Kentucky Hemophilia Foundation Inc

EIN: 610656750 501(c)(3)

Louisville, KY

Total Revenue
$258,336
Total Expenses
$243,722
Total Assets
$664,205
Net Assets
$611,651
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Financial Vulnerability Assessment (Tuckman-Chang)

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Financial Trends

Organization Details

Formation Year
1960
Legal Domicile
KY
Principal Officer
Ursela Kamala
Phone
5024563233
Tax Period
2023-07-01 to 2024-06-30

Kentucky Hemophilia Foundation Inc, founded in 1960, is a small nonprofit that reported $258K in total revenue in fiscal year 2023. Revenue decreased 9% compared to the prior year. Expenses of $244K left a modest 6% surplus.

Mission

The Kentucky Hemophilia Foundation assists individuals with hemophilia and similar bleeding disorders through education, advocacy, and support services and by promoting research for a cure.

Program Service Accomplishments

Program 1

Advocacy Day is an annual event at the state capitol to educate legislators about the needs and concerns of Kentucky's bleeding disorders community and emphasize the need for patient assistance...

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Advocacy Day is an annual event at the state capitol to educate legislators about the needs and concerns of Kentucky's bleeding disorders community and emphasize the need for patient assistance programs and the importance of access to health care.

Program 2
Expenses: $9,602

The annual Family Information and Support Day at the Louisville Zoo provides an opportunity for families affected by bleeding disorders to obtain cutting edge information about available factor...

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The annual Family Information and Support Day at the Louisville Zoo provides an opportunity for families affected by bleeding disorders to obtain cutting edge information about available factor products and ancillary services and have an opportunity to meet and get acquainted with other families for support.

Program 3
Expenses: $16,175

Summer camp is a five day educational and recreational program for children and teens with bleeding disorders. The philosophy of our summer camp program is to empower campers to be healthy and active...

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Summer camp is a five day educational and recreational program for children and teens with bleeding disorders. The philosophy of our summer camp program is to empower campers to be healthy and active youngsters "just like any other kids" while learning to manage their bleeding disorder or learn about their sibling's bleeding disorder. The mission of the summer camp is to improve knowledge, attitudes, and behavorial skills of children with hemophilia or a similar bleeding disorder as well as accompanying siblings who do not have a bleeding disorder for developing a healthy, risk-reduced lifestyle. The goals of the summer camp program are to: 1. combine life skills education with outdoor adventure and fun for the development of self-esteem, confidence, team-building, and leadership skills through age and gender appropriate activities; 2. promote physical emotional, and mental wellness; 3. advocate risk-reducing behavior for optimal child development and prevention of complications for each child with a bleeding disorder.

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Trantor Score

Financial Health Score (300–850) · Liquidity · Solvency · Sustainability · Efficiency

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Liquidity (40%) • Solvency (30%) • Sustainability (20%) • Efficiency (10%)

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Financial Overview (2023)

Revenue Breakdown

Contributions & Grants $249,689
Program Service Revenue $813
Investment Income $8,535
Other Revenue $-701
TOTAL REVENUE $258,336

Expense Breakdown

Grants Paid $0
Salaries & Benefits $100,342
Fundraising Expenses $14,772
Program Expenses $199,645
Other Expenses $143,380
TOTAL EXPENSES $243,722

Year-over-Year Comparison

2023 2022 Change
Revenue $258,336 $285,400 -0.1%
Expenses $243,722 $263,461 -0.1%
Net Income $14,614 $21,939 -0.3%
Key Indicators
Grants to Organizations Grants to Individuals Lobbying Political Activity Foreign Activities Donor Advised Fund Schedule B Required
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Governance

Voting Members
9
Independent Members
7
Employees
3
Volunteers
100

Governance Policies

Conflict of Interest Policy
Whistleblower Policy
Document Retention Policy

Special Practices & Reported Activities

Operated a School
Operated a Hospital
Provided First Class Travel
Reported Conflict of Interest
Reported Asset Diversion
Excess Benefit Transaction
Made Political Expenditures
Engaged in Lobbying
Operated Donor Advised Fund
Maintained Art Collections
Filed Form 720

Compensation of Officers, Directors & Key Employees

Total Officers
4
$81,134
Total Directors
9
$0
Key Employees
0
$0
Highest Compensated
0
reported
Name Title Hours/Week Role Reportable Comp Other Comp Total
Eric Marcum President of board 1.00
Officer Director
$0 $0 $0
Roeland A Hartmans Vice-president of board 1.00
Officer Director
$0 $0 $0
Travis Price Board member 1.00
Director
$0 $0 $0
Patrick Dunegan Board member 1.00
Director
$0 $0 $0
Jennifer Dunegan Board member 1.00
Director
$0 $0 $0
Aisha Irvin Secretary of board 1.00
Officer Director
$0 $0 $0
Mason Stout Board member 1.00
Director
$0 $0 $0
Kristin Taylor Board member 1.00
Director
$0 $0 $0
Whitney Meadows Board member 1.00
Director
$0 $0 $0
Ursela Kamala Executive Director 40.00
Officer
$78,754 $2,380 $81,134
Note: Compensation data is self-reported by the organization on their Form 990. "Reportable Comp" includes salary, bonuses, and other reportable compensation from the organization and related organizations. "Other Comp" includes benefits, deferred compensation, and non-taxable benefits.

Historical Data

Year Revenue Expenses Assets Net Income
2025 No data No data No data No data
2024 $258,336 $243,722 $664,205 $14,614
2023 $285,400 $263,461 $649,057 $21,939
2022 $243,732 $211,684 $647,242 $32,048
2021 $294,729 $210,700 $617,090 $84,029
2020 $252,425 $262,747 $544,589 $-10,322
2019 $320,666 $287,760 $528,325 $32,906
2018 $319,064 $274,390 $496,301 $44,674
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