ALS UNITED NORTH CAROLINA

EIN: 561609591 501(c)(3) Health Care

RALEIGH, NC

Total Revenue
$1,464,358
Total Expenses
$2,726,538
Total Assets
$2,150,048
Net Assets
$1,953,996
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Financial Vulnerability Assessment (Tuckman-Chang)

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Financial Trends

Organization Details

Formation Year
1988
Legal Domicile
NC
Principal Officer
MARY GRAMS
Phone
9197559001
Tax Period
2024-02-01 to 2025-01-31

ALS UNITED NORTH CAROLINA, founded in 1988, is a community nonprofit in the Health Care sector that reported $1.5M in total revenue in fiscal year 2024. Revenue fell 45% from the prior year — a significant decline worth monitoring. Expenses of $2.7M exceeded revenue, resulting in a 86% operating deficit.

Mission

TO DISCOVER TREATMENTS AND A CURE FOR ALS AND TO SERVE, ADVOCATE FOR, AND EMPOWER PEOPLE AFFECTED BY ALS TO LIVE THEIR LIVES TO THE FULLEST.

Program Service Accomplishments

Program 1
Expenses: $1,638,503 Revenue: $8,215

CARE SERVICES IS A PROGRAM THAT SERVES FAMILIES LIVING WITH ALS IN ALL 100 COUNTIES IN NORTH CAROLINA. ALS UNITED NORTH CAROLINA CONTINUES TO SUPPORT ALL ALS CLINICS IN NORTH CAROLINA, MAINTAIN A...

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CARE SERVICES IS A PROGRAM THAT SERVES FAMILIES LIVING WITH ALS IN ALL 100 COUNTIES IN NORTH CAROLINA. ALS UNITED NORTH CAROLINA CONTINUES TO SUPPORT ALL ALS CLINICS IN NORTH CAROLINA, MAINTAIN A MEDICAL EQUIPMENT LOAN PROGRAM, HOST MONTHLY SUPPORT GROUPS, AND PROVIDE FINANCIAL SUPPORT TO FAMILIES TO HELP ALLEVIATE STRESS RELATED TO THE COST OF MEDICAL TREATMENTS AND SERVICES FOR ALS AS IDENTIFIED IN THE FOCUS SURVEY "UNDERSTANDING INSURANCE NEEDS AND FINANCIAL BURDENS." IN THE 2024 FISCAL YEAR ALSUNC HELD 104 VIRTUAL SUPPORT GROUP MEETINGS, LOANED NEARLY 500 PIECES OF DURABLE MEDICAL EQUIPMENT, PAID FOR MORE THAN 2,700 HOURS OF IN-HOME CARE, AND SUPPORTED OUR MULTIDISCIPLINARY CLINICS THAT SERVED OVER 1500 HOURS OF PATIENT VISITS.

Program 2

THE GLOBAL RESEARCH PROGRAM PROVIDES FUNDING TO SUPPORT INTERNATIONAL MEDICAL RESEARCH TO DISCOVER EFFECTIVE TREATMENTS AND A CURE FOR ALS.

Program 3
Expenses: $643,195

THE PUBLIC EDUCATION AND AWARENESS PROGRAM IS DESIGNED TO INCREASE UNDERSTANDING, EDUCATION, AND AWARENESS OF THE IMPACT OF ALS AND THE ROLE THAT THE ASSOCIATION PLAYS IN PROVIDING CARE SERVICES...

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THE PUBLIC EDUCATION AND AWARENESS PROGRAM IS DESIGNED TO INCREASE UNDERSTANDING, EDUCATION, AND AWARENESS OF THE IMPACT OF ALS AND THE ROLE THAT THE ASSOCIATION PLAYS IN PROVIDING CARE SERVICES, ADVANCING GLOBAL ALS RESEARCH, AND ADVANCING IMPORTANT PUBLIC POLICY INITIATIVES.

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Trantor Score

Financial Health Score (300–850) · Liquidity · Solvency · Sustainability · Efficiency

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Liquidity (40%) • Solvency (30%) • Sustainability (20%) • Efficiency (10%)

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Financial Overview (2024)

Revenue Breakdown

Contributions & Grants $1,603,538
Program Service Revenue $8,215
Investment Income $50,728
Other Revenue $-198,123
TOTAL REVENUE $1,464,358

Expense Breakdown

Grants Paid $0
Salaries & Benefits $1,307,014
Fundraising Expenses $139,954
Program Expenses $2,281,698
Other Expenses $1,419,524
TOTAL EXPENSES $2,726,538

Year-over-Year Comparison

2024 2023 Change
Revenue $1,464,358 $2,675,738 -0.5%
Expenses $2,726,538 $2,608,847 +0.0%
Net Income $-1,262,180 $66,891 -19.9%
Key Indicators
Grants to Organizations Grants to Individuals Lobbying Political Activity Foreign Activities Donor Advised Fund Schedule B Required
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Governance

Voting Members
13
Independent Members
13
Employees
17
Volunteers
80

Governance Policies

Conflict of Interest Policy
Whistleblower Policy
Document Retention Policy

Special Practices & Reported Activities

Operated a School
Operated a Hospital
Provided First Class Travel
Reported Conflict of Interest
Reported Asset Diversion
Excess Benefit Transaction
Made Political Expenditures
Engaged in Lobbying
Operated Donor Advised Fund
Maintained Art Collections
Filed Form 720

Compensation of Officers, Directors & Key Employees

Total Officers
5
$203,678
Total Directors
13
$0
Key Employees
0
$0
Highest Compensated
0
reported
Name Title Hours/Week Role Reportable Comp Other Comp Total
DOUGLAS NOREEN CHAIR 15.00
Officer Director
$0 $0 $0
KATHRYN FOSTER VICE CHAIR 6.00
Officer Director
$0 $0 $0
CHRISTY HALL SECRETARY 3.00
Officer Director
$0 $0 $0
ROBERT WHITED TREASURER 3.00
Officer Director
$0 $0 $0
KATHLEEN BOYCE DIRECTOR 2.00
Director
$0 $0 $0
BRAXTON ANTHONY DIRECTOR 2.00
Director
$0 $0 $0
BETH CHRISTINA DIRECTOR 2.00
Director
$0 $0 $0
MICHAEL BEDELL DIRECTOR 2.00
Director
$0 $0 $0
LINDA SHUFORD-REEVES DIRECTOR 2.00
Director
$0 $0 $0
ANN WHITE DIRECTOR 2.00
Director
$0 $0 $0
STEPHEN RIDDELL DIRECTOR 2.00
Director
$0 $0 $0
SARAH BOYCE DIRECTOR 2.00
Director
$0 $0 $0
TONY LUPER DIRECTOR 2.00
Director
$0 $0 $0
DAVID SHORE PRESIDENT & CEO 44.00
Officer
$185,308 $18,370 $203,678
Note: Compensation data is self-reported by the organization on their Form 990. "Reportable Comp" includes salary, bonuses, and other reportable compensation from the organization and related organizations. "Other Comp" includes benefits, deferred compensation, and non-taxable benefits.

Historical Data

Year Revenue Expenses Assets Net Income
2025 $1,464,358 $2,726,538 $2,150,048 $-1,262,180
2024 No data No data No data No data
2023 $2,274,184 $2,836,951 $3,182,521 $-562,767
2022 $2,631,845 $2,091,197 $3,676,425 $540,648
2021 $2,261,817 $2,195,908 $3,362,862 $65,909
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