HEREDITARY NEUROLOGICAL DISEASE CE… - Form 990 Financial Data

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Financial Vulnerability Assessment (Tuckman-Chang)

4 risk indicators measuring financial stability and operational resilience

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Financial Trends

Organization Details

Formation Year

1997

Legal Domicile

Phone

3166093020

Tax Period

2025-01-01 to 2025-12-31

HEREDITARY NEUROLOGICAL DISEASE CENTER, founded in 1997, is a small nonprofit in the Diseases & Disorders sector that reported $746K in total revenue in fiscal year 2025. Revenue fell 23% from the prior year — a significant decline worth monitoring. Expenses of $850K exceeded revenue, resulting in a 14% operating deficit.

Mission

PROVIDE DIAGNOSTIC CARE AND DISEASE MANAGEMENT TO PATIENTS AND THEIR FAMILIES DEALING WITH HUNTINGTONS DISEASE - NO COST TO PATIENT OR FAMILY

Program Service Accomplishments

Program 1

Expenses: $307,638

CRISIS INTERVENTION, EDUCATIONAL SERVICES, NEWSLETTER, SUPPORT GROUPS, PATIENT ADCOCACY (50%)

Program 2

Expenses: $184,582

DIAGNOSTIC CARE AND DISEASE MANAGEMENT (30%)

Program 3

Expenses: $123,055

GENETIC TESTING SERVICE, DNA BANKING SERVICES, BRAIN DONATION SERVICES (20%)

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Trantor Score

Financial Health Score (300–850) · Liquidity · Solvency · Sustainability · Efficiency

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Liquidity (40%) • Solvency (30%) • Sustainability (20%) • Efficiency (10%)

Financial Overview (2025)

Revenue Breakdown

Contributions & Grants $695,223

Program Service Revenue $0

Investment Income $50,673

Other Revenue $0

TOTAL REVENUE $745,896

Expense Breakdown

Grants Paid $0

Salaries & Benefits $431,840

Fundraising Expenses $6,313

Program Expenses $615,275

Other Expenses $417,763

TOTAL EXPENSES $849,603

Year-over-Year Comparison

	2025	2024	Change
Revenue	$745,896	$969,745	-0.2%
Expenses	$849,603	$853,511	0.0%
Net Income	$-103,707	$116,234	-1.9%

Key Indicators

✗ Grants to Organizations ✗ Grants to Individuals ✗ Lobbying ✗ Political Activity ✗ Foreign Activities ✓ Donor Advised Fund ✗ Schedule B Required

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Financial Health Indicators

Comprehensive financial analysis: Altman Z-Score, liquidity, solvency, sustainability, efficiency, and growth metrics

Financial Distress Indicator

Liquidity & Cash Position

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Altman Z-Score • Liquidity Ratios • Solvency Analysis • Growth Indicators • Efficiency Metrics

Governance

Voting Members

Independent Members

Employees

Volunteers

N/A

Governance Policies

✗ Conflict of Interest Policy

✗ Whistleblower Policy

✗ Document Retention Policy

Special Practices & Reported Activities

✗ Operated a School

✗ Operated a Hospital

✗ Provided First Class Travel

⚠ Reported Conflict of Interest

✗ Reported Asset Diversion

✗ Excess Benefit Transaction

✗ Made Political Expenditures

✗ Engaged in Lobbying

✓ Operated Donor Advised Fund

✗ Maintained Art Collections

✗ Filed Form 720

Compensation of Officers, Directors & Key Employees

Total Officers

Total Directors

Key Employees

Highest Compensated

reported

Name	Title	Hours/Week	Role	Reportable Comp	Other Comp	Total
CHERYL BISH	VICE CHAIR	0.00	Director	$0	$0	$0
TED FARHA	BOARD MEMBER	0.00	Director	$0	$0	$0
ROSALEE SARACHEK	BOARD MEMBER	0.00	Director	$0	$0	$0
CHRISTOPHER WOLGAMOTT	BOARD MEMBER	0.00	Director	$0	$0	$0
CLARK BOYER	BOARD MEMBER	0.00	Director	$0	$0	$0
HEATHER HANSON	BOARD MEMBER	0.00	Director	$0	$0	$0
TAMMY FOULSTON	BOARD MEMBER	0.00	Director	$0	$0	$0
LEWIS BLACKWELL	CHAIR	0.00	Officer Director	$0	$0	$0
RICHARD ANDERSON	SECRETARYTREASURER	0.00	Officer Director	$0	$0	$0
GREGORY SUTER	EXECUTIVE DIRECTOR	40.00	Highest	$0	$0	$0

Note: Compensation data is self-reported by the organization on their Form 990. "Reportable Comp" includes salary, bonuses, and other reportable compensation from the organization and related organizations. "Other Comp" includes benefits, deferred compensation, and non-taxable benefits.

Historical Data

Year	Revenue	Expenses	Assets	Net Income
2025	$745,896	$849,603	$1,149,107	$-103,707
2024	$969,745	$853,511	$1,216,155	$116,234
2020	$942,281	$816,568	$651,596	$125,713
2019	$653,313	$864,223	$514,340	$-210,910
2018	$721,457	$752,013	No data	$-30,556

HEREDITARY NEUROLOGICAL DISEASE CENTER