THE YAYA FOUNDATION FOR 4H LEUKODY… - Form 990 Financial Data

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Financial Vulnerability Assessment (Tuckman-Chang)

4 risk indicators measuring financial stability and operational resilience

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Financial Trends

Organization Details

Formation Year

2017

Legal Domicile

Principal Officer

GABRIEL BASSIN

Phone

3472687066

Tax Period

2023-01-01 to 2023-12-31

THE YAYA FOUNDATION FOR 4H LEUKODYSTOPHY, founded in 2017, is a small nonprofit in the Health Care sector that reported $210K in total revenue in fiscal year 2023. Revenue fell 61% from the prior year — a significant decline worth monitoring. Expenses of $525K exceeded revenue, resulting in a 149% operating deficit.

Mission

Founded and launched the 4H Leukodystrophy Collaboration Network (4HLCN), a global, cross-functional collaboration of patients, families, researchers, and clinicians dedicated to advancing therapeutic discovery that will enable people affected by 4H (POLR3-Related) Leukodystrophy to live longer, better lives.

Program Service Accomplishments

Program 1

Expenses: $156,779

Launched #4HLFamilies, comprised of programming and supportive resources for families affected by 4H Leukodystrophy. #4HLFamilies aims to connect affected families so that they can share experiences and best practices and provide emotional and educational support for one another, provide educational resources for families and their healthcare providers in order to streamline and improve the standard of care for patients affected by 4H Leukodystrophy, and to share patient stories to raise awareness of the disease. The Yaya Foundation held several videoconferences attended by families and children affected by 4H and began creation of a suite of educational resources for newly diagnosed families and their healthcare providers aimed at streamlining and improving their care.

Program 2

Expenses: $87,512

Founded and launched the 4H Leukodystrophy Collaboration Network (4HLCN), a global, cross-functional collaboration of patients, families, researchers, and clinicians dedicated to advancing...

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Trantor Score

Financial Health Score (300–850) · Liquidity · Solvency · Sustainability · Efficiency

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Liquidity (40%) • Solvency (30%) • Sustainability (20%) • Efficiency (10%)

Financial Overview (2023)

Revenue Breakdown

Contributions & Grants $204,677

Program Service Revenue $0

Investment Income $5,813

Other Revenue $0

TOTAL REVENUE $210,490

Expense Breakdown

Grants Paid $24,699

Salaries & Benefits $269,644

Fundraising Expenses $183,525

Program Expenses $244,291

Other Expenses $230,569

TOTAL EXPENSES $524,912

Year-over-Year Comparison

	2023	2022	Change
Revenue	$210,490	$542,579	-0.6%
Expenses	$524,912	$506,046	+0.0%
Net Income	$-314,422	$36,533	-9.6%

Key Indicators

✓ Grants to Organizations ✗ Grants to Individuals ✗ Lobbying ✗ Political Activity ✗ Foreign Activities ✗ Donor Advised Fund ✓ Schedule B Required

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Financial Health Indicators

Comprehensive financial analysis: Altman Z-Score, liquidity, solvency, sustainability, efficiency, and growth metrics

Financial Distress Indicator

Liquidity & Cash Position

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Altman Z-Score • Liquidity Ratios • Solvency Analysis • Growth Indicators • Efficiency Metrics

Governance

Voting Members

Independent Members

Employees

Volunteers

Governance Policies

✗ Conflict of Interest Policy

✗ Whistleblower Policy

✗ Document Retention Policy

Special Practices & Reported Activities

✗ Operated a School

✗ Operated a Hospital

✗ Provided First Class Travel

⚠ Reported Conflict of Interest

✗ Reported Asset Diversion

✗ Excess Benefit Transaction

✗ Made Political Expenditures

✗ Engaged in Lobbying

✗ Operated Donor Advised Fund

✗ Maintained Art Collections

✗ Filed Form 720

Compensation of Officers, Directors & Key Employees

Total Officers

Total Directors

Key Employees

Highest Compensated

reported

Name	Title	Hours/Week	Role	Reportable Comp	Other Comp	Total
Benjamin Smith	Executive Director	40.00		$126,602	$0	$126,602
GABRIEL BASSIN	CFO & DIRECTOR	7.00	Director	$0	$0	$0
ZHU CHENG	VICE CHAIR	2.00	Director	$0	$0	$0
CHRIS CLEARY	Director	2.00	Director	$0	$0	$0
MARCIA CLEARY	Director	5.00	Director	$0	$0	$0
RON GARBER	Secretary	15.00	Director	$0	$0	$0
DANIEL GROSSMAN	Director	2.00	Director	$0	$0	$0
SOLOMAN LIEBERMAN	Director	2.00	Director	$0	$0	$0
RACHEL SCHONBACHLER	Director	2.00	Director	$0	$0	$0
KURT TRIPTOW	Director	2.00	Director	$0	$0	$0
DEBBIE TRIPTOW	Director	2.00	Director	$0	$0	$0

Note: Compensation data is self-reported by the organization on their Form 990. "Reportable Comp" includes salary, bonuses, and other reportable compensation from the organization and related organizations. "Other Comp" includes benefits, deferred compensation, and non-taxable benefits.

Historical Data

Year	Revenue	Expenses	Assets	Net Income
2024	No data	No data	No data	No data
2023	$210,490	$524,912	$441,329	$-314,422
2022	$542,579	$506,046	$743,023	$36,533
2021	$402,928	$401,596	$708,156	$1,332
2020	$612,675	$133,200	$715,342	$479,475

THE YAYA FOUNDATION FOR 4H LEUKODYSTOPHY