ANGELMAN SYNDROME FOUNDATION INC

EIN: 593092842 501(c)(3) Medical Research

AURORA, IL

Total Revenue
$3,906,892
Total Expenses
$3,721,265
Total Assets
$2,637,296
Net Assets
$2,101,897
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Financial Vulnerability Assessment (Tuckman-Chang)

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Financial Trends

Organization Details

Formation Year
1992
Legal Domicile
FL
Principal Officer
AMANDA MOORE
Phone
6309784245
Tax Period
2024-10-01 to 2025-09-30

ANGELMAN SYNDROME FOUNDATION INC, founded in 1992, is a community nonprofit in the Medical Research sector that reported $3.9M in total revenue in fiscal year 2024. Expenses of $3.7M left a modest 5% surplus.

Mission

THE FOUNDATION PROVIDES EDUCATIONAL TOOLS, INFORMATION AND SUPPORT TO INDIVIDUALS CONCERNED WITH THOSE AFFECTED BY ANGELMAN SYNDROME. THE FOUNDATION SUPPORTS AND FUNDS BASIC SCIENCE RESEARCH AND CLINICAL TRIALS.

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Trantor Score

Financial Health Score (300–850) · Liquidity · Solvency · Sustainability · Efficiency

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Liquidity (40%) • Solvency (30%) • Sustainability (20%) • Efficiency (10%)

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Financial Overview (2024)

Revenue Breakdown

Contributions & Grants $2,318,250
Program Service Revenue $1,440,198
Investment Income $130,984
Other Revenue $17,460
TOTAL REVENUE $3,906,892

Expense Breakdown

Grants Paid $1,298,418
Salaries & Benefits $601,397
Fundraising Expenses $588,406
Program Expenses $2,828,044
Other Expenses $1,821,450
TOTAL EXPENSES $3,721,265

Year-over-Year Comparison

2024 2023 Change
Revenue $3,906,892 $3,863,609 +0.0%
Expenses $3,721,265 $3,934,210 -0.1%
Net Income $185,627 $-70,601 -3.6%
Key Indicators
Grants to Organizations Grants to Individuals Lobbying Political Activity Foreign Activities Donor Advised Fund Schedule B Required
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Financial Health Indicators

Comprehensive financial analysis: Altman Z-Score, liquidity, solvency, sustainability, efficiency, and growth metrics

Financial Distress Indicator

Liquidity & Cash Position

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Altman Z-Score • Liquidity Ratios • Solvency Analysis • Growth Indicators • Efficiency Metrics

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Governance

Voting Members
18
Independent Members
18
Employees
8
Volunteers
685

Governance Policies

Conflict of Interest Policy
Whistleblower Policy
Document Retention Policy

Special Practices & Reported Activities

Operated a School
Operated a Hospital
Provided First Class Travel
Reported Conflict of Interest
Reported Asset Diversion
Excess Benefit Transaction
Made Political Expenditures
Engaged in Lobbying
Operated Donor Advised Fund
Maintained Art Collections
Filed Form 720

Compensation of Officers, Directors & Key Employees

Total Officers
5
$118,419
Total Directors
14
$0
Key Employees
0
$0
Highest Compensated
0
reported
Name Title Hours/Week Role Reportable Comp Other Comp Total
AMANDA MOORE CEO 40.00
Officer
$118,419 $0 $118,419
REBECCA BURDINE SAC CHAIR 1.00
Director
$0 $0 $0
APRIL CANTER DIRECTOR 1.00
Director
$0 $0 $0
JERALD FRITZ DIRECTOR 1.00
Director
$0 $0 $0
TAYLOR GEATHERS DIRECTOR 1.00
Director
$0 $0 $0
ESLIN GUICE DIRECTOR 1.00
Director
$0 $0 $0
DAN HARVEY DIRECTOR 2.00
Director
$0 $0 $0
RICHARD KRAKER DIRECTOR 2.00
Director
$0 $0 $0
MINDY MCBRIBE DIRECTOR 1.00
Director
$0 $0 $0
CHRISTIAN PACHE DIRECTOR 2.00
Director
$0 $0 $0
LIA PERRYMAN DIRECTOR 1.00
Director
$0 $0 $0
STEVE PILUSO DIRECTOR 1.00
Director
$0 $0 $0
WILLIAM RAKOCZY DIRECTOR N/A
Director
$0 $0 $0
COURTNEY SWAFFORD DIRECTOR 1.00
Director
$0 $0 $0
MARCUS THOMPSON DIRECTOR 1.00
Director
$0 $0 $0
CHARLES WINSLOW III SECRETARY 1.00
Officer
$0 $0 $0
LESLEY MCCULLOUGH MCCALISTER PRESIDENT 2.00
Officer
$0 $0 $0
ANDREW OBERWAGER TREASURER 2.00
Officer
$0 $0 $0
JOHN SUGDEN VICE CHAIR 2.00
Officer
$0 $0 $0
Note: Compensation data is self-reported by the organization on their Form 990. "Reportable Comp" includes salary, bonuses, and other reportable compensation from the organization and related organizations. "Other Comp" includes benefits, deferred compensation, and non-taxable benefits.

Historical Data

Year Revenue Expenses Assets Net Income
2025 $3,906,892 $3,721,265 $2,637,296 $185,627
2024 $3,863,609 $3,934,210 $2,653,640 $-70,601
2023 $3,638,325 $3,635,328 $2,274,369 $2,997
2022 $3,676,179 $3,640,818 $2,249,648 $35,361
2022 $3,676,179 $3,640,818 $2,249,648 $35,361
2021 $2,364,424 $2,131,056 $2,142,185 $233,368
2020 $1,858,618 $1,937,799 $1,891,862 $-79,181
2019 $2,330,203 $1,862,256 $1,842,550 $467,947
2019 $2,330,203 $1,862,256 $1,842,550 $467,947
2018 $2,111,449 $2,143,134 $1,373,981 $-31,685
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