Coffin-Siris Syndrome Foundation

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Financial Vulnerability Assessment (Tuckman-Chang)

4 risk indicators measuring financial stability and operational resilience

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Financial Trends

Organization Details

Formation Year

2017

Legal Domicile

Principal Officer

Carissa Robinson

Tax Period

2024-01-01 to 2024-12-31

Coffin-Siris Syndrome Foundation, founded in 2017, is a small nonprofit in the Diseases & Disorders sector that reported $206K in total revenue in fiscal year 2024. The organization ran a surplus of $87K, a strong 42% operating margin.

Mission

Coffin-Siris Syndrome Foundation is run by volunteers affected by Coffin-Siris Syndrome CSS. We exist to care for this community and support research that furthers the understanding of this rare syndrom

Program Service Accomplishments

Program 1

Expenses: $105,518 Revenue: $0

Provides an annual forum for family to gather socialize take part in learning opportunities and hear from experts

Program 2

Expenses: $2,055 Revenue: $0

Provide outreach and support to CSS families undergoing treatments or hardships

Program 3

Expenses: $1,727 Revenue: $0

Provided AAC Devices and communications boards

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Trantor Score

Financial Health Score (300–850) · Liquidity · Solvency · Sustainability · Efficiency

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Liquidity (40%) • Solvency (30%) • Sustainability (20%) • Efficiency (10%)

Financial Overview (2024)

Revenue Breakdown

Contributions & Grants $180,930

Program Service Revenue $0

Investment Income $176

Other Revenue $24,920

TOTAL REVENUE $206,026

Expense Breakdown

Grants Paid $0

Salaries & Benefits $0

Fundraising Expenses $0

Program Expenses $109,800

Other Expenses $119,026

TOTAL EXPENSES $119,026

Year-over-Year Comparison

	2024	2023	Change
Revenue	$206,026	N/A	N/A
Expenses	$119,026	N/A	N/A
Net Income	$87,000	N/A	N/A

Key Indicators

✗ Grants to Organizations ✗ Grants to Individuals ✗ Lobbying ✗ Political Activity ✗ Foreign Activities ✗ Donor Advised Fund ✓ Schedule B Required

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Financial Health Indicators

Comprehensive financial analysis: Altman Z-Score, liquidity, solvency, sustainability, efficiency, and growth metrics

Financial Distress Indicator

Liquidity & Cash Position

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Altman Z-Score • Liquidity Ratios • Solvency Analysis • Growth Indicators • Efficiency Metrics

Governance

Voting Members

Independent Members

Employees

N/A

Volunteers

Governance Policies

✗ Conflict of Interest Policy

✗ Whistleblower Policy

✗ Document Retention Policy

Special Practices & Reported Activities

✗ Operated a School

✗ Operated a Hospital

✗ Provided First Class Travel

✗ Reported Conflict of Interest

✗ Reported Asset Diversion

✗ Excess Benefit Transaction

✗ Made Political Expenditures

✗ Engaged in Lobbying

✗ Operated Donor Advised Fund

✗ Maintained Art Collections

✗ Filed Form 720

Compensation of Officers, Directors & Key Employees

Total Officers

Total Directors

Key Employees

Highest Compensated

reported

Name	Title	Hours/Week	Role	Reportable Comp	Other Comp	Total
Carrissa Robinson	Chair	15.00	Officer	$0	$0	$0
Kristen McGraw	Board Member - Volunteer	5.00	Officer	$0	$0	$0
Gaylen Mohre	Board Member - Volunteer	5.00	Officer	$0	$0	$0
Amanda Cole	Board Member - Volunteer	5.00	Officer	$0	$0	$0
Becky Dubay	Board Member - Volunteer	5.00	Officer	$0	$0	$0
Katie Kneisel	Board Member - Volunteer	5.00	Officer	$0	$0	$0
Parrish Burgess	Board Member - Volunteer	5.00	Officer	$0	$0	$0

Note: Compensation data is self-reported by the organization on their Form 990. "Reportable Comp" includes salary, bonuses, and other reportable compensation from the organization and related organizations. "Other Comp" includes benefits, deferred compensation, and non-taxable benefits.

Historical Data

Year	Revenue	Expenses	Assets	Net Income
2024	$206,026	$119,026	$206,160	$87,000