FSHD SOCIETY (EIN 521762747) - Form 990 Financial Analysis & Trantor Score

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Financial Vulnerability Assessment (Tuckman-Chang)

4 risk indicators measuring financial stability and operational resilience

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Financial Trends

Organization Details

Formation Year

1991

Legal Domicile

Principal Officer

MARK A STONE

Phone

7813016060

Tax Period

2024-01-01 to 2024-12-31

FSHD SOCIETY, founded in 1991, is a community nonprofit in the Medical Research sector that reported $4.9M in total revenue in fiscal year 2024. Revenue grew 11% year-over-year, indicating healthy expansion. Expenses of $5.5M exceeded revenue, resulting in a 11% operating deficit.

Mission

FIND TREATMENTS AND A CURE FOR FSHD WHILE EMPOWERING OUR FAMILIES

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Trantor Score

Financial Health Score (300–850) · Liquidity · Solvency · Sustainability · Efficiency

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Liquidity (40%) • Solvency (30%) • Sustainability (20%) • Efficiency (10%)

Financial Overview (2024)

Revenue Breakdown

Contributions & Grants $4,438,901

Program Service Revenue $302,974

Investment Income $122,391

Other Revenue $78,305

TOTAL REVENUE $4,942,571

Expense Breakdown

Grants Paid $278,084

Salaries & Benefits $2,701,795

Fundraising Expenses $629,872

Program Expenses $4,280,854

Other Expenses $2,495,397

TOTAL EXPENSES $5,475,276

Year-over-Year Comparison

	2024	2023	Change
Revenue	$4,942,571	$4,455,414	+0.1%
Expenses	$5,475,276	$4,311,066	+0.3%
Net Income	$-532,705	$144,348	-4.7%

Key Indicators

✓ Grants to Organizations ✓ Grants to Individuals ✗ Lobbying ✗ Political Activity ✓ Foreign Activities ✗ Donor Advised Fund ✓ Schedule B Required

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Financial Health Indicators

Comprehensive financial analysis: Altman Z-Score, liquidity, solvency, sustainability, efficiency, and growth metrics

Financial Distress Indicator

Liquidity & Cash Position

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Altman Z-Score • Liquidity Ratios • Solvency Analysis • Growth Indicators • Efficiency Metrics

Governance

Voting Members

Independent Members

Employees

Volunteers

150

Governance Policies

✓ Conflict of Interest Policy

✓ Whistleblower Policy

✓ Document Retention Policy

Special Practices & Reported Activities

✗ Operated a School

✗ Operated a Hospital

✗ Provided First Class Travel

⚠ Reported Conflict of Interest

✗ Reported Asset Diversion

✗ Excess Benefit Transaction

✗ Made Political Expenditures

✗ Engaged in Lobbying

✗ Operated Donor Advised Fund

✗ Maintained Art Collections

✗ Filed Form 720

Compensation of Officers, Directors & Key Employees

Total Officers

$436,819

Total Directors

Key Employees

$218,930

Highest Compensated

reported

Name	Title	Hours/Week	Role	Reportable Comp	Other Comp	Total
CHRISTINE FORD	FORMER SECRETARY	10.00	Officer Director	$0	$0	$0
ELLEN K HANNAN	FORMER TREASURER	10.00	Officer Director	$0	$0	$0
GEORGE POLLOCK JR	TREASURER	10.00	Officer Director	$0	$0	$0
HOWARD L CHABNER JD	VICE CHAIRMAN	10.00	Officer Director	$0	$0	$0
JAMES A CHIN SR	CHAIRMAN	10.00	Officer Director	$0	$0	$0
MEL HAYES	BOARD MEMBER	1.00	Director	$0	$0	$0
LEE FRANK KOLAKOWSKI PHD	BOARD MEMBER	10.00	Director	$0	$0	$0
LINDA LAURELLO	BOARD MEMBER	1.00	Director	$0	$0	$0
ROBERT HUMPHREYS JR	BOARD MEMBER	1.00	Director	$0	$0	$0
MICHELLE HELEN MACKAY	BOARD MEMBER	1.00	Director	$0	$0	$0
NEIL ANDREW SOLOMON MD FACP	BOARD MEMBER	1.00	Director	$0	$0	$0
STUART LAI	BOARD MEMBER	1.00	Director	$0	$0	$0
CHRIS MANCILL	BOARD MEMBER	1.00	Director	$0	$0	$0
WILLIAM R LEWIS III MD	BOARD MEMBER	1.00	Director	$0	$0	$0
WILLIAM SARRAILLE	BOARD MEMBER	1.00	Director	$0	$0	$0
BRUCE RYSKAMP	BOARD MEMBER	1.00	Director	$0	$0	$0
AMY Z BEKIER	BOARD MEMBER	10.00	Director	$0	$0	$0
JACK GERBLICK	BOARD MEMBER	1.00	Director	$0	$0	$0
JASON SHI	BOARD MEMBER	1.00	Director	$0	$0	$0
AGNES M MESTRICH	CHIEF FINANCIAL OFFICER	40.00	Officer	$168,829	$24,325	$193,154
MARK STONE	CEO & PRESIDENT	40.00	Officer	$226,757	$16,908	$243,665
KENNETH ALEXANDER KAHTAVA	CHIEF OPERATING OFFICER	40.00	Key Emp	$190,956	$27,974	$218,930
JUNE KINOSHITA	DIRECTOR OF RESEARCH AND PATIENT ENGAGEMENT	40.00	Highest	$110,048	$5,022	$115,070
CAROLYN LLOYD	CHIEF DEVELOPMENT OFFICER	40.00	Highest	$145,482	$15,991	$161,473
BETH JOHNSTON	CHIEF COMMUNITY ENGAGEMENT OFFICER	40.00	Highest	$151,086	$6,835	$157,921
AMANDA HILL	SENIOR DIRECTOR OF RESEARCH AND CARE	40.00	Highest	$120,469	$24,177	$144,646

Note: Compensation data is self-reported by the organization on their Form 990. "Reportable Comp" includes salary, bonuses, and other reportable compensation from the organization and related organizations. "Other Comp" includes benefits, deferred compensation, and non-taxable benefits.

Historical Data

Year	Revenue	Expenses	Assets	Net Income
2024	$4,942,571	$5,475,276	$5,592,191	$-532,705
2023	$4,455,414	$4,311,066	$6,421,254	$144,348
2022	$3,508,920	$4,712,959	$6,079,315	$-1,204,039
2021	$5,488,220	$4,615,323	$7,638,819	$872,897
2020	$2,627,205	$2,864,804	$5,835,495	$-237,599
2019	$5,268,516	$3,240,360	$6,492,466	$2,028,156
2018	$2,701,749	$2,672,270	$3,957,807	$29,479

FSHD SOCIETY