N-LOREM FOUNDATION

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Financial Vulnerability Assessment (Tuckman-Chang)

4 risk indicators measuring financial stability and operational resilience

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Financial Trends

Organization Details

Formation Year

2019

Legal Domicile

Principal Officer

STANLEY T CROOKE

Phone

7603788001

Tax Period

2025-01-01 to 2025-12-31

N-LOREM FOUNDATION, founded in 2019, is a mid-sized nonprofit in the Diseases & Disorders sector that reported $30.8M in total revenue in fiscal year 2025. Revenue surged 180% from the prior year, signaling strong growth momentum. The organization ran a surplus of $12.5M, a strong 40% operating margin.

Mission

N-LOREM'S MISSION IS CREATING INDIVIDUAL TREATMENTS FOR PATIENTS IN THE UNITED STATES WITH NANO-RARE DISEASES CAUSED BY GENETIC MUTATIONS THAT AFFECT APPROXIMATELY 30 PATIENTS IN THE WORLD.

Program Service Accomplishments

Program 1

Expenses: $16,488,232

TO PROVIDE ADVANCED, EXPERIMENTAL RNA-TARGETED MEDICINES, FREE OF CHARGE FOR LIFE, TO PATIENTS LIVING WITH NANO-RARE DISEASES.

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Trantor Score

Financial Health Score (300–850) · Liquidity · Solvency · Sustainability · Efficiency

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Liquidity (40%) • Solvency (30%) • Sustainability (20%) • Efficiency (10%)

Financial Overview (2025)

Revenue Breakdown

Contributions & Grants $30,574,294

Program Service Revenue $0

Investment Income $233,409

Other Revenue $0

TOTAL REVENUE $30,807,703

Expense Breakdown

Grants Paid $0

Salaries & Benefits $6,564,628

Fundraising Expenses $568,439

Program Expenses $16,488,232

Other Expenses $11,774,550

TOTAL EXPENSES $18,339,178

Year-over-Year Comparison

	2025	2024	Change
Revenue	$30,807,703	$11,008,892	+1.8%
Expenses	$18,339,178	$15,803,117	+0.2%
Net Income	$12,468,525	$-4,794,225	-3.6%

Key Indicators

✗ Grants to Organizations ✗ Grants to Individuals ✗ Lobbying ✗ Political Activity ✗ Foreign Activities ✗ Donor Advised Fund ✓ Schedule B Required

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Financial Health Indicators

Comprehensive financial analysis: Altman Z-Score, liquidity, solvency, sustainability, efficiency, and growth metrics

Financial Distress Indicator

Liquidity & Cash Position

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Altman Z-Score • Liquidity Ratios • Solvency Analysis • Growth Indicators • Efficiency Metrics

Governance

Voting Members

Independent Members

Employees

Volunteers

Governance Policies

✗ Conflict of Interest Policy

✗ Whistleblower Policy

✗ Document Retention Policy

Special Practices & Reported Activities

✗ Operated a School

✗ Operated a Hospital

✗ Provided First Class Travel

⚠ Reported Conflict of Interest

✗ Reported Asset Diversion

✗ Excess Benefit Transaction

✗ Made Political Expenditures

✗ Engaged in Lobbying

✗ Operated Donor Advised Fund

✗ Maintained Art Collections

✗ Filed Form 720

Compensation of Officers, Directors & Key Employees

Total Officers

$603,209

Total Directors

$106,250

Key Employees

Highest Compensated

reported

Name	Title	Hours/Week	Role	Reportable Comp	Other Comp	Total
SARAH GLASS	COO	40.00		$487,199	$14,619	$501,818
Julie Douville	VP ASO Disc & Dev	40.00		$353,113	$16,721	$369,834
LAURY MIGNON	ExDir Clinical Dev	40.00		$336,405	$28,469	$364,874
AMY WILLIFORD	VP FDN DEVELOPMENT	40.00		$295,060	$19,135	$314,195
VIRGINIA SANKEY	VP of Finance	40.00	Officer	$280,600	$22,080	$302,680
KIMBERLY BUTLER	Sr. Dir. of Op	40.00	Officer	$277,430	$23,099	$300,529
Megan Knutsen	SR DIRECTOR	40.00		$249,166	$13,567	$262,733
Konstantina Skourti-Stathaki	Exec Dir ASO Disc	40.00		$236,491	$7,095	$243,586
JOSEPH GLEESON MD	CMO	15.00	Director	$106,250	$0	$106,250
STANLEY T CROOKE MD PHD	CHAIR/CEO	0.15	Officer Director	$0	$0	$0
ROSANNE CROOKE PHD	Board Member	0.15	Director	$0	$0	$0
LYNNE PARSHALL ESQ	Treasurer	0.15	Officer Director	$0	$0	$0
Richard S Geary PHD	Board Member	0.15	Director	$0	$0	$0
C FRANK BENNETT PHD	Board Member	0.15	Director	$0	$0	$0
GENE YEO PHD MBA	Board Member	0.15	Director	$0	$0	$0
JASON WOOD	Board Member	0.15	Director	$0	$0	$0
JOSEPH LOSCALZO PHD	Board Member	0.15	Director	$0	$0	$0
ALAN LOTVIN MD	Board Member	0.15	Director	$0	$0	$0
ANDREW W LO PHD	Board Member	0.15	Director	$0	$0	$0
AMY MCCOOE	Board Member	0.15	Director	$0	$0	$0
FRANK SASINOWSKI MS MPH JD	Board Member	0.15	Director	$0	$0	$0
PAUL COMPTON	Board Member	0.15	Director	$0	$0	$0
NEIL SHNEIDER MD PHD	Board Member	0.15	Director	$0	$0	$0
MICHAEL HAYDEN MBCHB PHD	Board Member	0.15	Director	$0	$0	$0

Note: Compensation data is self-reported by the organization on their Form 990. "Reportable Comp" includes salary, bonuses, and other reportable compensation from the organization and related organizations. "Other Comp" includes benefits, deferred compensation, and non-taxable benefits.

Historical Data

Year	Revenue	Expenses	Assets	Net Income
2025	$30,807,703	$18,339,178	$22,298,749	$12,468,525
2024	$11,008,892	$15,803,117	$12,276,482	$-4,794,225
2023	$6,864,176	$14,216,401	$13,344,649	$-7,352,225
2022	$17,644,122	$8,953,463	$20,440,931	$8,690,659
2021	$2,993,351	$1,622,366	$10,417,681	$1,370,985
2020	$5,284,720	$395,655	$8,940,657	$4,889,065
2019	$4,122,962	$65,165	$4,114,000	$4,057,797