SPINA BIFIDA ASSOCIATION OF AMERICA

EIN: 581342181 501(c)(3) Diseases & Disorders

ALEXANDRIA, VA

Total Revenue
$1,942,830
Total Expenses
$2,045,054
Total Assets
$714,042
Net Assets
$633,186
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Financial Trends

Organization Details

Formation Year
1973
Legal Domicile
WI
Principal Officer
SARA STRUWE
Phone
2026184750
Tax Period
2024-01-01 to 2024-12-31

SPINA BIFIDA ASSOCIATION OF AMERICA, founded in 1973, is a community nonprofit in the Diseases & Disorders sector that reported $3.0M in total revenue in fiscal year 2018. Revenue surged 58% from the prior year, signaling strong growth momentum. The organization ran a surplus of $1.1M, a strong 38% operating margin.

Mission

THE MISSION OF THE SPINA BIFIDA ASSOCIATION IS TO BUILD A BETTER AND BRIGHTER FUTURE FOR ALL THOSE IMPACTED BY SPINA BIFIDA.

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Trantor Score

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Liquidity (40%) • Solvency (30%) • Sustainability (20%) • Efficiency (10%)

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Financial Overview (2024)

Revenue Breakdown

Contributions & Grants $1,387,255
Program Service Revenue $522,105
Investment Income $2,722
Other Revenue $30,748
TOTAL REVENUE $1,942,830

Expense Breakdown

Grants Paid $0
Salaries & Benefits $1,365,548
Fundraising Expenses $257,407
Program Expenses $1,641,556
Other Expenses $679,506
TOTAL EXPENSES $2,045,054

Year-over-Year Comparison

2024 2023 Change
Revenue $1,942,830 $2,834,510 -0.3%
Expenses $2,045,054 $3,175,550 -0.4%
Net Income $-102,224 $-341,040 -0.7%
Key Indicators
Grants to Organizations Grants to Individuals Lobbying Political Activity Foreign Activities Donor Advised Fund Schedule B Required
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Governance

Voting Members
16
Independent Members
16
Employees
16
Volunteers
680

Governance Policies

Conflict of Interest Policy
Whistleblower Policy
Document Retention Policy

Special Practices & Reported Activities

Operated a School
Operated a Hospital
Provided First Class Travel
Reported Conflict of Interest
Reported Asset Diversion
Excess Benefit Transaction
Made Political Expenditures
Engaged in Lobbying
Operated Donor Advised Fund
Maintained Art Collections
Filed Form 720

Compensation of Officers, Directors & Key Employees

Total Officers
7
$417,323
Total Directors
16
$0
Key Employees
0
$0
Highest Compensated
0
reported
Name Title Hours/Week Role Reportable Comp Other Comp Total
NANCY GORE CHAIR 5.00
Officer Director
$0 $0 $0
MARIA BOURNIAS ESQ CPA IMMEDIATE PAST CHAIR 2.00
Officer Director
$0 $0 $0
ERIC TOBIN CHAIR-ELECT 2.00
Officer Director
$0 $0 $0
ANSHUL VARMA SECRETARY/TREASURER 2.00
Officer Director
$0 $0 $0
MARIE THOMING PE MEMBER AT LARGE 2.00
Director
$0 $0 $0
JAMES ARMIJO DIRECTOR 2.00
Director
$0 $0 $0
ROBIN M BOWMAN MD DIRECTOR 2.00
Director
$0 $0 $0
TRACY DINUNZIO DIRECTOR 2.00
Director
$0 $0 $0
ELLEN FREMION MD FAAP FACP DIRECTOR 2.00
Director
$0 $0 $0
CHASE PHILLIPS DIRECTOR 2.00
Director
$0 $0 $0
SHELIAH ROY DIRECTOR 2.00
Director
$0 $0 $0
KATHRYN ANN NAVARETTE SMITH RN MN DIRECTOR 2.00
Director
$0 $0 $0
BRYAN VODICKA DIRECTOR 2.00
Director
$0 $0 $0
DAWNE WIDENER-BURROWS DIRECTOR 2.00
Director
$0 $0 $0
MELISSA WIEGEL DIRECTOR 2.00
Director
$0 $0 $0
JOHN WIENER MD DIRECTOR 2.00
Director
$0 $0 $0
SARA STRUWE PRESIDENT AND CEO 37.50
Officer
$139,468 $24,250 $163,718
MICHAEL WOOD CHIEF OPERATING OFFICER 37.50
Officer
$95,445 $19,884 $115,329
GLENRAE BROWN CHIEF FINANCIAL OFFICER 37.50
Officer
$113,972 $24,304 $138,276
Note: Compensation data is self-reported by the organization on their Form 990. "Reportable Comp" includes salary, bonuses, and other reportable compensation from the organization and related organizations. "Other Comp" includes benefits, deferred compensation, and non-taxable benefits.

Historical Data

Year Revenue Expenses Assets Net Income
2024 $1,942,830 $2,045,054 $714,042 $-102,224
2023 $2,834,510 $3,175,550 $1,019,508 $-341,040
2022 $2,183,431 $2,305,814 $1,417,977 $-122,383
2021 $2,283,696 $2,036,878 $1,442,536 $246,818
2020 $1,521,449 $2,051,396 $1,403,641 $-529,947
2019 $1,854,005 $2,232,064 $1,680,010 $-378,059
2018 $2,952,180 $1,840,157 $2,022,861 $1,112,023
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