The Myositis Association

EIN: 541660976 501(c)(3) Human Services

Columbia, MD

Total Revenue
$1,249,899
Total Expenses
$1,888,477
Total Assets
$1,779,524
Net Assets
$1,290,104
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Financial Vulnerability Assessment (Tuckman-Chang)

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Financial Trends

Organization Details

Formation Year
1993
Legal Domicile
VA
Principal Officer
Laurie Boyer
Phone
8008217356
Tax Period
2023-01-01 to 2023-12-31

The Myositis Association, founded in 1993, is a community nonprofit in the Human Services sector that reported $1.2M in total revenue in fiscal year 2023. Revenue decreased 5% compared to the prior year. Expenses of $1.9M exceeded revenue, resulting in a 51% operating deficit.

Mission

In 2023, The Myositis Association (TMA) celebrated our 30th year of service to the worldwide myositis community. TMA Myositis Africa was established as our newest regional support group, with support from the TMA Women of Color Affinity Group. Two new research grants were approved, in myositis-associated interstitial lung disease and predictive modeling of inclusion body myositis. Two investigators with TMA-funded projects concluded their studies in 2023, with findings on immune checkpoint inhibitor-induced myositis and the pathological role of B cells in myositis. TMA continued our long-running International Annual Patient Conference, hosted the "Beyond Limits" virtual summit during Myositis Awareness Month, and partnered with the Kansas University Medical Center on a virtual Regional Conference for Myositis Patients.

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Trantor Score

Financial Health Score (300–850) · Liquidity · Solvency · Sustainability · Efficiency

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Liquidity (40%) • Solvency (30%) • Sustainability (20%) • Efficiency (10%)

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Financial Overview (2023)

Revenue Breakdown

Contributions & Grants $1,189,812
Program Service Revenue $84,124
Investment Income $-10,414
Other Revenue $-13,623
TOTAL REVENUE $1,249,899

Expense Breakdown

Grants Paid $228,536
Salaries & Benefits $518,793
Fundraising Expenses $148,572
Program Expenses $1,197,234
Other Expenses $1,141,148
TOTAL EXPENSES $1,888,477

Year-over-Year Comparison

2023 2022 Change
Revenue $1,249,899 $1,317,262 -0.1%
Expenses $1,888,477 $1,654,469 +0.1%
Net Income $-638,578 $-337,207 +0.9%
Key Indicators
Grants to Organizations Grants to Individuals Lobbying Political Activity Foreign Activities Donor Advised Fund Schedule B Required
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Governance

Voting Members
17
Independent Members
17
Employees
8
Volunteers
75

Governance Policies

Conflict of Interest Policy
Whistleblower Policy
Document Retention Policy

Special Practices & Reported Activities

Operated a School
Operated a Hospital
Provided First Class Travel
Reported Conflict of Interest
Reported Asset Diversion
Excess Benefit Transaction
Made Political Expenditures
Engaged in Lobbying
Operated Donor Advised Fund
Maintained Art Collections
Filed Form 720

Compensation of Officers, Directors & Key Employees

Total Officers
7
$219,804
Total Directors
17
$0
Key Employees
0
$0
Highest Compensated
0
reported
Name Title Hours/Week Role Reportable Comp Other Comp Total
Rhonda Buckley-Bishop Interim Executive Dir. 40.00
Officer
$183,137 $0 $183,137
Chris Thornton Outgoing Executive Dir. 40.00
Officer
$20,436 $0 $20,436
Paula Eichenbrenner Incoming Executive Dir. 40.00
Officer
$16,231 $0 $16,231
Martha Arnold Secretary 1.50
Officer Director
$0 $0 $0
Laurie Boyer Vice Chair Director 1.50
Officer Director
$0 $0 $0
Jeff Autrey Director 0.50
Director
$0 $0 $0
Gail Bayliss Director 0.50
Director
$0 $0 $0
Rex Bickers Director 0.50
Director
$0 $0 $0
David Mochel Chair Director 1.50
Officer Director
$0 $0 $0
Marianne Moyer Director 0.50
Director
$0 $0 $0
Ronne Adkins Director 0.50
Director
$0 $0 $0
Rodger Oren Director 0.50
Director
$0 $0 $0
Iazsmin Bauer Ventura Director 0.50
Director
$0 $0 $0
Holly Jones Director 0.50
Director
$0 $0 $0
Frank Lipiecki Director 0.50
Director
$0 $0 $0
Rich DeAugustinis Treasurer 1.50
Officer Director
$0 $0 $0
Ricky Marks Director 0.50
Director
$0 $0 $0
Nita Sharma Director 0.50
Director
$0 $0 $0
Howard Gerrin Director 0.50
Director
$0 $0 $0
Tahseen Mozaffar Director 0.50
Director
$0 $0 $0
Note: Compensation data is self-reported by the organization on their Form 990. "Reportable Comp" includes salary, bonuses, and other reportable compensation from the organization and related organizations. "Other Comp" includes benefits, deferred compensation, and non-taxable benefits.

Historical Data

Year Revenue Expenses Assets Net Income
2024 No data No data No data No data
2023 $1,249,899 $1,888,477 $1,779,524 $-638,578
2022 $1,317,262 $1,654,469 $2,327,942 $-337,207
2021 $1,770,917 $1,269,788 $2,957,547 $501,129
2020 $1,179,750 $1,183,055 $2,242,240 $-3,305
2019 $1,016,099 $1,622,977 $2,226,058 $-606,878
2018 $1,762,199 $1,584,809 $2,838,260 $177,390
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