THE DESMOID TUMOR RESEARCH FOUNDAT… - Form 990 Financial Data

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Financial Vulnerability Assessment (Tuckman-Chang)

4 risk indicators measuring financial stability and operational resilience

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Financial Trends

Organization Details

Formation Year

2005

Legal Domicile

Principal Officer

LYNNE HERNANDEZ

Phone

9142626595

Tax Period

2024-01-01 to 2024-12-31

THE DESMOID TUMOR RESEARCH FOUNDATION, founded in 2005, is a small nonprofit in the Medical Research sector that reported $793K in total revenue in fiscal year 2024. Revenue surged 138% from the prior year, signaling strong growth momentum. The organization ran a surplus of $202K, a strong 25% operating margin.

Mission

THE DESMOID TUMOR RESEARCH FOUNDATION (DTRF) EMPOWERS AND UNITES EVERYONE COMMITTED TO FINDING ANSWERS FOR THE DESMOID TUMOR COMMUNITY.

Program Service Accomplishments

Program 1

Expenses: $391,051

WE AGGRESSIVELY FUND DESMOID TUMOR RESEARCH, ACCELERATE THE DEVELOPMENT OF IMPROVED THERAPIES, DRIVE COLLABORATIONS AMONG CLINICIANS AND RESEARCHERS WORLDWIDE, AND SUPPORT PATIENTS AND DOCTORS...

WE AGGRESSIVELY FUND DESMOID TUMOR RESEARCH, ACCELERATE THE DEVELOPMENT OF IMPROVED THERAPIES, DRIVE COLLABORATIONS AMONG CLINICIANS AND RESEARCHERS WORLDWIDE, AND SUPPORT PATIENTS AND DOCTORS THROUGH EDUCATION. OUR GOAL IS TO FIND A CURE FOR EACH AND EVERY PATIENT DIAGNOSED WITH THIS RARE DISEASE.

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Trantor Score

Financial Health Score (300–850) · Liquidity · Solvency · Sustainability · Efficiency

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Liquidity (40%) • Solvency (30%) • Sustainability (20%) • Efficiency (10%)

Financial Overview (2024)

Revenue Breakdown

Contributions & Grants $787,299

Program Service Revenue $0

Investment Income $44,683

Other Revenue $-38,984

TOTAL REVENUE $792,998

Expense Breakdown

Grants Paid $50,628

Salaries & Benefits $345,967

Fundraising Expenses $132,186

Program Expenses $391,051

Other Expenses $194,339

TOTAL EXPENSES $590,934

Year-over-Year Comparison

	2024	2023	Change
Revenue	$792,998	$333,727	+1.4%
Expenses	$590,934	$707,649	-0.2%
Net Income	$202,064	$-373,922	-1.5%

Key Indicators

✓ Grants to Organizations ✗ Grants to Individuals ✗ Lobbying ✗ Political Activity ✗ Foreign Activities ✗ Donor Advised Fund ✓ Schedule B Required

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Financial Health Indicators

Comprehensive financial analysis: Altman Z-Score, liquidity, solvency, sustainability, efficiency, and growth metrics

Financial Distress Indicator

Liquidity & Cash Position

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Altman Z-Score • Liquidity Ratios • Solvency Analysis • Growth Indicators • Efficiency Metrics

Governance

Voting Members

Independent Members

Employees

Volunteers

Governance Policies

✓ Conflict of Interest Policy

✓ Whistleblower Policy

✓ Document Retention Policy

Special Practices & Reported Activities

✗ Operated a School

✗ Operated a Hospital

✗ Provided First Class Travel

⚠ Reported Conflict of Interest

✗ Reported Asset Diversion

✗ Excess Benefit Transaction

✗ Made Political Expenditures

✗ Engaged in Lobbying

✗ Operated Donor Advised Fund

✗ Maintained Art Collections

✗ Filed Form 720

Compensation of Officers, Directors & Key Employees

Total Officers

$101,875

Total Directors

$6,875

Key Employees

Highest Compensated

reported

Name	Title	Hours/Week	Role	Reportable Comp	Other Comp	Total
BARARA ANN SELLINGER	DIRECTOR	2.00	Director	$0	$0	$0
STEVE WHITING	DIRECTOR	2.00	Director	$0	$0	$0
NICOLE DEICHERT	DIRECTOR	2.00	Director	$0	$0	$0
MARIA CROCITTO	DIRECTOR	2.00	Director	$0	$0	$0
JERROLD MARCH	DIRECTOR	2.00	Director	$0	$0	$0
RACHEL SITTA	DIRECTOR	2.00	Director	$0	$0	$0
MARLENE PORTNOY	CHAIR	2.00	Officer Director	$0	$0	$0
JEANNE WHITING	PRESIDENT/FORMER EXECUTIVE DIRECT	20.00	Officer Director	$6,875	$0	$6,875
TOM ALLEN	DIRECTOR	2.00	Director	$0	$0	$0
DJ CONNER	TREASURER	4.00	Director	$0	$0	$0
YATING WONG	DIRECTOR	2.00	Officer Director	$0	$0	$0
LYNNE HERNANDEZ	EXECUTIVE DIRECTOR	40.00	Officer	$95,000	$0	$95,000

Note: Compensation data is self-reported by the organization on their Form 990. "Reportable Comp" includes salary, bonuses, and other reportable compensation from the organization and related organizations. "Other Comp" includes benefits, deferred compensation, and non-taxable benefits.

Historical Data

Year	Revenue	Expenses	Assets	Net Income
2024	$792,998	$590,934	$1,277,054	$202,064
2023	$333,727	$707,649	$1,034,489	$-373,922
2022	$993,749	$712,927	$1,439,427	$280,822
2021	$710,377	$705,016	$1,128,637	$5,361
2020	$548,284	$471,645	$1,161,128	$76,639
2019	$718,276	$589,894	$1,054,967	$128,382
2018	$714,396	$616,174	$921,341	$98,222
2017	$558,443	$683,155	$824,690	$-124,712

THE DESMOID TUMOR RESEARCH FOUNDATION