PULMONARY FIBROSIS FOUNDATION

EIN: 841558631 501(c)(3) Diseases & Disorders

CHICAGO, IL

Total Revenue
$9,251,199
Total Expenses
$7,373,338
Total Assets
$17,464,989
Net Assets
$13,714,117
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Financial Vulnerability Assessment (Tuckman-Chang)

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Financial Trends

Organization Details

Formation Year
2000
Legal Domicile
CO
Principal Officer
SCOTT STASZAK
Phone
3122652182
Tax Period
2024-07-01 to 2025-06-30

PULMONARY FIBROSIS FOUNDATION, founded in 2000, is a community nonprofit in the Diseases & Disorders sector that reported $9.3M in total revenue in fiscal year 2024. Revenue grew 12% year-over-year, indicating healthy expansion. The organization ran a surplus of $1.9M, a strong 20% operating margin.

Mission

TO ACCELERATE THE DEVELOPMENT OF NEW TREATMENTS AND ULTIMATELY A CURE FOR PULMONARY FIBROSIS. UNTIL THIS GOAL IS ACHIEVED, THE PFF IS COMMITTED TO ADVANCING IMPROVED CARE OF PATIENTS WITH PF AND PROVIDING UNEQUALED SUPPORT AND EDUCATION RESOURCES FOR PATIENTS, CAREGIVERS, FAMILY MEMBERS, AND HEALTH CARE PROVIDERS.

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Trantor Score

Financial Health Score (300–850) · Liquidity · Solvency · Sustainability · Efficiency

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Liquidity (40%) • Solvency (30%) • Sustainability (20%) • Efficiency (10%)

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Financial Overview (2024)

Revenue Breakdown

Contributions & Grants $7,996,521
Program Service Revenue $1,581,702
Investment Income $632,494
Other Revenue $-959,518
TOTAL REVENUE $9,251,199

Expense Breakdown

Grants Paid $620,294
Salaries & Benefits $4,134,984
Fundraising Expenses $1,146,352
Program Expenses $4,950,416
Other Expenses $2,618,060
TOTAL EXPENSES $7,373,338

Year-over-Year Comparison

2024 2023 Change
Revenue $9,251,199 $8,276,217 +0.1%
Expenses $7,373,338 $9,009,001 -0.2%
Net Income $1,877,861 $-732,784 -3.6%
Key Indicators
Grants to Organizations Grants to Individuals Lobbying Political Activity Foreign Activities Donor Advised Fund Schedule B Required
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Liquidity & Cash Position

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Governance

Voting Members
15
Independent Members
15
Employees
39
Volunteers
4833

Governance Policies

Conflict of Interest Policy
Whistleblower Policy
Document Retention Policy

Special Practices & Reported Activities

Operated a School
Operated a Hospital
Provided First Class Travel
Reported Conflict of Interest
Reported Asset Diversion
Excess Benefit Transaction
Made Political Expenditures
Engaged in Lobbying
Operated Donor Advised Fund
Maintained Art Collections
Filed Form 720

Compensation of Officers, Directors & Key Employees

Total Officers
6
$639,741
Total Directors
16
$0
Key Employees
1
$216,084
Highest Compensated
5
reported
Name Title Hours/Week Role Reportable Comp Other Comp Total
SCOTT STASZAK PRESIDENT & CEO 40.00
Officer
$421,578 $11,090 $432,668
FRANCK RAHAGHI FORMER PRESIDENT & CEO 40.00
$284,230 $5,808 $290,038
SETH KLEIN CHIEF DEVELOPMENT OFFICER 40.00
Key Emp
$209,028 $7,056 $216,084
JESSICA SHORE SR. VP, CLINICAL AFFAIRS AND QUALITY 40.00
Highest
$202,398 $7,013 $209,411
JANET BIANCHETTA CHIEF FINANCIAL OFFICER 40.00
Officer
$184,343 $22,730 $207,073
KATHERINE BEIN VP, ADVOCACY AND PROGRAMS 40.00
Highest
$158,916 $31,572 $190,488
JENNIFER MEFFORD VP, CORPORATE PARTNERSHIPS 40.00
Highest
$172,561 $6,088 $178,649
ZOE BUBANY VP, BOARD AND EXTERNAL RELATIONS 40.00
Highest
$141,984 $21,979 $163,963
AMY WARDZALA VP, DEVELOPMENT 40.00
Highest
$132,201 $27,443 $159,644
WAYNE PAN MD PHD MBA CHAIR 1.00
Officer Director
$0 $0 $0
PATRICIA ROSA VICE CHAIR 1.00
Officer Director
$0 $0 $0
MARTIN ATTWELL SECRETARY 1.00
Officer Director
$0 $0 $0
LAURIE CHANDLER CFP TREASURER 1.00
Officer Director
$0 $0 $0
GRANT BALLANTYNE DIRECTOR 1.00
Director
$0 $0 $0
HAROLD R COLLARD MD DIRECTOR 1.00
Director
$0 $0 $0
TERENCE HALES DIRECTOR 1.00
Director
$0 $0 $0
JULIE HALSTON DIRECTOR 1.00
Director
$0 $0 $0
JEFF HARRIS DIRECTOR 1.00
Director
$0 $0 $0
SUSAN JACOBS RN MS DIRECTOR 1.00
Director
$0 $0 $0
HEATHER KAGEL DIRECTOR 1.00
Director
$0 $0 $0
PJ KAMANI DIRECTOR 1.00
Director
$0 $0 $0
DEVI KUMAR-NAMBIAR JD MBA DIRECTOR 1.00
Director
$0 $0 $0
DAVID MCNINCH DIRECTOR 1.00
Director
$0 $0 $0
WILLIAM SCHMIDT DIRECTOR 1.00
Director
$0 $0 $0
KENNETH FANG MD DIRECTOR - TERM 1.00
Director
$0 $0 $0
Note: Compensation data is self-reported by the organization on their Form 990. "Reportable Comp" includes salary, bonuses, and other reportable compensation from the organization and related organizations. "Other Comp" includes benefits, deferred compensation, and non-taxable benefits.

Historical Data

Year Revenue Expenses Assets Net Income
2025 $9,251,199 $7,373,338 $17,464,989 $1,877,861
2024 $8,276,217 $9,009,001 $15,320,155 $-732,784
2023 $11,816,537 $10,341,815 $16,794,445 $1,474,722
2022 $11,007,903 $9,685,619 $17,064,469 $1,322,284
2021 $8,965,595 $8,341,845 $14,745,592 $623,750
2020 $10,702,044 $11,291,623 $10,892,804 $-589,579
2019 $10,448,685 $8,488,184 $10,914,467 $1,960,501
2018 $8,743,466 $8,344,215 $8,884,514 $399,251
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