BLEEDING DISORDERS COUNCIL OF CALIFORNIA formerly HEMOPHILIA COUNCIL OF CALIF

EIN: 680182998 501(c)(3) Diseases & Disorders

SACRAMENTO, CA

Total Revenue
$366,609
Total Expenses
$364,133
Total Assets
$351,117
Net Assets
$273,089
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Financial Trends

Organization Details

Formation Year
1989
Legal Domicile
CA
Principal Officer
LAUREN HAY
Phone
9165727771
Tax Period
2024-01-01 to 2024-12-31

BLEEDING DISORDERS COUNCIL OF CALIFORNIA formerly HEMOPHILIA COUNCIL OF CALIF, founded in 1989, is a small nonprofit in the Diseases & Disorders sector that reported $367K in total revenue in fiscal year 2024. Revenue grew 10% year-over-year, indicating healthy expansion.

Mission

THE MISSION OF HCC IS TO IMPROVE ACCESS TO CARE AND TREATMENT OPTIONS IN ORDER TO ADVANCE THE QUALITY OF LIFE FOR PEOPLE WITH BLEEDING DISORDERS THROUGH ADVOCACY, EDUCATION, AND OUTREACH IN THE COLLABORATION WITH ITS FOUNDING MEMBER ORGANIZATIONS.

Program Service Accomplishments

Program 1
Expenses: $153,462

EDUCATION - THIS INCLUDES POLICY AND ADVOCACY WEBINARS, CHAPTER PRESENTATIONS, ANDFUTURE LEADERS PROGRAMS TO EDUCATE OUR LEGISLATORS AND THE PUBLIC ON THE IMPORTANCE OF HEMOPHILIA CARE BOTH FOR THE...

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EDUCATION - THIS INCLUDES POLICY AND ADVOCACY WEBINARS, CHAPTER PRESENTATIONS, ANDFUTURE LEADERS PROGRAMS TO EDUCATE OUR LEGISLATORS AND THE PUBLIC ON THE IMPORTANCE OF HEMOPHILIA CARE BOTH FOR THE BLEEDING DISORDERS COMMUNITY AND THE GREATER COMMUNITY. HCC SUPPORTS AND ENCOURAGES ALL PATIENTS WITH BLEEDING DISORDERS TO SEEK THE EXPERT CARE OF TRAINED PROFESSIONALS AT THE HEMOPHILIA TREATMENT CENTERS THROUGHOUT THE STATE. HCC ALSO SUPPORTS CHOICE OF TREATMENT AND PROVIDERS, AND EDUCATES THE HEMOPHILIA COMMUNITY ON THE RANGE OF OPTIONS FOR TREATMENT.

Program 2
Expenses: $91,790

ADVOCACY & POLICY - THE HCC ACTIVELY SEEKS THE SUPPORT OF THE CALIFORNIA LEGISLATURE FOR MEASURES THAT WILL IMPROVE THE QUALITY OF LIFE OF MEMBERS IN OUR COMMUNITY. OUR EFFORTS FOCUS ON SUPPORTING...

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ADVOCACY & POLICY - THE HCC ACTIVELY SEEKS THE SUPPORT OF THE CALIFORNIA LEGISLATURE FOR MEASURES THAT WILL IMPROVE THE QUALITY OF LIFE OF MEMBERS IN OUR COMMUNITY. OUR EFFORTS FOCUS ON SUPPORTING THE CURRENT PROGRAMS THAT EXIST, AS WELL AS EVALUATING CHANGES TO THE CURRENT HEALTH SYSTEM THAT MAY AFFECT ACCESS AND QUALITY OF TREATMENT.IN ADDITION TO SERVING THE HCC BOARD, THE VOLUNTEER BOARD OF DIRECTORS ALSO SERVE THE HEMOPHILIA COMMUNITY IN VARIOUS CAPACITIES. SOME OF THESE INCLUDE EDUCATION, ADVOCACY, PHARMACEUTICAL INSIGHT, RELATIONAL DEVELOPMENT, AND FUTURE BUILDING.

Program 3
Expenses: $29,890

HEALTHCARE ACCESS FORUM - THIS IS A QUARTERLY BLEEDING DISORDERS INDUSTRY FORUM THATPROMOTES COMMUNICATION AMONG CONSUMERS, INDUSTRY, HEALTHCARE PROVIDERS, SPECIALTYPHARMACIES AND THE STATE.

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Liquidity (40%) • Solvency (30%) • Sustainability (20%) • Efficiency (10%)

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Financial Overview (2024)

Revenue Breakdown

Contributions & Grants $349,347
Program Service Revenue $0
Investment Income $17,262
Other Revenue $0
TOTAL REVENUE $366,609

Expense Breakdown

Grants Paid $0
Salaries & Benefits $172,340
Fundraising Expenses $6,548
Program Expenses $309,869
Other Expenses $191,793
TOTAL EXPENSES $364,133

Year-over-Year Comparison

2024 2023 Change
Revenue $366,609 $333,152 +0.1%
Expenses $364,133 $368,610 0.0%
Net Income $2,476 $-35,458 -1.1%
Key Indicators
Grants to Organizations Grants to Individuals Lobbying Political Activity Foreign Activities Donor Advised Fund Schedule B Required
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Governance

Voting Members
13
Independent Members
13
Employees
2
Volunteers
30

Governance Policies

Conflict of Interest Policy
Whistleblower Policy
Document Retention Policy

Special Practices & Reported Activities

Operated a School
Operated a Hospital
Provided First Class Travel
Reported Conflict of Interest
Reported Asset Diversion
Excess Benefit Transaction
Made Political Expenditures
Engaged in Lobbying
Operated Donor Advised Fund
Maintained Art Collections
Filed Form 720

Compensation of Officers, Directors & Key Employees

Total Officers
4
$93,450
Total Directors
13
$0
Key Employees
0
$0
Highest Compensated
0
reported
Name Title Hours/Week Role Reportable Comp Other Comp Total
LYNNE KINST Executive Dir. 40.00
Officer
$93,450 $0 $93,450
STEPHANIE DANSKER BOARD MEMBER 5.00
Officer Director
$0 $0 $0
CINDY GUZMAN BOARD MEMBER 2.00
Director
$0 $0 $0
RYAN FADEN BOARD MEMBER 5.00
Director
$0 $0 $0
AMAL ESTRADA BOARD MEMBER 2.00
Director
$0 $0 $0
MIA CASTANEDA-LAYMAN BOARD MEMBER 2.00
Director
$0 $0 $0
MOSI WILLIAMS BOARD MEMBER 2.00
Director
$0 $0 $0
ELAINE MACASIRAY BOARD MEMBER 2.00
Director
$0 $0 $0
GREG HUNT BOARD MEMBER 2.00
Director
$0 $0 $0
BRENT MASCORRO BOARD MEMBER 2.00
Director
$0 $0 $0
SHELLYE HOROWITZ BOARD MEMBER 2.00
Director
$0 $0 $0
LAUREN HAY President 5.00
Officer Director
$0 $0 $0
RIGO MANZO Vice President 2.00
Officer Director
$0 $0 $0
CARSON KNIGHT BOARD MEMBER 2.00
Director
$0 $0 $0
Note: Compensation data is self-reported by the organization on their Form 990. "Reportable Comp" includes salary, bonuses, and other reportable compensation from the organization and related organizations. "Other Comp" includes benefits, deferred compensation, and non-taxable benefits.

Historical Data

Year Revenue Expenses Assets Net Income
2024 $366,609 $364,133 $351,117 $2,476
2023 $333,152 $368,610 $378,124 $-35,458
2022 $256,354 $348,669 $336,465 $-92,315
2021 $254,433 $243,516 $449,880 $10,917
2019 $270,213 $229,631 $397,961 $40,582
2018 $237,466 $220,150 $382,020 $17,316
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