CREUTZFELDT-JAKOB DISEASE FOUNDATION INC

EIN: 650404623 501(c)(3)

AKRON, OH

Total Revenue
$2,943,480
Total Expenses
$1,541,598
Total Assets
$8,137,536
Net Assets
$8,009,579
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Financial Vulnerability Assessment (Tuckman-Chang)

4 risk indicators measuring financial stability and operational resilience

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Financial Trends

Organization Details

Formation Year
1993
Legal Domicile
FL
Principal Officer
DEBORAH YOBS
Phone
8006591991
Tax Period
2023-01-01 to 2023-12-31

CREUTZFELDT-JAKOB DISEASE FOUNDATION INC, founded in 1993, is a community nonprofit that reported $2.9M in total revenue in fiscal year 2023. The organization ran a surplus of $1.4M, a strong 48% operating margin.

Mission

TO SUPPORT FAMILIES AFFECTED BY PRION DISEASE, RAISE AWARENESS, AND SUPPORT MEDICAL EDUCATION AND RESEARCH.

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Trantor Score

Financial Health Score (300–850) · Liquidity · Solvency · Sustainability · Efficiency

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Liquidity (40%) • Solvency (30%) • Sustainability (20%) • Efficiency (10%)

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Financial Overview (2023)

Revenue Breakdown

Contributions & Grants $2,770,443
Program Service Revenue $41,100
Investment Income $84,302
Other Revenue $47,635
TOTAL REVENUE $2,943,480

Expense Breakdown

Grants Paid $718,205
Salaries & Benefits $396,748
Fundraising Expenses $84,293
Program Expenses $1,334,035
Other Expenses $426,645
TOTAL EXPENSES $1,541,598

Year-over-Year Comparison

2023 2022 Change
Revenue $2,943,480 $2,861,917 +0.0%
Expenses $1,541,598 $1,274,442 +0.2%
Net Income $1,401,882 $1,587,475 -0.1%
Key Indicators
Grants to Organizations Grants to Individuals Lobbying Political Activity Foreign Activities Donor Advised Fund Schedule B Required
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Financial Health Indicators

Comprehensive financial analysis: Altman Z-Score, liquidity, solvency, sustainability, efficiency, and growth metrics

Financial Distress Indicator

Liquidity & Cash Position

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Governance

Voting Members
18
Independent Members
18
Employees
6
Volunteers
350

Governance Policies

Conflict of Interest Policy
Whistleblower Policy
Document Retention Policy

Special Practices & Reported Activities

Operated a School
Operated a Hospital
Provided First Class Travel
Reported Conflict of Interest
Reported Asset Diversion
Excess Benefit Transaction
Made Political Expenditures
Engaged in Lobbying
Operated Donor Advised Fund
Maintained Art Collections
Filed Form 720

Compensation of Officers, Directors & Key Employees

Total Officers
5
$111,457
Total Directors
22
$0
Key Employees
0
$0
Highest Compensated
0
reported
Name Title Hours/Week Role Reportable Comp Other Comp Total
DEBORAH YOBS PRESIDENT/EX 40.00
Officer
$111,457 $0 $111,457
BRIAN APPLEBY BOARD MEMBER 2.00
Director
$0 $0 $0
TREVOR BAIERL BOARD MEMBER 2.00
Director
$0 $0 $0
PAMELA FEAR BOARD MEMBER 2.00
Director
$0 $0 $0
LAVONNE HALL BOARD MEMBER 2.00
Director
$0 $0 $0
CLARENCE HUNTER BOARD MEMBER 2.00
Director
$0 $0 $0
AMANDA BAXLEY KALINSKY BOARD MEMBER 2.00
Director
$0 $0 $0
JANINE KOCK BOARD MEMBER 2.00
Director
$0 $0 $0
JAY LEVY BOARD MEMBER 2.00
Director
$0 $0 $0
MAYRA LICHTER CHAIRMAN, RE 2.00
Officer Director
$0 $0 $0
PATRICIA MCGILL TREASURER 2.00
Officer Director
$0 $0 $0
KRISTEN MCGINNIS BOARD MEMBER 2.00
Director
$0 $0 $0
BREANDA MEANEY BOARD MEMBER 2.00
Director
$0 $0 $0
DAVE MORRIS BOARD MEMBER 2.00
Director
$0 $0 $0
FRANK MYERS BOARD MEMBER 2.00
Director
$0 $0 $0
MOLLY NOCERINO BOARD MEMBER 2.00
Director
$0 $0 $0
JOE POHL BOARD MEMBER 2.00
Director
$0 $0 $0
TIM SCHWISTER SECRETARY 2.00
Officer Director
$0 $0 $0
DEANA SIMPSON BOARD MEMBER 2.00
Director
$0 $0 $0
MARIA THACKER-GOETHE BOARD MEMBER 2.00
Director
$0 $0 $0
MICHAEL VITANZA BOARD MEMBER 2.00
Director
$0 $0 $0
JEFFREY YAFFA BOARD MEMBER 2.00
Director
$0 $0 $0
STUART YAFFA VICE CHAIR 2.00
Officer Director
$0 $0 $0
Note: Compensation data is self-reported by the organization on their Form 990. "Reportable Comp" includes salary, bonuses, and other reportable compensation from the organization and related organizations. "Other Comp" includes benefits, deferred compensation, and non-taxable benefits.

Historical Data

Year Revenue Expenses Assets Net Income
2024 No data No data No data No data
2023 $2,943,480 $1,541,598 $8,137,536 $1,401,882
2022 $2,861,917 $1,274,442 $6,412,924 $1,587,475
2021 $2,551,633 $1,152,582 $5,032,702 $1,399,051
2020 $1,767,307 $1,021,636 $3,622,436 $745,671
2019 $1,669,970 $963,069 $2,749,540 $706,901
2018 $1,598,240 $874,748 $2,020,582 $723,492
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