PRISMS Inc

EIN: 541652029 501(c)(3) Diseases & Disorders

Herndon, VA

Total Revenue
$439,157
Total Expenses
$345,036
Total Assets
$710,153
Net Assets
$703,113
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Financial Vulnerability Assessment (Tuckman-Chang)

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Financial Trends

Organization Details

Formation Year
1993
Legal Domicile
VA
Principal Officer
Michelle Larscheid
Phone
9722310035
Tax Period
2025-01-01 to 2025-12-31

PRISMS Inc, founded in 1993, is a small nonprofit in the Diseases & Disorders sector that reported $439K in total revenue in fiscal year 2025. Revenue decreased 7% compared to the prior year. The organization ran a surplus of $94K, a strong 21% operating margin.

Mission

PRISMS provides a range of services for persons with SMS telephone support, database of registered families, newsletters, informational packets for caregivers and medical professionals. P.R.I.S.M.S., Inc. engages individuals with medical and scientific expertise to serve on its Professional Advisory Board, conducts an international conference.

Program Service Accomplishments

Program 1
Expenses: $137,891

PRISMS provides support to our SMS community in a number of ways in including phone and email support, information sharing newsletters, annual reports, webinars, awareness materials, informational...

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PRISMS provides support to our SMS community in a number of ways in including phone and email support, information sharing newsletters, annual reports, webinars, awareness materials, informational packets, and a shared community Facebook Group for family support. PRISMS also offers guidebooks on topics such as medical management guidelines, constipation, behavior, and residential living. We provide an online store where our community can purchase PRISMS merchandise as well as the book On the Road to Success with SMS.

Program 2
Expenses: $27,238 Revenue: $2,750

PRISMS hosted the 12th Smith-Magenis Syndrome Research Symposium in Boulder, Colorado on September 25-26, 2025. The symposium brought together researchers from around the world to share and...

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PRISMS hosted the 12th Smith-Magenis Syndrome Research Symposium in Boulder, Colorado on September 25-26, 2025. The symposium brought together researchers from around the world to share and collaborate on research about Smith-Magenis Syndrome. Researchers new to the SMS community and graduate students were able to participate in person and virtually to share current and active research initiatives. The symposium was open to all members of the community to attend. PRISMS also funded the research of four summer scholars, graduate students that are working to expend our understanding of SMS.

Program 3
Expenses: $53,583

PRISMS continued to support the PCRC PRISMS Clinics and Research Consortium. SMS Clinics provide multi-specialty, comprehensive and compassionate care for patients with SMS. PCRC also offers families...

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PRISMS continued to support the PCRC PRISMS Clinics and Research Consortium. SMS Clinics provide multi-specialty, comprehensive and compassionate care for patients with SMS. PCRC also offers families the opportunity to carry home treatment recommendations to share with their local providers. The Clinic Travel Fund reimburses caregivers for expenses associated with travel to and from a SMS clinic. This helps ensure families seek the best medical care. With the addition of a clinic at St. Jude Childrens Clinic in Memphis, TN there are now nine clinics in the United States with locations on both the East and West Coast, the Central, and Mid-West.

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Trantor Score

Financial Health Score (300–850) · Liquidity · Solvency · Sustainability · Efficiency

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Liquidity (40%) • Solvency (30%) • Sustainability (20%) • Efficiency (10%)

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Financial Overview (2025)

Revenue Breakdown

Contributions & Grants $399,190
Program Service Revenue $2,750
Investment Income $21,747
Other Revenue $15,470
TOTAL REVENUE $439,157

Expense Breakdown

Grants Paid $28,870
Salaries & Benefits $108,412
Fundraising Expenses $26,348
Program Expenses $218,712
Other Expenses $207,754
TOTAL EXPENSES $345,036

Year-over-Year Comparison

2025 2024 Change
Revenue $439,157 $473,555 -0.1%
Expenses $345,036 $549,812 -0.4%
Net Income $94,121 $-76,257 -2.2%
Key Indicators
Grants to Organizations Grants to Individuals Lobbying Political Activity Foreign Activities Donor Advised Fund Schedule B Required
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Financial Health Indicators

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Governance

Voting Members
11
Independent Members
11
Employees
1
Volunteers
97

Governance Policies

Conflict of Interest Policy
Whistleblower Policy
Document Retention Policy

Special Practices & Reported Activities

Operated a School
Operated a Hospital
Provided First Class Travel
Reported Conflict of Interest
Reported Asset Diversion
Excess Benefit Transaction
Made Political Expenditures
Engaged in Lobbying
Operated Donor Advised Fund
Maintained Art Collections
Filed Form 720

Compensation of Officers, Directors & Key Employees

Total Officers
5
$100,000
Total Directors
11
$0
Key Employees
0
$0
Highest Compensated
0
reported
Name Title Hours/Week Role Reportable Comp Other Comp Total
Michelle Larscheid Executive Director 040.00
Officer
$100,000 $0 $100,000
Percy Huston President 005.00
Officer Director
$0 $0 $0
Jackie Fallenstein Vice President 005.00
Officer Director
$0 $0 $0
Diane Erth Secretary 005.00
Officer Director
$0 $0 $0
Phil Ruedi Treasurer 005.00
Officer Director
$0 $0 $0
Margaret Miller Founding Board Member 003.00
Director
$0 $0 $0
Eric Rogers Board Member 003.00
Director
$0 $0 $0
Sarah Elsea PhD Board Member 003.00
Director
$0 $0 $0
Allison Stephanouk Board Member 003.00
Director
$0 $0 $0
Denien Rasmussen Board Member 003.00
Director
$0 $0 $0
Amy Pereira Board Member 003.00
Director
$0 $0 $0
Jason Michaud Board Member 003.00
Director
$0 $0 $0
Note: Compensation data is self-reported by the organization on their Form 990. "Reportable Comp" includes salary, bonuses, and other reportable compensation from the organization and related organizations. "Other Comp" includes benefits, deferred compensation, and non-taxable benefits.

Historical Data

Year Revenue Expenses Assets Net Income
2025 $439,157 $345,036 $710,153 $94,121
2024 $473,555 $549,812 $608,397 $-76,257
2023 $420,621 $274,778 $691,354 $145,843
2022 $358,976 $605,220 $598,973 $-246,244
2021 $265,985 $244,302 $858,213 $21,683
2020 $484,295 $223,440 $829,953 $260,855
2019 $247,457 $172,072 $587,333 $75,385
2018 $305,020 $355,366 $504,027 $-50,346
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