Scleroderma Research Foundation

EIN: 680087234 501(c)(3) Medical Research

San Francisco, CA

Total Revenue
$13,131,089
Total Expenses
$10,325,525
Total Assets
$42,239,970
Net Assets
$16,888,561
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Organization Details

Formation Year
1987
Legal Domicile
CA
Principal Officer
Joanne Gold
Phone
4158349444
Tax Period
2025-01-01 to 2025-12-31

Scleroderma Research Foundation, founded in 1987, is a mid-sized nonprofit in the Medical Research sector that reported $13.1M in total revenue in fiscal year 2025. The organization ran a surplus of $2.8M, a strong 21% operating margin.

Mission

The mission of the Scleroderma Research Foundation is to fund and facilitate the most promising, highest quality research aimed at new treatments and, ultimately, a cure for scleroderma.

Program Service Accomplishments

Program 1
Expenses: $4,446,116

CONQUEST is a global, perpetual, clinical trial platform developed by the SRF in coordination with partner biopharmaceutical companies to accelerate the clinical development of agents for...

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CONQUEST is a global, perpetual, clinical trial platform developed by the SRF in coordination with partner biopharmaceutical companies to accelerate the clinical development of agents for scleroderma. CONQUEST is designed to rapidly advance promising treatments for scleroderma and to identify those agents that should progress from phase 2b to phase 3 clinical trials. CONQUEST will make an enduring contribution to the scleroderma community by creating an ecosystem designed to enable rapid and efficient development of novel drugs for scleroderma patients.

Program 2
Expenses: $4,314,557 Revenue: $5,907,254

The mission of the Scleroderma Research Foundation (SRF) is to find, fund, and facilitate the most promising, highest-quality research to cure scleroderma. We recruit the best and the brightest...

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The mission of the Scleroderma Research Foundation (SRF) is to find, fund, and facilitate the most promising, highest-quality research to cure scleroderma. We recruit the best and the brightest researchers to understand the causes, discover treatments, and ultimately eradicate this disease . At the SRF, research is at the center of all we do. Our Research Program is governed by the Board of Directors and supported by a volunteer Scientific Advisory Board comprised of some of the world's most highly regarded scientists who are leaders in their field of expertise. The Board of Directors and Scientific Advisors meet annually with researchers and clinicians from laboratories across the nation to select and fund the most promising scleroderma studies aimed at developing improved therapies to help patients live longer, fuller lives - and, ultimately, to find a cure for scleroderma.

Program 3
Expenses: $639,412

SRF Education & Awareness Program: Many patients hear the word scleroderma for the first time when they are diagnosed. We strive to raise awareness and provide educational resources because lack of...

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SRF Education & Awareness Program: Many patients hear the word scleroderma for the first time when they are diagnosed. We strive to raise awareness and provide educational resources because lack of awareness about scleroderma often causes delays in treatment or misdiagnosis. As an innovator in scleroderma research, the SRF is uniquely qualified to provide those living with this disease, the medical community, and the general public with the most up-to-date, trusted and relevant news and information about complications, treatments, and related research through our website, webinars, annual patient forum, and monthly eNewsletter. And we deliver stories of impact that connect and inspire patients, as well as address issues related to diversity, equity, and inclusion that patients may encounter as they navigate diagnosis, treatment, and living with the disease.

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Trantor Score

Financial Health Score (300–850) · Liquidity · Solvency · Sustainability · Efficiency

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Liquidity (40%) • Solvency (30%) • Sustainability (20%) • Efficiency (10%)

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Financial Overview (2025)

Revenue Breakdown

Contributions & Grants $5,730,652
Program Service Revenue $5,907,254
Investment Income $1,584,991
Other Revenue $-91,808
TOTAL REVENUE $13,131,089

Expense Breakdown

Grants Paid $3,733,185
Salaries & Benefits $1,698,512
Fundraising Expenses $575,396
Program Expenses $9,400,085
Other Expenses $4,893,828
TOTAL EXPENSES $10,325,525

Year-over-Year Comparison

2025 2024 Change
Revenue $13,131,089 $12,173,161 +0.1%
Expenses $10,325,525 $9,622,521 +0.1%
Net Income $2,805,564 $2,550,640 +0.1%
Key Indicators
Grants to Organizations Grants to Individuals Lobbying Political Activity Foreign Activities Donor Advised Fund Schedule B Required
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Governance

Voting Members
12
Independent Members
12
Employees
10
Volunteers
255

Governance Policies

Conflict of Interest Policy
Whistleblower Policy
Document Retention Policy

Special Practices & Reported Activities

Operated a School
Operated a Hospital
Provided First Class Travel
Reported Conflict of Interest
Reported Asset Diversion
Excess Benefit Transaction
Made Political Expenditures
Engaged in Lobbying
Operated Donor Advised Fund
Maintained Art Collections
Filed Form 720

Compensation of Officers, Directors & Key Employees

Total Officers
4
$238,267
Total Directors
12
$0
Key Employees
0
$0
Highest Compensated
0
reported
Name Title Hours/Week Role Reportable Comp Other Comp Total
Gregory Gordon Chief Medical Officer 40.00
$526,440 $935 $527,375
Joanne Gold Executive Dir. 40.00
Officer
$220,205 $18,062 $238,267
Gloria Blecha VP Communications 40.00
$179,263 $15,879 $195,142
Hannah Young Dir. Communication 40.00
$130,689 $7,851 $138,540
Neha Pamboo Sr. Acct. Manager 40.00
$118,965 $10,521 $129,486
Anoushka Donnelley Dir. Philanthropy 40.00
$112,854 $7,656 $120,510
Luke Evnin PhD Chairman 40.00
Officer Director
$0 $0 $0
Susan Feniger Secretary 10.00
Officer Director
$0 $0 $0
Deann Wright Treasurer 10.00
Officer Director
$0 $0 $0
Omar Baker MD Board Member 2.00
Director
$0 $0 $0
Sharon Dobie MD Board Member 2.00
Director
$0 $0 $0
Eric Kau MD Board Member 2.00
Director
$0 $0 $0
David Knoller Board Member 1.00
Director
$0 $0 $0
Violetta Merin Board Member 1.00
Director
$0 $0 $0
Mark Scher Board Member 1.00
Director
$0 $0 $0
Regina Hall Board Member 1.00
Director
$0 $0 $0
Jeff Seaman Board Member 2.00
Director
$0 $0 $0
Dan Schimberg Board Member 2.00
Director
$0 $0 $0
Note: Compensation data is self-reported by the organization on their Form 990. "Reportable Comp" includes salary, bonuses, and other reportable compensation from the organization and related organizations. "Other Comp" includes benefits, deferred compensation, and non-taxable benefits.

Historical Data

Year Revenue Expenses Assets Net Income
2025 $13,131,089 $10,325,525 $42,239,970 $2,805,564
2024 $12,173,161 $9,622,521 $32,999,784 $2,550,640
2023 $8,418,038 $6,487,599 $18,654,748 $1,930,439
2022 $5,892,738 $4,658,602 $11,143,637 $1,234,136
2021 $3,768,969 $3,687,303 $9,819,469 $81,666
2020 $3,931,140 $2,957,771 $9,592,172 $973,369
2019 $5,168,122 $3,364,239 $7,445,548 $1,803,883
2018 $4,733,081 $3,005,455 $5,318,800 $1,727,626
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