American Fibromyalgia Syndrome Association Inc

EIN: 770355224 501(c)(3) Medical Research

Tucson, AZ

Total Revenue
$51,876
Total Expenses
$170,625
Total Assets
$873,074
Net Assets
$783,074
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Financial Trends

Organization Details

Formation Year
1993
Legal Domicile
CA
Principal Officer
Kristin Thorson
Phone
5207331570
Tax Period
2024-07-01 to 2025-06-30

American Fibromyalgia Syndrome Association Inc, founded in 1993, is a micro nonprofit in the Medical Research sector that reported $52K in total revenue in fiscal year 2024. Revenue fell 63% from the prior year — a significant decline worth monitoring. Expenses of $171K exceeded revenue, resulting in a 229% operating deficit.

Mission

The American Fibromyalgia Syndrome Association's (AFSA's) two missions are: (1) fund superior quality studies on fibromyalgia and (2) educate patients about this disease so that they can seek improved healthcare and achieve a better quality of life.

Program Service Accomplishments

Program 1
Expenses: $152,707

With research grants from AFSA (typically $85,000 each), scientists advance the understanding of fibromyalgia. Our focus is on causes, treatments, and developing biomarkers for the disease. In the...

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With research grants from AFSA (typically $85,000 each), scientists advance the understanding of fibromyalgia. Our focus is on causes, treatments, and developing biomarkers for the disease. In the current year, AFSA funded 2 projects and approved the funding for a third project that is pending IRB approval. Project 1: Nicholas Fallon, Ph.D., and Andreas Goebel, M.D., Ph.D., at the University of Liverpool (U.K.) are investigating the processes involved in causing fibromyalgia symptoms to flare, with emphasis on the brain and immunological functions. Award amount is $78,058 (U.S. funds).Project 2: Shafaqq Sikandar, Ph.D., at Queen Mary University of London (U.K.) is examining how neutrophils are different in fibromyalgia and will determine if these cells can be used as a biomarker for the disease. Award amount is $74,649 (U.S. funds).Project 3: Katherine Martucci, Ph.D., at Duke University (U.S.) is conducting a treatment trial using transcranial magnetic stimulation (TMS) to treat the pain, fatigue and cognitive symptoms of fibromyalgia with an accelerated protocol targeting the medial prefrontal cortex. Project was approved in June of 2025 for $90,000 and funding is expected in October 2025.

Program 2
Expenses: $9,029

As part of our patient-education mission, we maintain a website to serve as a go-to resource for patients and their healthcare providers. The site includes sections on both drug and nondrug...

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As part of our patient-education mission, we maintain a website to serve as a go-to resource for patients and their healthcare providers. The site includes sections on both drug and nondrug treatments, lifestyle changes, coping strategies, advances in treatments and research, and descriptions of projects funded by AFSA. We added 20 new pages to the site (it grew from 83 to 103 pages) and the number of new people visiting the site for information was 65,000 during the fiscal year.

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Trantor Score

Financial Health Score (300–850) · Liquidity · Solvency · Sustainability · Efficiency

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Liquidity (40%) • Solvency (30%) • Sustainability (20%) • Efficiency (10%)

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Financial Overview (2024)

Revenue Breakdown

Contributions & Grants $21,980
Program Service Revenue $0
Investment Income $29,896
Other Revenue $0
TOTAL REVENUE $51,876

Expense Breakdown

Grants Paid $152,707
Salaries & Benefits $0
Fundraising Expenses $0
Program Expenses $161,736
Other Expenses $17,918
TOTAL EXPENSES $170,625

Year-over-Year Comparison

2024 2023 Change
Revenue $51,876 $139,716 -0.6%
Expenses $170,625 $160,961 +0.1%
Net Income $-118,749 $-21,245 +4.6%
Key Indicators
Grants to Organizations Grants to Individuals Lobbying Political Activity Foreign Activities Donor Advised Fund Schedule B Required
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Governance

Voting Members
4
Independent Members
4
Employees
N/A
Volunteers
4

Governance Policies

Conflict of Interest Policy
Whistleblower Policy
Document Retention Policy

Special Practices & Reported Activities

Operated a School
Operated a Hospital
Provided First Class Travel
Reported Conflict of Interest
Reported Asset Diversion
Excess Benefit Transaction
Made Political Expenditures
Engaged in Lobbying
Operated Donor Advised Fund
Maintained Art Collections
Filed Form 720

Compensation of Officers, Directors & Key Employees

Total Officers
3
$0
Total Directors
4
$0
Key Employees
0
$0
Highest Compensated
0
reported
Name Title Hours/Week Role Reportable Comp Other Comp Total
Kristin Thorson President 40.00
Officer Director
$0 $0 $0
Steve Thorson Vice President & Secretary 15.00
Officer Director
$0 $0 $0
Jennifer E Randle Chief Financial Officer 0.20
Officer Director
$0 $0 $0
Brent Songer Director 0.20
Director
$0 $0 $0
Note: Compensation data is self-reported by the organization on their Form 990. "Reportable Comp" includes salary, bonuses, and other reportable compensation from the organization and related organizations. "Other Comp" includes benefits, deferred compensation, and non-taxable benefits.

Historical Data

Year Revenue Expenses Assets Net Income
2025 $51,876 $170,625 $873,074 $-118,749
2024 $139,716 $160,961 $991,823 $-21,245
2023 $34,799 $5,488 $1,011,543 $29,311
2022 $57,608 $8,446 $978,928 $49,162
2021 $60,145 $10,138 $929,766 $50,007
2020 $73,242 $271,275 $879,759 $-198,033
2019 $24,005 $304,256 $1,077,792 $-280,251
2018 $43,958 $9,818 $1,358,043 $34,140
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