THE STURGE-WEBER FOUNDATION

EIN: 742485813 501(c)(3)

AURORA, CO

Total Revenue
$392,112
Total Expenses
$337,137
Total Assets
$418,065
Net Assets
$351,701
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Financial Vulnerability Assessment (Tuckman-Chang)

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Financial Trends

Organization Details

Formation Year
1987
Legal Domicile
CO
Principal Officer
KAREN L BALL
Tax Period
2024-07-01 to 2025-06-30

THE STURGE-WEBER FOUNDATION, founded in 1987, is a small nonprofit that reported $392K in total revenue in fiscal year 2024. Revenue grew 9% year-over-year, indicating healthy expansion. Expenses of $337K left a modest 14% surplus.

Mission

TO PROVIDE ASSISTANCE TO FAMILIES AFFECTED BY STURGE-WEBER SYNDROME AND PORT WINE BIRTHMARK CONDITIONS.

Program Service Accomplishments

Program 1
Expenses: $245,301

THE FOUNDATION DRIVES PATIENT ENGAGEMENT THROUGH DIVERSE AND ROBUST PROJECTS, CONFERENCES AND ONLINE SUPPORT. THE WEBSITE IS A RICH RESOURCE OF LEARNING AND UPLIFTING STORIES OF INSPIRATIONAL HOPE TO...

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THE FOUNDATION DRIVES PATIENT ENGAGEMENT THROUGH DIVERSE AND ROBUST PROJECTS, CONFERENCES AND ONLINE SUPPORT. THE WEBSITE IS A RICH RESOURCE OF LEARNING AND UPLIFTING STORIES OF INSPIRATIONAL HOPE TO COPE WITH THE DIAGNOSIS. THE FOUNDATION SPONSORS AN INTERNATIONAL CONFERENCE EVERY TWO YEARS MOVING THE LOCATION TO ALLOW FAIR ACCESS TO ALL MINIMIZING FINANCIAL IMPACT TO ATTEND. THE FOUNDATION ALSO SPONSORS REGIONAL EDUCATIONAL CONFERENCES TO BUILD COMMUNITY IN PARTNERSHIP WITH VARIOUS CLINICAL CARE NETWORK (CCN) INSTITUTIONS. THE CCN'S FACILITATE CLINICAL STUDIES AND TRIALS AND ANNUALLY ESTABLISH GOALS WHICH DRIVE PATIENT CARE AND IMPROVE TREATMENT. THE FOUNDATION RECENTLY LAUNCHED A TASK FORCE INITIATIVE TO BUILD A RICH VOLUNTEER NETWORK OF KNOWLEDGE AND SUPPORT AROUND KEY AREAS IMPACTING DAILY LIVING AND CARE. THE HOUSTON HOME OFFICE STAFF AND REMOTE OFFICE STAFF SUPPORT ALL THE ABOVE PROGRAMS AND PROJECTS AND REGULARLY MEET TO ENSURE STRATEGIC GOALS ARE MET.

Program 2

THE FOUNDATION'S RESEARCH PROGRAM IS LEAD BY A GLOBAL TEAM OF RESEARCHERS THAT COMPRISE THE STURGE-WEBER FOUNDATION INTERNATIONAL RESEARCH NETWORK TO FACILITATE INNOVATIVE AND COLLABORATIVE RESEARCH...

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THE FOUNDATION'S RESEARCH PROGRAM IS LEAD BY A GLOBAL TEAM OF RESEARCHERS THAT COMPRISE THE STURGE-WEBER FOUNDATION INTERNATIONAL RESEARCH NETWORK TO FACILITATE INNOVATIVE AND COLLABORATIVE RESEARCH INVESTIGATIONS. THE FOUNDATION ATTENDS NATIONAL CONFERENCES FOCUSED ON RESEARCH IN THE EYE, BRAIN, SKIN AND GENETIC EXPRESSIONS OF THE SYNDROME TO GENERATE AWARENESS AND ENGAGE YOUNG INVESTIGATORS TO JOIN THEIR CAUSE.

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Trantor Score

Financial Health Score (300–850) · Liquidity · Solvency · Sustainability · Efficiency

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Liquidity (40%) • Solvency (30%) • Sustainability (20%) • Efficiency (10%)

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Financial Overview (2024)

Revenue Breakdown

Contributions & Grants $269,113
Program Service Revenue $0
Investment Income $22,480
Other Revenue $100,519
TOTAL REVENUE $392,112

Expense Breakdown

Grants Paid $0
Salaries & Benefits $184,572
Fundraising Expenses $6,956
Program Expenses $245,301
Other Expenses $152,565
TOTAL EXPENSES $337,137

Year-over-Year Comparison

2024 2023 Change
Revenue $392,112 $360,911 +0.1%
Expenses $337,137 $413,533 -0.2%
Net Income $54,975 $-52,622 -2.0%
Key Indicators
Grants to Organizations Grants to Individuals Lobbying Political Activity Foreign Activities Donor Advised Fund Schedule B Required
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Financial Health Indicators

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Liquidity & Cash Position

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Governance

Voting Members
8
Independent Members
8
Employees
3
Volunteers
25

Governance Policies

Conflict of Interest Policy
Whistleblower Policy
Document Retention Policy

Special Practices & Reported Activities

Operated a School
Operated a Hospital
Provided First Class Travel
Reported Conflict of Interest
Reported Asset Diversion
Excess Benefit Transaction
Made Political Expenditures
Engaged in Lobbying
Operated Donor Advised Fund
Maintained Art Collections
Filed Form 720

Compensation of Officers, Directors & Key Employees

Total Officers
4
$90,014
Total Directors
9
$90,014
Key Employees
0
$0
Highest Compensated
0
reported
Name Title Hours/Week Role Reportable Comp Other Comp Total
KAREN L BALL PRESIDENT/CE 50.00
Officer Director
$90,014 $0 $90,014
CURT STANTON CHAIRMAN 8.00
Officer Director
$0 $0 $0
MOLLY SPEER VICE CHAIR/S 8.00
Officer Director
$0 $0 $0
DAN SCHMIDT TREASURER 8.00
Officer Director
$0 $0 $0
WITNEY ARCH DIRECTOR 8.00
Director
$0 $0 $0
SHAD ELLIERS DIRECTOR 8.00
Director
$0 $0 $0
ROBERT ZARKO DIRECTOR 8.00
Director
$0 $0 $0
JULIA TERRELL DIRECTOR 8.00
Director
$0 $0 $0
DON WILLARD DIRECTOR 8.00
Director
$0 $0 $0
Note: Compensation data is self-reported by the organization on their Form 990. "Reportable Comp" includes salary, bonuses, and other reportable compensation from the organization and related organizations. "Other Comp" includes benefits, deferred compensation, and non-taxable benefits.

Historical Data

Year Revenue Expenses Assets Net Income
2025 $392,112 $337,137 $418,065 $54,975
2024 $360,911 $413,533 $411,067 $-52,622
2023 $427,359 $440,475 $420,811 $-13,116
2022 $376,017 $502,738 $522,921 $-126,721
2021 $298,520 $475,412 $587,793 $-176,892
2020 $640,019 $575,910 $736,726 $64,109
2019 $674,952 $653,414 $743,258 $21,538
2018 $652,367 $582,337 $607,168 $70,030
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