Smith-Kingsmore Syndrome Foundation

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Financial Vulnerability Assessment (Tuckman-Chang)

4 risk indicators measuring financial stability and operational resilience

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Financial Trends

Organization Details

Formation Year

2019

Legal Domicile

Principal Officer

Sarah Lepore

Phone

5137551705

Tax Period

2024-07-01 to 2025-06-30

Smith-Kingsmore Syndrome Foundation, founded in 2019, is a small nonprofit in the Diseases & Disorders sector that reported $168K in total revenue in fiscal year 2024.

Mission

Fund research to better understand Smith-Kingsmore syndrome and find treatments to improve patient quality of life and, ultimately, a cure.

Program Service Accomplishments

Program 1

Expenses: $116,864

This year, Smith-Kingsmore Syndrome Foundation advanced its mission with a comprehensive scientific strategy and participation in key conferences to strengthen ties with the research and clinical...

This year, Smith-Kingsmore Syndrome Foundation advanced its mission with a comprehensive scientific strategy and participation in key conferences to strengthen ties with the research and clinical community. We launched a multi-year drug repurposing initiative in Dr. Joanna Chius laboratory at the University of CaliforniaDavis, building on prior Foundation-funded work modeling SKS phenotypes and screening FDA-approved compounds; funded through the next two fiscal years, this is a major step toward identifying treatment options for individuals with SKS. We also began cataloging all known SKS variants to enhance understanding of genotypephenotype relationships and continued hosting events connecting families, clinicians, and researchers to advance progress toward effective treatments.

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Trantor Score

Financial Health Score (300–850) · Liquidity · Solvency · Sustainability · Efficiency

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Liquidity (40%) • Solvency (30%) • Sustainability (20%) • Efficiency (10%)

Financial Overview (2024)

Revenue Breakdown

Contributions & Grants $166,500

Program Service Revenue $0

Investment Income $1,487

Other Revenue $42

TOTAL REVENUE $168,029

Expense Breakdown

Grants Paid $0

Salaries & Benefits $62,901

Fundraising Expenses $33,648

Program Expenses $116,864

Other Expenses $102,998

TOTAL EXPENSES $165,899

Year-over-Year Comparison

	2024	2023	Change
Revenue	$168,029	$172,229	0.0%
Expenses	$165,899	$349,410	-0.5%
Net Income	$2,130	$-177,181	-1.0%

Key Indicators

✗ Grants to Organizations ✗ Grants to Individuals ✗ Lobbying ✗ Political Activity ✗ Foreign Activities ✗ Donor Advised Fund ✓ Schedule B Required

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Financial Health Indicators

Comprehensive financial analysis: Altman Z-Score, liquidity, solvency, sustainability, efficiency, and growth metrics

Financial Distress Indicator

Liquidity & Cash Position

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Altman Z-Score • Liquidity Ratios • Solvency Analysis • Growth Indicators • Efficiency Metrics

Governance

Voting Members

Independent Members

Employees

Volunteers

Governance Policies

✗ Conflict of Interest Policy

✗ Whistleblower Policy

✗ Document Retention Policy

Special Practices & Reported Activities

✗ Operated a School

✗ Operated a Hospital

✗ Provided First Class Travel

⚠ Reported Conflict of Interest

✗ Reported Asset Diversion

✗ Excess Benefit Transaction

✗ Made Political Expenditures

✗ Engaged in Lobbying

✗ Operated Donor Advised Fund

✗ Maintained Art Collections

✗ Filed Form 720

Compensation of Officers, Directors & Key Employees

Total Officers

$58,550

Total Directors

$36,050

Key Employees

Highest Compensated

reported

Name	Title	Hours/Week	Role	Reportable Comp	Other Comp	Total
Kristen Groseclose	Director of Development	40.00	Officer Director	$35,000	$1,050	$36,050
Susan Dando	Executive Director	40.00	Officer	$22,500	$0	$22,500
Cass Briggs	Director	2.00	Director	$0	$0	$0
Dan Lepore	Director	2.00	Director	$0	$0	$0
Krista Burris	Director	5.00	Director	$0	$0	$0
Matt Walsh	Director	1.00	Director	$0	$0	$0
Mike Groseclose	Treasurer and Interim Secretary	15.00	Officer Director	$0	$0	$0
Nazira Kelly	Vice President	5.00	Officer Director	$0	$0	$0
Sarah Lepore	President	7.00	Officer Director	$0	$0	$0

Note: Compensation data is self-reported by the organization on their Form 990. "Reportable Comp" includes salary, bonuses, and other reportable compensation from the organization and related organizations. "Other Comp" includes benefits, deferred compensation, and non-taxable benefits.

Historical Data

Year	Revenue	Expenses	Assets	Net Income
2025	$168,029	$165,899	$271,115	$2,130
2024	$172,229	$349,410	$275,600	$-177,181
2023	$74,750	$224,706	$509,150	$-149,956
2022	$655,714	$84,193	$596,122	$571,521