NORTH EAST ALS CONSORTIUM INC

EIN: 562547779 501(c)(3) Medical Research

BOSTON, MA

Total Revenue
$2,066,070
Total Expenses
$554,594
Total Assets
$3,081,868
Net Assets
$2,830,314
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Financial Vulnerability Assessment (Tuckman-Chang)

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Financial Trends

Organization Details

Formation Year
2005
Legal Domicile
NY
Principal Officer
CARLY ALLEN
Phone
6178584277
Tax Period
2024-01-01 to 2024-12-31

NORTH EAST ALS CONSORTIUM INC, founded in 2005, is a community nonprofit in the Medical Research sector that reported $2.1M in total revenue in fiscal year 2024. Revenue surged 53% from the prior year, signaling strong growth momentum. The organization ran a surplus of $1.5M, a strong 73% operating margin.

Mission

THE MISSION OF NORTH EAST ALS CONSORTIUM (NEALS) IS TO TRANSLATE SCIENTIFIC ADVANCES INTO CLINCICAL RESEARCH AND NEW TREATMENTS FOR PEOPLE WITH AMYOTROPHIC LATERAL SCLEROSIS (ALS) AND MOTOR NEURON DISEASE (MND) AS RAPIDLY AS POSSIBLE.

Program Service Accomplishments

Program 1
Expenses: $298,146 Revenue: $954,412

THE ANNUAL NEALS MEETING SERVES AS AN OPPORTUNITY FOR NEALS RESEARCHERS TO LIAISE WITH LEADING ALS AND MND SCIENTISTS, GOVERNMENT SPONSORS, ACADEMIC PARTNERS, AND PHARMACEUTICAL COMPANIES IN ORDER TO...

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THE ANNUAL NEALS MEETING SERVES AS AN OPPORTUNITY FOR NEALS RESEARCHERS TO LIAISE WITH LEADING ALS AND MND SCIENTISTS, GOVERNMENT SPONSORS, ACADEMIC PARTNERS, AND PHARMACEUTICAL COMPANIES IN ORDER TO DISCUSS POTENTIAL TREATMENTS, TO REVIEW CURRENT RESEARCH ACTIVITIES, AND TO SHARE SCIENTIFIC UPDATES. THE NEALS SCIENCE ADVISORY BOARD IS RESPONSIBLE FOR ADVISING THE NEALS EXECUTIVE COMMITTEE AND NEALS MEMBERS ABOUT THE SCIENTIFIC BASIS OF NEALS RESEARCH ACTIVITIES. IN ADDITION, NEALS HAS BUILT AN EXTENSIVE ALS SAMPLE REPOSITORY AND MAINTAINED SEVERAL TRIAL DATABASES. IN THE SPIRIT OF COLLABORATION, WE MAKE RESOURCES SUCH AS THESE WIDELY AVAILABLE TO INVESTIGATORS CONDUCTING RESEARCH IN ALS.

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Trantor Score

Financial Health Score (300–850) · Liquidity · Solvency · Sustainability · Efficiency

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Liquidity (40%) • Solvency (30%) • Sustainability (20%) • Efficiency (10%)

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Financial Overview (2024)

Revenue Breakdown

Contributions & Grants $1,107,241
Program Service Revenue $954,412
Investment Income $4,417
Other Revenue $0
TOTAL REVENUE $2,066,070

Expense Breakdown

Grants Paid $0
Salaries & Benefits $0
Fundraising Expenses $12,604
Program Expenses $298,146
Other Expenses $554,594
TOTAL EXPENSES $554,594

Year-over-Year Comparison

2024 2023 Change
Revenue $2,066,070 $1,347,482 +0.5%
Expenses $554,594 $1,069,037 -0.5%
Net Income $1,511,476 $278,445 +4.4%
Key Indicators
Grants to Organizations Grants to Individuals Lobbying Political Activity Foreign Activities Donor Advised Fund Schedule B Required
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Liquidity & Cash Position

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Governance

Voting Members
11
Independent Members
11
Employees
N/A
Volunteers
11

Governance Policies

Conflict of Interest Policy
Whistleblower Policy
Document Retention Policy

Special Practices & Reported Activities

Operated a School
Operated a Hospital
Provided First Class Travel
Reported Conflict of Interest
Reported Asset Diversion
Excess Benefit Transaction
Made Political Expenditures
Engaged in Lobbying
Operated Donor Advised Fund
Maintained Art Collections
Filed Form 720

Compensation of Officers, Directors & Key Employees

Total Officers
3
$0
Total Directors
11
$0
Key Employees
0
$0
Highest Compensated
0
reported
Name Title Hours/Week Role Reportable Comp Other Comp Total
ROBERT H BROWNMD DPHIL SAB, CHAIR 1.00
Director
$0 $0 $0
GALE KITTLE CLINICAL EVALUATOR MEMBER 1.00
Director
$0 $0 $0
JEFFREY ROTHSTEINMDPHD SAB, CHAIR 1.00
Director
$0 $0 $0
TIMOTHY MILLER MD PHD SAB, CHAIR 1.00
Director
$0 $0 $0
JINSY ANDREWS MD MSC CO-CHAIR 5.00
Officer Director
$0 $0 $0
CHRISTINA FOURNIER INVESTIGATOR MEMBER 1.00
Director
$0 $0 $0
NICOLE TURCOTTE COORDINATOR MEMBER 1.00
Director
$0 $0 $0
MATTHEW HARMS INVESTIGATOR MEMBER 1.00
Director
$0 $0 $0
SABRINA PAGANONI INVESTIGATOR MEMBER 1.00
Director
$0 $0 $0
ZACHARY SIMMONS INVESTIGATOR MEMBER 1.00
Director
$0 $0 $0
JAMES BERRY CO-CHAIR 5.00
Officer Director
$0 $0 $0
CARLY ALLEN DIRECTOR OF OPERATION 40.00
Officer
$0 $0 $0
Note: Compensation data is self-reported by the organization on their Form 990. "Reportable Comp" includes salary, bonuses, and other reportable compensation from the organization and related organizations. "Other Comp" includes benefits, deferred compensation, and non-taxable benefits.

Historical Data

Year Revenue Expenses Assets Net Income
2024 $2,066,070 $554,594 $3,081,868 $1,511,476
2023 $1,347,482 $1,069,037 $1,517,173 $278,445
2023 $1,571,264 $1,057,037 $1,608,873 $514,227
2022 $1,108,820 $893,513 $1,089,210 $215,307
2021 $886,426 $593,913 $897,067 $292,513
2020 $616,014 $487,454 $588,932 $128,560
2019 $902,463 $734,252 $527,443 $168,211
2018 $458,378 $490,158 $338,838 $-31,780
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