AMERICAN SYRINGOMYELIA ALLIANCE PR… - Form 990 Financial Data

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Financial Vulnerability Assessment (Tuckman-Chang)

4 risk indicators measuring financial stability and operational resilience

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Financial Trends

Organization Details

Formation Year

1988

Legal Domicile

Principal Officer

Annie Chapman

Phone

9032367079

Tax Period

2023-06-01 to 2024-05-31

AMERICAN SYRINGOMYELIA ALLIANCE PROJECT INC, founded in 1988, is a small nonprofit that reported $970K in total revenue in fiscal year 2023. Revenue grew 9% year-over-year, indicating healthy expansion. The organization ran a surplus of $552K, a strong 57% operating margin.

Mission

To provide support for persons affected by Syringomyelia and Chiari Malformation through support groups, information dissemination, conducting an annual medical conference, and distributing educational materials. Also to raise funds to provide grants for medical research.

Program Service Accomplishments

Program 1

Expenses: $284,086

ASAP works toward accomplishing its mission by providing Support and Education, Increasing awareness, early identification of patients and understanding of symptoms, cause and management of the...

ASAP works toward accomplishing its mission by providing Support and Education, Increasing awareness, early identification of patients and understanding of symptoms, cause and management of the disorders. We accomplish this through newsletters, website, annual medical conference, support group meetings, and webinars.

Program 2

Expenses: $24,413

ASAP works toward accomplishing its mission by funding research. ASAPs goals include increasing public awareness of the existence of the disorder and its devastating effects financially supporting...

ASAP works toward accomplishing its mission by funding research. ASAPs goals include increasing public awareness of the existence of the disorder and its devastating effects financially supporting research efforts and raising funds to find all causes, to develop new treatments and to improve existing treatments coordinating the efforts of organizations working towards improving the lives of people with Syringomyelia and/or Chiari

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Trantor Score

Financial Health Score (300–850) · Liquidity · Solvency · Sustainability · Efficiency

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Liquidity (40%) • Solvency (30%) • Sustainability (20%) • Efficiency (10%)

Financial Overview (2023)

Revenue Breakdown

Contributions & Grants $181,319

Program Service Revenue $10,642

Investment Income $275,335

Other Revenue $502,243

TOTAL REVENUE $969,539

Expense Breakdown

Grants Paid $24,413

Salaries & Benefits $195,607

Fundraising Expenses $24,694

Program Expenses $308,499

Other Expenses $197,296

TOTAL EXPENSES $417,316

Year-over-Year Comparison

	2023	2022	Change
Revenue	$969,539	$887,640	+0.1%
Expenses	$417,316	$401,029	+0.0%
Net Income	$552,223	$486,611	+0.1%

Key Indicators

✓ Grants to Organizations ✗ Grants to Individuals ✗ Lobbying ✗ Political Activity ✗ Foreign Activities ✗ Donor Advised Fund ✗ Schedule B Required

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Financial Health Indicators

Comprehensive financial analysis: Altman Z-Score, liquidity, solvency, sustainability, efficiency, and growth metrics

Financial Distress Indicator

Liquidity & Cash Position

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Altman Z-Score • Liquidity Ratios • Solvency Analysis • Growth Indicators • Efficiency Metrics

Governance

Voting Members

Independent Members

Employees

Volunteers

Governance Policies

✗ Conflict of Interest Policy

✗ Whistleblower Policy

✗ Document Retention Policy

Special Practices & Reported Activities

✗ Operated a School

✗ Operated a Hospital

✗ Provided First Class Travel

✗ Reported Conflict of Interest

✗ Reported Asset Diversion

✗ Excess Benefit Transaction

✗ Made Political Expenditures

✗ Engaged in Lobbying

✗ Operated Donor Advised Fund

✗ Maintained Art Collections

✗ Filed Form 720

Compensation of Officers, Directors & Key Employees

Total Officers

Total Directors

Key Employees

$65,726

Highest Compensated

reported

Name	Title	Hours/Week	Role	Reportable Comp	Other Comp	Total
Patrice Schaublin	Executive Director	035.00	Key Emp Highest	$65,726	$0	$65,726
Eric Berning	President	001.00	Officer Director	$0	$0	$0
Gerald Grant MD	Research chair	001.00	Director	$0	$0	$0
Robert Keating MD	Medical advisory chair	001.00	Director	$0	$0	$0
Annie Chapman	Treasurer	002.00	Officer Director	$0	$0	$0
Richard Simon	director	001.00	Director	$0	$0	$0
Paolo Bolognese MD	director	001.00	Director	$0	$0	$0
John Caemmerer	Vice President	001.00	Officer Director	$0	$0	$0
Molly Lichtenstein	director	005.00	Director	$0	$0	$0
Michele Raye	Secretary	002.00	Officer Director	$0	$0	$0
Brian Dlouhy MD	director	001.00	Director	$0	$0	$0
Ilene Ruhoy MD PhD	director	001.00	Director	$0	$0	$0
Carina Yang MD	director	001.00	Director	$0	$0	$0
Jeni Adair	director	001.00	Director	$0	$0	$0

Note: Compensation data is self-reported by the organization on their Form 990. "Reportable Comp" includes salary, bonuses, and other reportable compensation from the organization and related organizations. "Other Comp" includes benefits, deferred compensation, and non-taxable benefits.

Historical Data

Year	Revenue	Expenses	Assets	Net Income
2024	$969,539	$417,316	$4,423,982	$552,223
2023	$887,640	$401,029	$3,880,209	$486,611
2022	$1,211,738	$346,847	$3,398,622	$864,891
2021	$676,827	$445,268	$2,630,578	$231,559
2020	$847,991	$369,114	$2,306,247	$478,877
2019	$724,842	$280,916	$1,807,002	$443,926
2018	$668,196	$300,695	$1,357,461	$367,501

AMERICAN SYRINGOMYELIA ALLIANCE PROJECT INC