ASXL RARE RESEARCH ENDOWMENT FOUNDATION (EIN 823890665) - Form 990 Financial Analysis & Trantor Score

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Financial Vulnerability Assessment (Tuckman-Chang)

4 risk indicators measuring financial stability and operational resilience

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Financial Trends

Organization Details

Formation Year

2018

Legal Domicile

Principal Officer

Amanda Johnson

Phone

8455986359

Tax Period

2023-01-01 to 2023-12-31

ASXL RARE RESEARCH ENDOWMENT FOUNDATION, founded in 2018, is a small nonprofit in the Medical Research sector that reported $284K in total revenue in fiscal year 2023. Revenue surged 24% from the prior year, signaling strong growth momentum. The organization ran a surplus of $54K, a strong 19% operating margin.

Mission

A family-led organization that supports research to increase the understanding of the ASXL gene family and improve care for those living with ASXL Syndromes

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Trantor Score

Financial Health Score (300–850) · Liquidity · Solvency · Sustainability · Efficiency

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Liquidity (40%) • Solvency (30%) • Sustainability (20%) • Efficiency (10%)

Financial Overview (2023)

Revenue Breakdown

Contributions & Grants $262,982

Program Service Revenue $20,286

Investment Income $518

Other Revenue $0

TOTAL REVENUE $283,786

Expense Breakdown

Grants Paid $64,616

Salaries & Benefits $120,152

Fundraising Expenses $25,877

Program Expenses $157,020

Other Expenses $44,618

TOTAL EXPENSES $229,386

Year-over-Year Comparison

	2023	2022	Change
Revenue	$283,786	$228,516	+0.2%
Expenses	$229,386	$224,596	+0.0%
Net Income	$54,400	$3,920	+12.9%

Key Indicators

✗ Grants to Organizations ✓ Grants to Individuals ✗ Lobbying ✗ Political Activity ✓ Foreign Activities ✗ Donor Advised Fund ✓ Schedule B Required

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Financial Health Indicators

Comprehensive financial analysis: Altman Z-Score, liquidity, solvency, sustainability, efficiency, and growth metrics

Financial Distress Indicator

Liquidity & Cash Position

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Altman Z-Score • Liquidity Ratios • Solvency Analysis • Growth Indicators • Efficiency Metrics

Governance

Voting Members

Independent Members

Employees

Volunteers

Governance Policies

✓ Conflict of Interest Policy

✓ Whistleblower Policy

✓ Document Retention Policy

Special Practices & Reported Activities

✗ Operated a School

✗ Operated a Hospital

✗ Provided First Class Travel

✗ Reported Conflict of Interest

✗ Reported Asset Diversion

✗ Excess Benefit Transaction

✗ Made Political Expenditures

✗ Engaged in Lobbying

✗ Operated Donor Advised Fund

✗ Maintained Art Collections

✗ Filed Form 720

Compensation of Officers, Directors & Key Employees

Total Officers

Total Directors

Key Employees

$105,900

Highest Compensated

reported

Name	Title	Hours/Week	Role	Reportable Comp	Other Comp	Total
Amanda Johnson	Executive Director	40	Key Emp Highest	$105,900	$0	$105,900
Laura Badmaev	President	5	Officer Director	$0	$0	$0
Daniel Ordower	Treasurer	5	Officer Director	$0	$0	$0
Michael Salad	Director	5	Director	$0	$0	$0
Julie Lopez	Director	5	Director	$0	$0	$0
Lauren Adams	Director	5	Director	$0	$0	$0
Sankar	Madhavan	5	Director	$0	$0	$0
Amanda Scheier	Director	5	Director	$0	$0	$0

Note: Compensation data is self-reported by the organization on their Form 990. "Reportable Comp" includes salary, bonuses, and other reportable compensation from the organization and related organizations. "Other Comp" includes benefits, deferred compensation, and non-taxable benefits.

Historical Data

Year	Revenue	Expenses	Assets	Net Income
2024	No data	No data	No data	No data
2023	$283,786	$229,386	$668,547	$54,400
2022	$228,516	$224,596	$614,250	$3,920
2021	$286,093	$284,960	$616,097	$1,133
2020	$97,339	$278,421	$607,197	$-181,082
2019	$896,818	$122,037	$788,279	$774,781

ASXL RARE RESEARCH ENDOWMENT FOUNDATION