Texas Neurofibromatosis Foundation

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Financial Vulnerability Assessment (Tuckman-Chang)

4 risk indicators measuring financial stability and operational resilience

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Financial Trends

Organization Details

Formation Year

1980

Legal Domicile

Principal Officer

Laura Lyon

Phone

9727396086

Tax Period

2024-01-01 to 2024-12-31

Texas Neurofibromatosis Foundation, founded in 1980, is a small nonprofit in the Diseases & Disorders sector that reported $616K in total revenue in fiscal year 2024.

Mission

To fund neurofibromatosis research and education and to provide for support groups for those facing the illness.

Program Service Accomplishments

Program 1

Expenses: $32,481 Revenue: $0

The organization funds and supports neurofibromatosis research projects and participates in a Neurofibromatosis National Affairs Coalition to increase public awareness and insure and increase funding...

Program 2

Expenses: $150,346 Revenue: $0

The organization provides neurofibromatosis educational materials/information to patients, physicians, teachers and counselors; physician and clinical referrals; and statewide neurofibromatosis...

The organization provides neurofibromatosis educational materials/information to patients, physicians, teachers and counselors; physician and clinical referrals; and statewide neurofibromatosis clinics. It conducts a symposium featuring nationally recognized researchers, a yearly family camp, and family support groups. In 2016 the the family camp served 136 patients and family members, 6 support groups serving 95 individuals, total served though events and clinics were 768 patients.

Program 3

Expenses: $4,680 Revenue: $0

The organization increases neurofibromatosis public awareness by publishing newsletters, public speaking engagements, exhibiting at state educational and medical meetings, and using billboards.

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Trantor Score

Financial Health Score (300–850) · Liquidity · Solvency · Sustainability · Efficiency

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Liquidity (40%) • Solvency (30%) • Sustainability (20%) • Efficiency (10%)

Financial Overview (2024)

Revenue Breakdown

Contributions & Grants $588,110

Program Service Revenue $0

Investment Income $23,478

Other Revenue $4,650

TOTAL REVENUE $616,238

Expense Breakdown

Grants Paid $12,500

Salaries & Benefits $200,741

Fundraising Expenses $354,134

Program Expenses $187,507

Other Expenses $410,596

TOTAL EXPENSES $623,837

Year-over-Year Comparison

	2024	2023	Change
Revenue	$616,238	$646,731	0.0%
Expenses	$623,837	$692,762	-0.1%
Net Income	$-7,599	$-46,031	-0.8%

Key Indicators

✓ Grants to Organizations ✓ Grants to Individuals ✓ Lobbying ✗ Political Activity ✗ Foreign Activities ✗ Donor Advised Fund ✓ Schedule B Required

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Financial Health Indicators

Comprehensive financial analysis: Altman Z-Score, liquidity, solvency, sustainability, efficiency, and growth metrics

Financial Distress Indicator

Liquidity & Cash Position

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Altman Z-Score • Liquidity Ratios • Solvency Analysis • Growth Indicators • Efficiency Metrics

Governance

Voting Members

Independent Members

Employees

Volunteers

100

Governance Policies

✗ Conflict of Interest Policy

✗ Whistleblower Policy

✗ Document Retention Policy

Special Practices & Reported Activities

✗ Operated a School

✗ Operated a Hospital

✗ Provided First Class Travel

✗ Reported Conflict of Interest

✗ Reported Asset Diversion

✗ Excess Benefit Transaction

✗ Made Political Expenditures

✓ Engaged in Lobbying

✗ Operated Donor Advised Fund

✗ Maintained Art Collections

✗ Filed Form 720

Compensation of Officers, Directors & Key Employees

Total Officers

Total Directors

Key Employees

$84,000

Highest Compensated

reported

Name	Title	Hours/Week	Role	Reportable Comp	Other Comp	Total
Laura G Lyon	Director/President	5.00	Officer Director	$0	$0	$0
Liana Olinger	Director/ VP	5.00	Officer Director	$0	$0	$0
Tricia Madden	Director/Secretary	5.00	Officer Director	$0	$0	$0
Janie Perleman	Director	1.00	Director	$0	$0	$0
Tammy Benson O'Brien	Director	1.00	Director	$0	$0	$0
Jane Hoskins	Director	1.00	Director	$0	$0	$0
Scott Remphrey	Director	1.00	Director	$0	$0	$0
Jon Keith	Director	1.00	Director	$0	$0	$0
John Slopis MD	Director	1.00	Director	$0	$0	$0
Jeff Davidson	Director	1.00	Director	$0	$0	$0
Katie Lange	Treasurer	1.00	Officer Director	$0	$0	$0
Edel Cuadra	Director	1.00	Director	$0	$0	$0
Kathryn Loo	Director	1.00	Director	$0	$0	$0
Krista Comfort	Director	1.00	Director	$0	$0	$0
Jane Perelman	Director	1.00	Director	$0	$0	$0
Cindy Hahn	Executive Director	40.00	Key Emp Highest	$84,000	$0	$84,000

Note: Compensation data is self-reported by the organization on their Form 990. "Reportable Comp" includes salary, bonuses, and other reportable compensation from the organization and related organizations. "Other Comp" includes benefits, deferred compensation, and non-taxable benefits.

Historical Data

Year	Revenue	Expenses	Assets	Net Income
2024	$616,238	$623,837	$505,675	$-7,599
2023	$646,731	$692,762	$532,847	$-46,031
2022	$564,208	$576,691	$590,826	$-12,483
2021	$347,948	$330,225	$579,783	$17,723
2020	$263,365	$351,222	$618,464	$-87,857
2020	$263,365	$351,222	$618,464	$-87,857