CURE RARE DISEASE INC

EIN: 822473513 501(c)(3) Diseases & Disorders

WOODBRIDGE, CT

Total Revenue
$5,335,620
Total Expenses
$2,307,360
Total Assets
$9,212,415
Net Assets
$6,478,502
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Financial Vulnerability Assessment (Tuckman-Chang)

4 risk indicators measuring financial stability and operational resilience

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Financial Trends

Organization Details

Formation Year
2018
Legal Domicile
MA
Principal Officer
RICHARD HORGAN
Phone
6072156401
Tax Period
2024-08-01 to 2025-07-31

CURE RARE DISEASE INC, founded in 2018, is a community nonprofit in the Diseases & Disorders sector that reported $5.3M in total revenue in fiscal year 2024. Revenue surged 20% from the prior year, signaling strong growth momentum. The organization ran a surplus of $3.0M, a strong 57% operating margin.

Mission

OUR MISSION IS TO ENABLE AND FINANCE THE DEVELOPMENT OF LIFE-SAVING GENETIC MEDICINES FOR ULTRA-RARE PATIENT POPULATIONS PREVIOUSLY DEEMED TOO RARE TO TREAT. TO REALIZE THIS, OUR UNIQUE ECOSYSTEMS FACILITATES COLLABORATION BETWEEN WORLD-RENOWNED RESEARCHERS AND CLINICIANS, POLICY EXPERTS AND OUR GENEROUS DONORS. TOGETHER, WE ARE FUNDAMENTALLY CHANGING THE ULTRA-RARE DISEASE EXPERIENCE AND BURDEN FOR MILLIONS OFPEOPLE AROUND THE WORLD WITH OUR DISCOVERIES AND METHODS - WHILE BRINGING HOPE TO PATIENTS WAITING FOR A CURE.

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Trantor Score

Financial Health Score (300–850) · Liquidity · Solvency · Sustainability · Efficiency

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Liquidity (40%) • Solvency (30%) • Sustainability (20%) • Efficiency (10%)

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Financial Overview (2024)

Revenue Breakdown

Contributions & Grants $5,016,216
Program Service Revenue $45,500
Investment Income $76,463
Other Revenue $197,441
TOTAL REVENUE $5,335,620

Expense Breakdown

Grants Paid $0
Salaries & Benefits $425,268
Fundraising Expenses $99,526
Program Expenses $2,117,925
Other Expenses $1,882,092
TOTAL EXPENSES $2,307,360

Year-over-Year Comparison

2024 2023 Change
Revenue $5,335,620 $4,438,510 +0.2%
Expenses $2,307,360 $2,003,149 +0.2%
Net Income $3,028,260 $2,435,361 +0.2%
Key Indicators
Grants to Organizations Grants to Individuals Lobbying Political Activity Foreign Activities Donor Advised Fund Schedule B Required
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Financial Health Indicators

Comprehensive financial analysis: Altman Z-Score, liquidity, solvency, sustainability, efficiency, and growth metrics

Financial Distress Indicator

Liquidity & Cash Position

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Altman Z-Score • Liquidity Ratios • Solvency Analysis • Growth Indicators • Efficiency Metrics

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Governance

Voting Members
12
Independent Members
11
Employees
9
Volunteers
11

Governance Policies

Conflict of Interest Policy
Whistleblower Policy
Document Retention Policy

Special Practices & Reported Activities

Operated a School
Operated a Hospital
Provided First Class Travel
Reported Conflict of Interest
Reported Asset Diversion
Excess Benefit Transaction
Made Political Expenditures
Engaged in Lobbying
Operated Donor Advised Fund
Maintained Art Collections
Filed Form 720

Compensation of Officers, Directors & Key Employees

Total Officers
1
$219,944
Total Directors
12
$219,944
Key Employees
0
$0
Highest Compensated
0
reported
Name Title Hours/Week Role Reportable Comp Other Comp Total
RICHARD HORGAN FOUNDER & CEO 40.00
Officer Director
$210,041 $9,903 $219,944
MARK WARD CAO 40.00
$102,686 $0 $102,686
BRENT WARNER MEMBER 2.00
Director
$0 $0 $0
MARK SMITH MEMBER 2.00
Director
$0 $0 $0
KWESI ACQUAY MEMBER 2.00
Director
$0 $0 $0
STEPHANIE HERZOG MEMBER 2.00
Director
$0 $0 $0
MIKE WILLIAMS MEMBER 2.00
Director
$0 $0 $0
JEREMY STERNBERG MEMBER 2.00
Director
$0 $0 $0
JESSICA CURRAN MEMBER 2.00
Director
$0 $0 $0
KLAUS VEITINGER MEMBER 2.00
Director
$0 $0 $0
GREG KLASSEN MEMBER 2.00
Director
$0 $0 $0
CODY TRANBARGER MEMBER 2.00
Director
$0 $0 $0
MICHELLE WERNER MEMBER 2.00
Director
$0 $0 $0
Note: Compensation data is self-reported by the organization on their Form 990. "Reportable Comp" includes salary, bonuses, and other reportable compensation from the organization and related organizations. "Other Comp" includes benefits, deferred compensation, and non-taxable benefits.

Historical Data

Year Revenue Expenses Assets Net Income
2025 $5,335,620 $2,307,360 $9,212,415 $3,028,260
2024 $4,438,510 $2,003,149 $5,973,877 $2,435,361
2023 $2,300,944 $1,957,670 $3,277,567 $343,274
2022 $2,797,783 $3,210,905 $839,519 $-413,122
2021 $2,486,822 $2,289,134 $1,470,434 $197,688
2020 $908,188 $340,271 $1,000,002 $567,917
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