Progressive Familial Intrahepatic Cholestasis (EIN 831084501) - Form 990 Financial Analysis & Trantor Score

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Financial Vulnerability Assessment (Tuckman-Chang)

4 risk indicators measuring financial stability and operational resilience

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Financial Trends

Organization Details

Formation Year

2018

Legal Domicile

Principal Officer

Emily Ventura

Phone

4143313316

Tax Period

2024-01-01 to 2024-12-31

Progressive Familial Intrahepatic Cholestasis, founded in 2018, is a small nonprofit in the Diseases & Disorders sector that reported $352K in total revenue in fiscal year 2024. Expenses of $502K exceeded revenue, resulting in a 43% operating deficit.

Mission

To improve the lives of patients and families worldwide affected by Progressive Familial Intrahepatic Cholestasis, PFIC.

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Trantor Score

Financial Health Score (300–850) · Liquidity · Solvency · Sustainability · Efficiency

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Liquidity (40%) • Solvency (30%) • Sustainability (20%) • Efficiency (10%)

Financial Overview (2024)

Revenue Breakdown

Contributions & Grants $360,740

Program Service Revenue $0

Investment Income $0

Other Revenue $-8,339

TOTAL REVENUE $352,401

Expense Breakdown

Grants Paid $35,119

Salaries & Benefits $209,495

Fundraising Expenses $59,456

Program Expenses $335,003

Other Expenses $257,694

TOTAL EXPENSES $502,308

Year-over-Year Comparison

	2024	2023	Change
Revenue	$352,401	$365,826	0.0%
Expenses	$502,308	$470,106	+0.1%
Net Income	$-149,907	$-104,280	+0.4%

Key Indicators

✗ Grants to Organizations ✗ Grants to Individuals ✗ Lobbying ✗ Political Activity ✗ Foreign Activities ✗ Donor Advised Fund ✓ Schedule B Required

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Financial Health Indicators

Comprehensive financial analysis: Altman Z-Score, liquidity, solvency, sustainability, efficiency, and growth metrics

Financial Distress Indicator

Liquidity & Cash Position

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Altman Z-Score • Liquidity Ratios • Solvency Analysis • Growth Indicators • Efficiency Metrics

Governance

Voting Members

Independent Members

Employees

Volunteers

Governance Policies

✗ Conflict of Interest Policy

✗ Whistleblower Policy

✗ Document Retention Policy

Special Practices & Reported Activities

✗ Operated a School

✗ Operated a Hospital

✗ Provided First Class Travel

✗ Reported Conflict of Interest

✗ Reported Asset Diversion

✗ Excess Benefit Transaction

✗ Made Political Expenditures

✗ Engaged in Lobbying

✗ Operated Donor Advised Fund

✗ Maintained Art Collections

✗ Filed Form 720

Compensation of Officers, Directors & Key Employees

Total Officers

$71,000

Total Directors

$71,000

Key Employees

Highest Compensated

reported

Name	Title	Hours/Week	Role	Reportable Comp	Other Comp	Total
Emily Ventura	Co-Founder Executive Director	40.00	Officer Director	$71,000	$0	$71,000
Charmaine Gravener	Director	1.00	Director	$0	$0	$0
Erik Lontok	Director	1.00	Director	$0	$0	$0
Walter Perez	President	2.00	Officer Director	$0	$0	$0
Tara Kearns	Vice-President Co- Founder	2.00	Officer Director	$0	$0	$0
Hayley Watts	Treasurer	2.00	Officer Director	$0	$0	$0
Erin Hovey	Secretary	2.00	Officer Director	$0	$0	$0

Note: Compensation data is self-reported by the organization on their Form 990. "Reportable Comp" includes salary, bonuses, and other reportable compensation from the organization and related organizations. "Other Comp" includes benefits, deferred compensation, and non-taxable benefits.

Historical Data

Year	Revenue	Expenses	Assets	Net Income
2024	$352,401	$502,308	$212,778	$-149,907
2023	$365,826	$470,106	$353,142	$-104,280
2022	$270,986	$527,048	$487,255	$-256,062
2021	$808,755	$235,204	$718,340	$573,551

Progressive Familial Intrahepatic Cholestasis