FRIEDREICH'S ATAXIA RESEARCH ALLIANCE

EIN: 522122720 501(c)(3) Medical Research

SPRINGFIELD, VA

Total Revenue
$11,203,043
Total Expenses
$12,200,773
Total Assets
$7,752,276
Net Assets
$6,146,628
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Tuckman-Chang Vulnerability Assessment

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Financial Trends

Organization Details

Formation Year
1998
Legal Domicile
VA
Principal Officer
JENNIFER FARMER
Phone
4848796160
Tax Period
2023-01-01 to 2023-12-31

FRIEDREICH'S ATAXIA RESEARCH ALLIANCE, founded in 1998, is a community nonprofit in the Medical Research sector that reported $7.6M in total revenue in fiscal year 2018. Expenses of $7.0M left a modest 7% surplus.

Mission

TO TREAT AND CURE FRIEDREICH'S ATAXIA (FA) BY ADVANCING RESEARCH, AWARENESS AND PARTNERSHIPS.

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Trantor Score

Financial Health & Payment Capacity Assessment (FICO Scale: 300–850)

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Liquidity (40%) • Solvency (30%) • Sustainability (20%) • Efficiency (10%)

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Financial Overview (2023)

Revenue Breakdown

Contributions & Grants $12,011,078
Program Service Revenue $0
Investment Income $35,631
Other Revenue $-843,666
TOTAL REVENUE $11,203,043

Expense Breakdown

Grants Paid $9,307,077
Salaries & Benefits $1,461,477
Fundraising Expenses $297,535
Program Expenses $11,573,451
Other Expenses $1,432,219
TOTAL EXPENSES $12,200,773

Year-over-Year Comparison

2023 2022 Change
Revenue $11,203,043 $11,042,911 +0.0%
Expenses $12,200,773 $11,132,747 +0.1%
Net Income $-997,730 $-89,836 +10.1%
Key Indicators
Grants to Organizations Grants to Individuals Lobbying Political Activity Foreign Activities Donor Advised Fund Schedule B Required
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Governance

Voting Members
18
Independent Members
16
Employees
17
Volunteers
500

Governance Policies

Conflict of Interest Policy
Whistleblower Policy
Document Retention Policy

Special Practices & Reported Activities

Operated a School
Operated a Hospital
Provided First Class Travel
Reported Conflict of Interest
Reported Asset Diversion
Excess Benefit Transaction
Made Political Expenditures
Engaged in Lobbying
Operated Donor Advised Fund
Maintained Art Collections
Filed Form 720

Compensation of Officers, Directors & Key Employees

Total Officers
5
$353,240
Total Directors
18
$179,581
Key Employees
0
$0
Highest Compensated
3
reported
Name Title Hours/Week Role Reportable Comp Other Comp Total
RONALD BARTEK PRESIDENT/DIRECTOR 40.00
Officer Director
$114,377 $4,006 $118,383
RUTH ACTON TREASURER/DIRECTOR FINANCE ADMIN & HR 25.00
Officer Director
$47,463 $13,735 $61,198
MARILYN E DOWNING SECRETARY/ DIRECTOR 10.00
Officer Director
$0 $0 $0
DR SANJAY BIDICHANDANI DIRECTOR 10.00
Director
$0 $0 $0
BRIGID BRENNAN DIRECTOR/ GENERAL COUNSEL 20.00
Director
$0 $0 $0
THOMAS BRENNINKMEIJER DIRECTOR 10.00
Director
$0 $0 $0
ALEX FIELDING DIRECTOR 10.00
Director
$0 $0 $0
JENNIFER GOOD DIRECTOR 10.00
Director
$0 $0 $0
THOMAS HAMILTON DIRECTOR 10.00
Director
$0 $0 $0
DR HOLLY HEDRICK DIRECTOR 10.00
Director
$0 $0 $0
DEREK G HENNECKE DIRECTOR 10.00
Director
$0 $0 $0
DR STEVE KLASKO DIRECTOR 10.00
Director
$0 $0 $0
DR KATHY MATHEWS DIRECTOR 10.00
Director
$0 $0 $0
DR JAMES MCARTHUR DIRECTOR 10.00
Director
$0 $0 $0
TONY PLOHOROS DIRECTOR 10.00
Director
$0 $0 $0
PATRICK RITSCHEL DIRECTOR 10.00
Director
$0 $0 $0
DR JAMES R RUSCHE DIRECTOR 10.00
Director
$0 $0 $0
PAUL AVERY CHAIRMAN/ DIRECTOR 10.00
Officer Director
$0 $0 $0
JENNIFER M FARMER CHIEF EXECUTIVE OFFICER 40.00
Officer
$167,825 $5,834 $173,659
BARBARA A TATE CHIEF SCIENTIFIC OFFICER 40.00
Highest
$250,000 $7,799 $257,799
ELISABETTA SORAGNI DIRECTOR OF RESEARCH 40.00
Highest
$111,935 $15,538 $127,473
FELICIA DEROSA VP FUNDRAISING & COMMS 40.00
Highest
$102,261 $11,840 $114,101
Note: Compensation data is self-reported by the organization on their Form 990. "Reportable Comp" includes salary, bonuses, and other reportable compensation from the organization and related organizations. "Other Comp" includes benefits, deferred compensation, and non-taxable benefits.

Historical Data

Year Revenue Expenses Assets Net Income
2024 No data No data No data No data
2023 $11,203,043 $12,200,773 $7,752,276 $-997,730
2022 $11,042,911 $11,132,747 $7,260,774 $-89,836
2021 $7,717,778 $9,111,667 $7,478,784 $-1,393,889
2020 $12,543,835 $7,738,702 $9,314,067 $4,805,133
2019 $7,077,589 $7,482,431 $4,187,243 $-404,842
2018 $7,603,545 $7,049,852 $5,108,402 $553,693
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