FOUNDATION FOR CHILDREN WITH NEUROIMMUNE DISORDERS INC

EIN: 823128162 501(c)(3) Diseases & Disorders

ST AUGUSTINE, FL

Total Revenue
$482,434
Total Expenses
$315,390
Total Assets
$1,028,283
Net Assets
$1,028,283
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Financial Trends

Organization Details

Formation Year
2017
Legal Domicile
FL
Principal Officer
ANNA CONKEY
Phone
6083810367
Tax Period
2025-01-01 to 2025-12-31

FOUNDATION FOR CHILDREN WITH NEUROIMMUNE DISORDERS INC, founded in 2017, is a small nonprofit in the Diseases & Disorders sector that reported $482K in total revenue in fiscal year 2025. Revenue decreased 18% compared to the prior year. The organization ran a surplus of $167K, a strong 35% operating margin.

Mission

NEUROIMMUNE FOUNDATION IS A NON-PROFIT ORGANIZATION DEDICATED TO DRAMATICALLY ACCELERATING PHYSICIAN EDUCATION OF PANS, PANDAS, AND ENCEPHALITIS; SIGNIFICANTLY IMPROVING OUTCOMES FOR INDIVIDUALS IMPACTED BY THESE DISORDERS; PROVIDING MEANINGFUL SUPPORT TO FAMILIES DURING THEIR DARKEST DAYS; AND CATALYZING RESEARCH AT AN UNPRECEDENTED PACE

Program Service Accomplishments

Program 1
Expenses: $204,538 Revenue: $207,579

PHYSICIAN EDUCATION - IN JANUARY 2025, LAUNCHED COMPREHENSIVE EDUCATIONAL MODEL IN COLABORATION WITH PROJECT ECHO WITH ACCREDITED CME DISGINED TO EQUIP PHYSICIANS TO EVALUATE AND TREAT CHILDREN...

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PHYSICIAN EDUCATION - IN JANUARY 2025, LAUNCHED COMPREHENSIVE EDUCATIONAL MODEL IN COLABORATION WITH PROJECT ECHO WITH ACCREDITED CME DISGINED TO EQUIP PHYSICIANS TO EVALUATE AND TREAT CHILDREN, YOUTH, AND ADULTS WITH PSYCHIATRIC SYMPTOMS DUE TO AN UNDERLYING NEUROIMMUNE CONDITION (PANS, PANDAS, ENCEPHALITIS, ETC). THE FREE CME PROGRAM FEATURED ONE-HOUR WEEKLY MEETINGS FEATURING SHORT DIDACTICS BY 8 WORLD-RENOWNED EXPERT PHYSICIANS FROM LEADING UNIVERSITY PROGRAMS FOLLOWED BY CASE PRESENTATIONS. DETAILED TREATMENT AND DIAGNOSIS GUIDES TO SUPPORT PHYSICIANS REACHED OVER 25,000 PHYSICIANS IN THE UNITED STATES AND ABROAD. OVER 200,000 CLINICIANS WORLDWIDE WERE OFFERED FREE CME. CONTINUED SUSTAINED OUTREACH TO 150+ RESIDENCY PROGRAMS IN THE US WITH FREE ACCREDITED CONTINUING MEDICAL EDUCATION. WE HAVE NOW EDUCATED 7000+ CLINICIANS IN 70+ COUNTRIES AROUND THE WORLD WITH ACCREDITED CME - 90% OF THEM COMPLETELY FREE OF CHARGE IN AN EFFORT TO IMPROVE PATIENT OUTCOMES. EDUCATED AT THE NATIONAL AAP MEETING, OFFERING FREE RESOURCES TO CLINICIANS. PUBLISHED OUR SECOND PEER-REVIEWED SPECIAL ISSUE IN DEVELOPMENTAL NEUROSCIENCE FOCUSING ON ADVANCES IN PANS AND RELATED NEUROIMMUE DISORDERS. EXPENSES INCLUDED ACCREDITATION, MARKETING, PLATFORM FEES, HONORARIUM, TRAVEL TO AAP, PRINTING, AND A ROBUST OUTREACH.

Program 2
Expenses: $6,954 Revenue: $46,897

OFFERED FREE SUPPORT AND HIGH QUALITY EDUCATION TO 33K + PATIENTS AND FAMILIES. DEVELOPED THE WORLD'S LARGEST PANS/PANDAS CLINICIAN DIRECTORY FOR FAMILIES. CONNECTED 4000+ PATIENTS/FAMILIES WITH...

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OFFERED FREE SUPPORT AND HIGH QUALITY EDUCATION TO 33K + PATIENTS AND FAMILIES. DEVELOPED THE WORLD'S LARGEST PANS/PANDAS CLINICIAN DIRECTORY FOR FAMILIES. CONNECTED 4000+ PATIENTS/FAMILIES WITH CLINICIANS AND GREW OUR NETWORK OF CLINICIANS WHO CAN SUPPORT PATIENTS/FAMILIES. FAMILY SUPPORT PROGRAMS INCLUDED RUNNING A PRIVATE GROUP FOR 7,500 PATIENTS AND FAMILIES, PROVIDING MODERATION AND SUPPORT IN THAT GROUP, RESPONDING TO EMAILS TO ASSIST WITH FINDING PHYSICIANS, PROVIDING EDUCATIONAL WEBINARS WITH THERAPISTS AND PHYSICIANS. COSTS INCLUDED PLATFORM FEES, HONORARIUM, MATERIALS.

Program 3
Expenses: $49,195

FUNDED PROFESSOR RUSSELL DALE'S PANS RESEARCH AT UNIV. OF SYDNEY.

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Liquidity (40%) • Solvency (30%) • Sustainability (20%) • Efficiency (10%)

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Financial Overview (2025)

Revenue Breakdown

Contributions & Grants $198,766
Program Service Revenue $254,476
Investment Income $29,192
Other Revenue $0
TOTAL REVENUE $482,434

Expense Breakdown

Grants Paid $49,195
Salaries & Benefits $165,461
Fundraising Expenses $0
Program Expenses $260,687
Other Expenses $100,734
TOTAL EXPENSES $315,390

Year-over-Year Comparison

2025 2024 Change
Revenue $482,434 $587,533 -0.2%
Expenses $315,390 $366,039 -0.1%
Net Income $167,044 $221,494 -0.2%
Key Indicators
Grants to Organizations Grants to Individuals Lobbying Political Activity Foreign Activities Donor Advised Fund Schedule B Required
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Governance

Voting Members
5
Independent Members
5
Employees
2
Volunteers
30

Governance Policies

Conflict of Interest Policy
Whistleblower Policy
Document Retention Policy

Special Practices & Reported Activities

Operated a School
Operated a Hospital
Provided First Class Travel
Reported Conflict of Interest
Reported Asset Diversion
Excess Benefit Transaction
Made Political Expenditures
Engaged in Lobbying
Operated Donor Advised Fund
Maintained Art Collections
Filed Form 720

Compensation of Officers, Directors & Key Employees

Total Officers
5
$145,834
Total Directors
5
$145,834
Key Employees
0
$0
Highest Compensated
0
reported
Name Title Hours/Week Role Reportable Comp Other Comp Total
JOHANNA CONKEY PRESIDENT 40.00
Officer Director
$116,667 $29,167 $145,834
DR PIERRE KORY TREASURER 1.00
Officer Director
$0 $0 $0
TRAVIS CONKEY SECRETARY 1.00
Officer Director
$0 $0 $0
JOHNNA WORKMAN OFFICER 1.00
Officer Director
$0 $0 $0
LESLIE PHILLIPS VICE PRESIDENT 1.00
Officer Director
$0 $0 $0
Note: Compensation data is self-reported by the organization on their Form 990. "Reportable Comp" includes salary, bonuses, and other reportable compensation from the organization and related organizations. "Other Comp" includes benefits, deferred compensation, and non-taxable benefits.

Historical Data

Year Revenue Expenses Assets Net Income
2025 $482,434 $315,390 $1,028,283 $167,044
2024 $587,533 $366,039 $845,339 $221,494
2023 $849,087 $794,367 $704,535 $54,720
2022 $730,417 $566,880 $1,132,170 $163,537
2021 $438,321 $330,135 $398,931 $108,186
2020 $262,710 $152,919 $288,083 $109,791
2020 $262,710 $152,919 $288,083 $109,791
2019 $213,953 $42,072 $180,278 $171,881
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