INTERNATIONAL FOP ASSOCIATION INC (EIN 592918100) - Form 990 Financial Analysis & Trantor Score

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Financial Vulnerability Assessment (Tuckman-Chang)

4 risk indicators measuring financial stability and operational resilience

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Financial Trends

Organization Details

Formation Year

1988

Legal Domicile

Principal Officer

MICHELLE DAVIS

Phone

4073654194

Tax Period

2023-01-01 to 2023-12-31

INTERNATIONAL FOP ASSOCIATION INC, founded in 1988, is a community nonprofit that reported $1.8M in total revenue in fiscal year 2023. Revenue fell 41% from the prior year — a significant decline worth monitoring. Expenses of $3.3M exceeded revenue, resulting in a 83% operating deficit.

Mission

THE IFOPA'S MISSION IS TO FUND RESEARCH TO FIND A CURE FOR FIBRODYSPLASIA OSSIFICANS PROGRESSIVA (FOP) WHILE SUPPORTING, CONNECTING AND ADVOCATING FOR INDIVIDUALS WITH FOP AND THEIR FAMILIES, AND RAISING AWARENESS WORLDWIDE.

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Trantor Score

Financial Health Score (300–850) · Liquidity · Solvency · Sustainability · Efficiency

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Liquidity (40%) • Solvency (30%) • Sustainability (20%) • Efficiency (10%)

Financial Overview (2023)

Revenue Breakdown

Contributions & Grants $1,685,848

Program Service Revenue $137,867

Investment Income $95,796

Other Revenue $-109,481

TOTAL REVENUE $1,810,030

Expense Breakdown

Grants Paid $857,200

Salaries & Benefits $941,329

Fundraising Expenses $240,462

Program Expenses $2,670,646

Other Expenses $1,512,947

TOTAL EXPENSES $3,318,084

Year-over-Year Comparison

	2023	2022	Change
Revenue	$1,810,030	$3,050,181	-0.4%
Expenses	$3,318,084	$3,502,663	-0.1%
Net Income	$-1,508,054	$-452,482	+2.3%

Key Indicators

✓ Grants to Organizations ✓ Grants to Individuals ✗ Lobbying ✗ Political Activity ✓ Foreign Activities ✗ Donor Advised Fund ✓ Schedule B Required

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Financial Health Indicators

Comprehensive financial analysis: Altman Z-Score, liquidity, solvency, sustainability, efficiency, and growth metrics

Financial Distress Indicator

Liquidity & Cash Position

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Altman Z-Score • Liquidity Ratios • Solvency Analysis • Growth Indicators • Efficiency Metrics

Governance

Voting Members

Independent Members

Employees

N/A

Volunteers

150

Governance Policies

✓ Conflict of Interest Policy

✓ Whistleblower Policy

✓ Document Retention Policy

Special Practices & Reported Activities

✗ Operated a School

✗ Operated a Hospital

✗ Provided First Class Travel

✗ Reported Conflict of Interest

✗ Reported Asset Diversion

✗ Excess Benefit Transaction

✗ Made Political Expenditures

✗ Engaged in Lobbying

✗ Operated Donor Advised Fund

✗ Maintained Art Collections

✗ Filed Form 720

Compensation of Officers, Directors & Key Employees

Total Officers

$208,094

Total Directors

Key Employees

Highest Compensated

reported

Name	Title	Hours/Week	Role	Reportable Comp	Other Comp	Total
MEGAN OLSEN	CHAIR	1.00	Officer Director	$0	$0	$0
REBECCA WALLACE	VICE CHAIR	1.00	Officer Director	$0	$0	$0
EMMA ALBEE	SECRETARY	1.00	Officer Director	$0	$0	$0
GARY MCGUIRE	TREASURER	1.00	Officer Director	$0	$0	$0
HELEN BEDFORD-GAY	DIRECTOR	1.00	Director	$0	$0	$0
KYLE BRINKMAN	DIRECTOR	1.00	Director	$0	$0	$0
CHRISSY FLEXER	DIRECTOR	1.00	Director	$0	$0	$0
NADINE GROSSMAN	DIRECTOR	1.00	Director	$0	$0	$0
KERRY HUESTON	DIRECTOR	1.00	Director	$0	$0	$0
HOLLIE SCHMIDT	DIRECTOR	1.00	Director	$0	$0	$0
MICHELLE DAVIS	EXECUTIVE DIRECTOR	40.00	Officer	$198,735	$9,359	$208,094
DANIELLE KERKOVICH	RESEARCH DIRECTOR	40.00	Highest	$154,341	$9,359	$163,700
SAMANTHA KILE	REAL WORLD EVIDENCE MANAGER	40.00	Highest	$123,997	$357	$124,354

Note: Compensation data is self-reported by the organization on their Form 990. "Reportable Comp" includes salary, bonuses, and other reportable compensation from the organization and related organizations. "Other Comp" includes benefits, deferred compensation, and non-taxable benefits.

Historical Data

Year	Revenue	Expenses	Assets	Net Income
2024	No data	No data	No data	No data
2023	$1,810,030	$3,318,084	$4,172,035	$-1,508,054
2022	$3,050,181	$3,502,663	$5,076,827	$-452,482
2021	$3,272,897	$2,616,890	$5,830,583	$656,007
2020	$2,800,436	$2,742,275	$6,003,582	$58,161
2019	$3,347,323	$2,825,791	$5,775,561	$521,532
2018	$3,782,239	$2,652,236	$5,556,341	$1,130,003

INTERNATIONAL FOP ASSOCIATION INC