

Governance Policies

✓ Conflict of Interest Policy

✓ Whistleblower Policy

✓ Document Retention Policy

Special Practices & Reported Activities

✗ Operated a School

✗ Operated a Hospital

✗ Provided First Class Travel

✗ Reported Conflict of Interest

✗ Reported Asset Diversion

✗ Excess Benefit Transaction

✗ Made Political Expenditures

✓ Engaged in Lobbying

✗ Operated Donor Advised Fund

✗ Maintained Art Collections

✗ Filed Form 720

Compensation of Officers, Directors & Key Employees

Total Officers

$1,255,062

Total Directors

Key Employees

Highest Compensated

reported

Name	Title	Hours/Week	Role	Reportable Comp	Other Comp	Total
COURTNEY CAPUTO	CHAIR	1.00	Officer Director	$0	$0	$0
MARK THEEUWES	SECRETARY	1.00	Officer Director	$0	$0	$0
DAVID HAWK	TREASURER	1.00	Officer Director	$0	$0	$0
JOSH GOLDEN	VICE CHAIR	1.00	Officer Director	$0	$0	$0
JEFF PARENT	DIRECTOR	1.00	Director	$0	$0	$0
JOHN LANNEN	DIRECTOR	1.00	Director	$0	$0	$0
ELI CORBETT	DIRECTOR	1.00	Director	$0	$0	$0
DARYL DRABINSKY	DIRECTOR	1.00	Director	$0	$0	$0
JEANNINE GARAB	DIRECTOR	1.00	Director	$0	$0	$0
WASIM MALIK	DIRECTOR	1.00	Director	$0	$0	$0
DAVID MOORE	DIRECTOR	1.00	Director	$0	$0	$0
NOAH RICHMOND	DIRECTOR	1.00	Director	$0	$0	$0
ANGELICA ROIZ	DIRECTOR	1.00	Director	$0	$0	$0
MARY WELDON	DIRECTOR	1.00	Director	$0	$0	$0
BERNICE LEE	CHIEF EXECUTIVE OFFICER	35.00	Officer	$451,255	$30,103	$481,358
BRANDY FUREMAN	CHIEF OUTCOMES OFFICER	35.00	Officer	$259,791	$39,944	$299,735
LAURA WEIDNER	CHIEF ADVOCACY AND GOVERNMENT RELATIONS OFFICER	35.00	Officer	$225,000	$22,755	$247,755
RAHEL ROSNER UNTIL SEPT 2024	CHIEF FINANCIAL OFFICER	35.00	Officer	$156,345	$16,928	$173,273
WANDA COOK BEG NOV 2024	CHIEF FINANCIAL OFFICER	35.00	Officer	$49,855	$3,086	$52,941
NATHAN DEVAULT	VP MARKETING AND COMMUNICATIONS	35.00	Highest	$178,423	$33,745	$212,168
KATHLEEN FARRELL	VP PUBLIC HEALTH OUTCOMES	35.00	Highest	$162,248	$44,905	$207,153
DANIELLE SOLOMON	VP HUMAN RESOURCES	35.00	Highest	$161,710	$22,879	$184,589
CAITLIN GRZESKOWIAK	CHIEF RESEARCH AND INNOVATION OFFICER	35.00	Highest	$165,792	$11,605	$177,397
GREGG FORT	VP REGIONAL OPERATIONS	35.00	Highest	$147,826	$22,254	$170,080

Note: Compensation data is self-reported by the organization on their Form 990. "Reportable Comp" includes salary, bonuses, and other reportable compensation from the organization and related organizations. "Other Comp" includes benefits, deferred compensation, and non-taxable benefits.

Historical Data

Year	Revenue	Expenses	Assets	Net Income
2025	$16,178,770	$18,974,202	$19,977,394	$-2,795,432
2024	No data	No data	No data	No data
2023	$17,841,214	$15,981,333	$21,649,278	$1,859,881
2022	$21,897,167	$17,733,098	$20,384,765	$4,164,069
2021	$19,399,371	$18,860,884	$21,589,131	$538,487
2020	$28,595,237	$25,456,447	$25,795,769	$3,138,790
2019	$20,510,086	$23,469,137	$20,192,871	$-2,959,051