Shwachman-Diamond Syndrome Alliance Inc

EIN: 844654297 501(c)(3) Diseases & Disorders

Woburn, MA

Total Revenue
$288,814
Total Expenses
$126,464
Total Assets
$797,678
Net Assets
$797,678
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Financial Vulnerability Assessment (Tuckman-Chang)

4 risk indicators measuring financial stability and operational resilience

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Financial Trends

Organization Details

Formation Year
2020
Legal Domicile
DE
Principal Officer
Eszter Hars
Tax Period
2023-01-01 to 2023-12-31

Shwachman-Diamond Syndrome Alliance Inc, founded in 2020, is a small nonprofit in the Diseases & Disorders sector that reported $289K in total revenue in fiscal year 2023. Revenue decreased 14% compared to the prior year. The organization ran a surplus of $162K, a strong 56% operating margin.

Mission

Dedicated to building a world where Shwachman-Diamond Syndrome (SDS) is curable.

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Trantor Score

Financial Health Score (300–850) · Liquidity · Solvency · Sustainability · Efficiency

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Liquidity (40%) • Solvency (30%) • Sustainability (20%) • Efficiency (10%)

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Financial Overview (2023)

Revenue Breakdown

Contributions & Grants $270,083
Program Service Revenue $0
Investment Income $18,731
Other Revenue $0
TOTAL REVENUE $288,814

Expense Breakdown

Grants Paid $5,000
Salaries & Benefits $86,780
Fundraising Expenses $11,596
Program Expenses $97,378
Other Expenses $34,684
TOTAL EXPENSES $126,464

Year-over-Year Comparison

2023 2022 Change
Revenue $288,814 $336,751 -0.1%
Expenses $126,464 $102,768 +0.2%
Net Income $162,350 $233,983 -0.3%
Key Indicators
Grants to Organizations Grants to Individuals Lobbying Political Activity Foreign Activities Donor Advised Fund Schedule B Required
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Financial Health Indicators

Comprehensive financial analysis: Altman Z-Score, liquidity, solvency, sustainability, efficiency, and growth metrics

Financial Distress Indicator

Liquidity & Cash Position

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Altman Z-Score • Liquidity Ratios • Solvency Analysis • Growth Indicators • Efficiency Metrics

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Governance

Voting Members
5
Independent Members
4
Employees
1
Volunteers
10

Governance Policies

Conflict of Interest Policy
Whistleblower Policy
Document Retention Policy

Special Practices & Reported Activities

Operated a School
Operated a Hospital
Provided First Class Travel
Reported Conflict of Interest
Reported Asset Diversion
Excess Benefit Transaction
Made Political Expenditures
Engaged in Lobbying
Operated Donor Advised Fund
Maintained Art Collections
Filed Form 720

Compensation of Officers, Directors & Key Employees

Total Officers
3
$80,000
Total Directors
5
$80,000
Key Employees
0
$0
Highest Compensated
0
reported
Name Title Hours/Week Role Reportable Comp Other Comp Total
Eszter Hars President 35.00
Officer Director
$80,000 $0 $80,000
Indrani Chatterjee Member 1.00
Director
$0 $0 $0
Dora Erdos Member 1.00
Director
$0 $0 $0
Marcelo G DeCastro Secretary 1.00
Officer Director
$0 $0 $0
William Chen Treasurer 1.00
Officer Director
$0 $0 $0
Note: Compensation data is self-reported by the organization on their Form 990. "Reportable Comp" includes salary, bonuses, and other reportable compensation from the organization and related organizations. "Other Comp" includes benefits, deferred compensation, and non-taxable benefits.

Historical Data

Year Revenue Expenses Assets Net Income
2024 No data No data No data No data
2023 $288,814 $126,464 $797,678 $162,350
2022 $336,751 $102,768 $635,328 $233,983
2021 $387,568 $1,811 $401,345 $385,757
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