STXBP1 FOUNDATION (EIN 821439459) - Form 990 Financial Analysis & Trantor Score

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Financial Vulnerability Assessment (Tuckman-Chang)

4 risk indicators measuring financial stability and operational resilience

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Financial Trends

Organization Details

Formation Year

2017

Legal Domicile

Principal Officer

CHARLENE SON RIGBY

Phone

5137206302

Tax Period

2024-01-01 to 2024-12-31

STXBP1 FOUNDATION, founded in 2017, is a community nonprofit in the Diseases & Disorders sector that reported $1.4M in total revenue in fiscal year 2024. Revenue surged 93% from the prior year, signaling strong growth momentum. Expenses of $1.3M left a modest 11% surplus.

Mission

TO CREATE AWARENESS IN THE DISORDERS ASSOCIATED WITH STXBP1 MUTATIONS. FUND AND DRIVE RESEARCH DISCOVERY OF A CURE. PROVIDE FAMILIES WITH TOOLS TO HELP THEM UNDERSTAND THE DISEASE & HOW TO GET INVOLVED. ADVOCATE TO IMPROVE EARLY DETECTION. FOSTER ACTIVISM TO HELP CHANGE POLICIES IN FAVOR OF ORPHANED DISEASES. IMPROVE THE LIVES OF OUR STXBP1 FAMILIES.

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Trantor Score

Financial Health Score (300–850) · Liquidity · Solvency · Sustainability · Efficiency

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Liquidity (40%) • Solvency (30%) • Sustainability (20%) • Efficiency (10%)

Financial Overview (2024)

Revenue Breakdown

Contributions & Grants $1,370,768

Program Service Revenue $0

Investment Income $49,661

Other Revenue $0

TOTAL REVENUE $1,420,429

Expense Breakdown

Grants Paid $828,992

Salaries & Benefits $0

Fundraising Expenses $5,879

Program Expenses $1,235,904

Other Expenses $439,155

TOTAL EXPENSES $1,268,147

Year-over-Year Comparison

	2024	2023	Change
Revenue	$1,420,429	$735,527	+0.9%
Expenses	$1,268,147	$1,323,859	0.0%
Net Income	$152,282	$-588,332	-1.3%

Key Indicators

✓ Grants to Organizations ✗ Grants to Individuals ✗ Lobbying ✗ Political Activity ✗ Foreign Activities ✗ Donor Advised Fund ✓ Schedule B Required

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Financial Health Indicators

Comprehensive financial analysis: Altman Z-Score, liquidity, solvency, sustainability, efficiency, and growth metrics

Financial Distress Indicator

Liquidity & Cash Position

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Altman Z-Score • Liquidity Ratios • Solvency Analysis • Growth Indicators • Efficiency Metrics

Governance

Voting Members

Independent Members

Employees

N/A

Volunteers

Governance Policies

✓ Conflict of Interest Policy

✗ Whistleblower Policy

✗ Document Retention Policy

Special Practices & Reported Activities

✗ Operated a School

✗ Operated a Hospital

✗ Provided First Class Travel

✗ Reported Conflict of Interest

✗ Reported Asset Diversion

✗ Excess Benefit Transaction

✗ Made Political Expenditures

✗ Engaged in Lobbying

✗ Operated Donor Advised Fund

✗ Maintained Art Collections

✗ Filed Form 720

Compensation of Officers, Directors & Key Employees

Total Officers

Total Directors

Key Employees

Highest Compensated

reported

Name	Title	Hours/Week	Role	Reportable Comp	Other Comp	Total
CHARLENE SON RIGBY	PRESIDENT	20.00	Officer Director	$0	$0	$0
MELISSA HIOCO	DIRECTOR, COMMUNITY ENGAGEMENT	25.00	Officer Director	$0	$0	$0
JACQUELINE STEINBERG	VICE PRESIDENT & SCIENTIFI	10.00	Officer Director	$0	$0	$0
HEATHER JONES	TREASURER	10.00	Officer Director	$0	$0	$0
RUSS NOVY	DIRECTOR, MARKETING & BRAND	30.00	Officer Director	$0	$0	$0
CRISTINA BRENNAN	SECRETARY	5.00	Officer Director	$0	$0	$0
JARED BARNUM	DIRECTOR, TECHNOLOGY	10.00	Officer Director	$0	$0	$0
DANIELE GREINER	DIRECTOR, DEVELOPMENT	5.00	Officer Director	$0	$0	$0

Note: Compensation data is self-reported by the organization on their Form 990. "Reportable Comp" includes salary, bonuses, and other reportable compensation from the organization and related organizations. "Other Comp" includes benefits, deferred compensation, and non-taxable benefits.

Historical Data

Year	Revenue	Expenses	Assets	Net Income
2024	$1,420,429	$1,268,147	$1,487,440	$152,282
2023	$735,527	$1,323,859	$1,367,619	$-588,332
2022	$1,830,890	$509,216	$1,701,392	$1,321,674
2021	$587,683	$626,381	$507,143	$-38,698
2020	$296,852	$12,494	$318,455	$284,358

STXBP1 FOUNDATION