KABUKI SYNDROME FOUNDATION

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Financial Vulnerability Assessment (Tuckman-Chang)

4 risk indicators measuring financial stability and operational resilience

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Financial Trends

Organization Details

Formation Year

2018

Legal Domicile

Principal Officer

JILL ORUM DUNBAR

Phone

8472268237

Tax Period

2023-01-01 to 2023-12-31

KABUKI SYNDROME FOUNDATION, founded in 2018, is a community nonprofit in the Diseases & Disorders sector that reported $2.1M in total revenue in fiscal year 2023. Revenue surged 468% from the prior year, signaling strong growth momentum. The organization ran a surplus of $1.5M, a strong 71% operating margin.

Mission

TO DRIVE RESEARCH EFFORTS THAT SHOW PROMISE TO TREAT OR CURE KABUKI SYNDROME THROUGH FUNDRAISING, KNOWLEDGE-SHARING, AND COLLABORATING WITH RESEARCHERS AROUND THE WORLD.

Program Service Accomplishments

Program 1

Expenses: $18,434

THE FOUNDATION HOSTS A MEDICAL CONFERENCE THAT BRINGS TOGETHER SEVERAL OF THE LEADING KABUKI SYNDROME RESEARCHERS IN THE WORLD, AS WELL AS MANY INDIVIDUALS WITH KABUKI SYNDROME AND THEIR FAMILIES.

Program 2

Expenses: $493,732

THE FOUNDATION FUNDS KABUKI SYNDROME OUTCOME MEASURES AND BIOMARKERS CONSORTIUM (KSOC) AIMED AT DEVELOPING KABUKI SYNDROME-SPECIFIC TOOLS THAT CAN MEASURE THE EFFECTS OF POTENTIAL TREATMENTS IN...

THE FOUNDATION FUNDS KABUKI SYNDROME OUTCOME MEASURES AND BIOMARKERS CONSORTIUM (KSOC) AIMED AT DEVELOPING KABUKI SYNDROME-SPECIFIC TOOLS THAT CAN MEASURE THE EFFECTS OF POTENTIAL TREATMENTS IN FUTURE CLINICAL TRIALS.

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Trantor Score

Financial Health Score (300–850) · Liquidity · Solvency · Sustainability · Efficiency

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Liquidity (40%) • Solvency (30%) • Sustainability (20%) • Efficiency (10%)

Financial Overview (2023)

Revenue Breakdown

Contributions & Grants $2,176,028

Program Service Revenue $0

Investment Income $5,250

Other Revenue $-118,560

TOTAL REVENUE $2,062,718

Expense Breakdown

Grants Paid $280,163

Salaries & Benefits $0

Fundraising Expenses $43,285

Program Expenses $512,166

Other Expenses $320,327

TOTAL EXPENSES $600,490

Year-over-Year Comparison

	2023	2022	Change
Revenue	$2,062,718	$362,899	+4.7%
Expenses	$600,490	$236,797	+1.5%
Net Income	$1,462,228	$126,102	+10.6%

Key Indicators

✓ Grants to Organizations ✗ Grants to Individuals ✗ Lobbying ✗ Political Activity ✗ Foreign Activities ✗ Donor Advised Fund ✓ Schedule B Required

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Financial Health Indicators

Comprehensive financial analysis: Altman Z-Score, liquidity, solvency, sustainability, efficiency, and growth metrics

Financial Distress Indicator

Liquidity & Cash Position

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Altman Z-Score • Liquidity Ratios • Solvency Analysis • Growth Indicators • Efficiency Metrics

Governance

Voting Members

Independent Members

Employees

N/A

Volunteers

Governance Policies

✗ Conflict of Interest Policy

✗ Whistleblower Policy

✗ Document Retention Policy

Special Practices & Reported Activities

✗ Operated a School

✗ Operated a Hospital

✗ Provided First Class Travel

⚠ Reported Conflict of Interest

✗ Reported Asset Diversion

✗ Excess Benefit Transaction

✗ Made Political Expenditures

✗ Engaged in Lobbying

✗ Operated Donor Advised Fund

✗ Maintained Art Collections

✗ Filed Form 720

Compensation of Officers, Directors & Key Employees

Total Officers

Total Directors

Key Employees

Highest Compensated

reported

Name	Title	Hours/Week	Role	Reportable Comp	Other Comp	Total
ANNIE DEAN	CO-PRESIDENT	1.00	Officer Director	$0	$0	$0
JILL ORUM DUNBAR	CO-PRESIDENT	1.00	Officer Director	$0	$0	$0
PATRICK DUNBAR	TREASURER	1.00	Officer Director	$0	$0	$0
THOMAS CINGARI JR	VICE PRESIDENT	1.00	Officer Director	$0	$0	$0
EDOARDO ZEGNA DI MONTE RUBELLO	VICE PRESIDENT	1.00	Officer Director	$0	$0	$0
LEILA ZEGNA DI MONTE RUBELLO	VICE PRESIDENT	1.00	Director	$0	$0	$0

Note: Compensation data is self-reported by the organization on their Form 990. "Reportable Comp" includes salary, bonuses, and other reportable compensation from the organization and related organizations. "Other Comp" includes benefits, deferred compensation, and non-taxable benefits.

Historical Data

Year	Revenue	Expenses	Assets	Net Income
2024	No data	No data	No data	No data
2023	$2,062,718	$600,490	$2,051,432	$1,462,228
2022	$362,899	$236,797	$482,449	$126,102
2021	$412,185	$68,046	$356,347	$344,139
2020	$8,961	$1,460	$12,208	$7,501
2019	$4,346	$4,705	$4,707	$-359
2018	$12,655	$7,589	$5,066	$5,066