Tatton Brown Rahman Syndrome Commu… - Form 990 Financial Data

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Financial Vulnerability Assessment (Tuckman-Chang)

4 risk indicators measuring financial stability and operational resilience

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Financial Trends

Organization Details

Formation Year

2017

Legal Domicile

Principal Officer

Jill Kiernan

Phone

8452643016

Tax Period

2024-01-01 to 2024-12-31

Tatton Brown Rahman Syndrome Community Inc, founded in 2017, is a small nonprofit in the Diseases & Disorders sector that reported $271K in total revenue in fiscal year 2024. Revenue decreased 12% compared to the prior year. Expenses of $400K exceeded revenue, resulting in a 48% operating deficit.

Mission

TBRS Community aims to support all families affected by TBRS and advance research toward interventions.

Program Service Accomplishments

Program 1

Expenses: $149,692

Research: TBRS-funded research led to potentially lifesaving clinical discoveries, improving monitoring for key health risks. Through our biorepository (45+ patient samples) and funded TBRS models...

Research: TBRS-funded research led to potentially lifesaving clinical discoveries, improving monitoring for key health risks. Through our biorepository (45+ patient samples) and funded TBRS models, we removed barriers for scientists by providing essential tools for biomarker discovery and treatment development. These efforts have made it easier and faster for researchers to step into TBRS studies, expanding research participation and increasing treatment development potential.

Program 2

Expenses: $116,651

Collaborative Research Network: Over the past year, the TBRS Community expanded its Collaborative Research Network (CRN) by fostering cross-disciplinary partnerships, centralizing data, and...

Collaborative Research Network: Over the past year, the TBRS Community expanded its Collaborative Research Network (CRN) by fostering cross-disciplinary partnerships, centralizing data, and prioritizing patient-driven research goals. We increased the TBRS Patient Registry to over 200 participants, making it a vital resource for scientific discovery. Additionally, we developed a strategic research roadmap to guide efforts toward clinical outcomes and ensure open access to data, accelerating the path toward effective treatments.

Program 3

Expenses: $46,147 Revenue: $61,008

Education: In the past year, the TBRS Community delivered critical education and advocacy programs, including:Raising awareness of seizures, cardiac concerns, and cancer risks through scientific...

Education: In the past year, the TBRS Community delivered critical education and advocacy programs, including:Raising awareness of seizures, cardiac concerns, and cancer risks through scientific publications and advocacy efforts.Launching a Future Planning Series with expert-led sessions on long-term care, financial planning, and adult services, supporting families in making informed decisions.Hosting family education webinars, social groups, and parent support networks, strengthening community connections and equipping families with research and clinical insights.

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Trantor Score

Financial Health Score (300–850) · Liquidity · Solvency · Sustainability · Efficiency

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Liquidity (40%) • Solvency (30%) • Sustainability (20%) • Efficiency (10%)

Financial Overview (2024)

Revenue Breakdown

Contributions & Grants $181,535

Program Service Revenue $61,008

Investment Income $28,126

Other Revenue $0

TOTAL REVENUE $270,669

Expense Breakdown

Grants Paid $110,000

Salaries & Benefits $153,039

Fundraising Expenses $59,482

Program Expenses $312,490

Other Expenses $136,523

TOTAL EXPENSES $399,562

Year-over-Year Comparison

	2024	2023	Change
Revenue	$270,669	$309,002	-0.1%
Expenses	$399,562	$333,744	+0.2%
Net Income	$-128,893	$-24,742	+4.2%

Key Indicators

✓ Grants to Organizations ✗ Grants to Individuals ✗ Lobbying ✗ Political Activity ✓ Foreign Activities ✗ Donor Advised Fund ✓ Schedule B Required

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Financial Health Indicators

Comprehensive financial analysis: Altman Z-Score, liquidity, solvency, sustainability, efficiency, and growth metrics

Financial Distress Indicator

Liquidity & Cash Position

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Altman Z-Score • Liquidity Ratios • Solvency Analysis • Growth Indicators • Efficiency Metrics

Governance

Voting Members

Independent Members

Employees

Volunteers

Governance Policies

✗ Conflict of Interest Policy

✗ Whistleblower Policy

✗ Document Retention Policy

Special Practices & Reported Activities

✗ Operated a School

✗ Operated a Hospital

✗ Provided First Class Travel

✗ Reported Conflict of Interest

✗ Reported Asset Diversion

✗ Excess Benefit Transaction

✗ Made Political Expenditures

✗ Engaged in Lobbying

✗ Operated Donor Advised Fund

✗ Maintained Art Collections

✗ Filed Form 720

Compensation of Officers, Directors & Key Employees

Total Officers

$78,930

Total Directors

Key Employees

Highest Compensated

reported

Name	Title	Hours/Week	Role	Reportable Comp	Other Comp	Total
Jill Kiernan	Executive Director	40.00	Officer	$76,650	$2,280	$78,930
Robert Thibodeau	Director	1.00	Director	$0	$0	$0
Zoe Wisnoski	Director	1.00	Director	$0	$0	$0
Monic Bejano	Director	1.00	Director	$0	$0	$0
Kacee Richter	President	10.00	Officer Director	$0	$0	$0
Kerry Grens	Vice President	5.00	Officer Director	$0	$0	$0
Erin Rooker	Marketing Manager	5.00	Officer Director	$0	$0	$0
Thomas Watson	Treasurer	5.00	Officer Director	$0	$0	$0

Note: Compensation data is self-reported by the organization on their Form 990. "Reportable Comp" includes salary, bonuses, and other reportable compensation from the organization and related organizations. "Other Comp" includes benefits, deferred compensation, and non-taxable benefits.

Historical Data

Year	Revenue	Expenses	Assets	Net Income
2024	$270,669	$399,562	$691,528	$-128,893
2023	$309,002	$333,744	$868,444	$-24,742
2022	$165,360	$157,087	$832,865	$8,273
2021	$337,246	$62,026	$422,765	$275,220
2020	$97,655	$24,397	$140,714	$73,258

Tatton Brown Rahman Syndrome Community Inc