The Joshua Frase Foundation for Congenital Myopathy Research Inc

EIN: 597059890 501(c)(3) Diseases & Disorders

Ponte Vedra Beach, FL

Total Revenue
$51,271
Total Expenses
$87,852
Total Assets
$47,901
Net Assets
$29,621
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Financial Vulnerability Assessment (Tuckman-Chang)

4 risk indicators measuring financial stability and operational resilience

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Financial Trends

Organization Details

Formation Year
1996
Legal Domicile
FL
Principal Officer
Alison Rockett
Phone
9048214246
Tax Period
2023-01-01 to 2023-12-31

The Joshua Frase Foundation for Congenital Myopathy Research Inc, founded in 1996, is a micro nonprofit in the Diseases & Disorders sector that reported $51K in total revenue in fiscal year 2023. Revenue fell 24% from the prior year — a significant decline worth monitoring. Expenses of $88K exceeded revenue, resulting in a 71% operating deficit.

Mission

Research for Myotubular Myopathy and other Congenital Myopathies, educational information, and research support.

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Trantor Score

Financial Health Score (300–850) · Liquidity · Solvency · Sustainability · Efficiency

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Liquidity (40%) • Solvency (30%) • Sustainability (20%) • Efficiency (10%)

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Financial Overview (2023)

Revenue Breakdown

Contributions & Grants $51,221
Program Service Revenue $0
Investment Income $50
Other Revenue $0
TOTAL REVENUE $51,271

Expense Breakdown

Grants Paid $1,897
Salaries & Benefits $59,051
Fundraising Expenses $31,203
Program Expenses $43,747
Other Expenses $26,904
TOTAL EXPENSES $87,852

Year-over-Year Comparison

2023 2022 Change
Revenue $51,271 $67,138 -0.2%
Expenses $87,852 $89,704 0.0%
Net Income $-36,581 $-22,566 +0.6%
Key Indicators
Grants to Organizations Grants to Individuals Lobbying Political Activity Foreign Activities Donor Advised Fund Schedule B Required
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Financial Health Indicators

Comprehensive financial analysis: Altman Z-Score, liquidity, solvency, sustainability, efficiency, and growth metrics

Financial Distress Indicator

Liquidity & Cash Position

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Altman Z-Score • Liquidity Ratios • Solvency Analysis • Growth Indicators • Efficiency Metrics

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Governance

Voting Members
8
Independent Members
7
Employees
1
Volunteers
N/A

Governance Policies

Conflict of Interest Policy
Whistleblower Policy
Document Retention Policy

Special Practices & Reported Activities

Operated a School
Operated a Hospital
Provided First Class Travel
Reported Conflict of Interest
Reported Asset Diversion
Excess Benefit Transaction
Made Political Expenditures
Engaged in Lobbying
Operated Donor Advised Fund
Maintained Art Collections
Filed Form 720

Compensation of Officers, Directors & Key Employees

Total Officers
3
$54,855
Total Directors
8
$54,855
Key Employees
0
$0
Highest Compensated
0
reported
Name Title Hours/Week Role Reportable Comp Other Comp Total
Alison Rockett President 55.00
Officer Director
$54,855 $0 $54,855
Lisa Nickerson Vice president 1.00
Officer Director
$0 $0 $0
Paul Frase Secretary 1.00
Officer Director
$0 $0 $0
Scott Grant Director 1.00
Director
$0 $0 $0
Sean Klinkowize Director 1.00
Director
$0 $0 $0
Daryl Johnston Director 1.00
Director
$0 $0 $0
Angelica Townshend Director 1.00
Director
$0 $0 $0
Edward Costa Director 1.00
Director
$0 $0 $0
Note: Compensation data is self-reported by the organization on their Form 990. "Reportable Comp" includes salary, bonuses, and other reportable compensation from the organization and related organizations. "Other Comp" includes benefits, deferred compensation, and non-taxable benefits.

Historical Data

Year Revenue Expenses Assets Net Income
2024 No data No data No data No data
2023 $51,271 $87,852 $47,901 $-36,581
2022 $67,138 $89,704 $75,171 $-22,566
2021 $213,958 $155,324 $93,224 $58,634
2020 $67,348 $149,492 $49,428 $-82,144
2019 $85,200 $154,269 $128,020 $-69,069
2018 $184,667 $131,560 $182,211 $53,107
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