The MOG Project Inc

Educational Events Programs We have an International MOGAD Patient Summit and a US MOGAD Patient Summit Program that provides education for MOGAD Patients worldwide and in the US. Patients can attend in person or see the event livestreamed. They can also participate in the event by asking questions to the presenters. Presenters include top experts in the disease worldwide. These programs are currently based in the US and streamed live globally. We also provide a website and YouTube Channel filled with written materials, infographics and videos aimed at educating patients, caregivers and medical professionals. In addition, we hold a Blog space for articles written to educate patients on research articles and patient experience so that they can know what others have gone through, informing them better on what to expect with disease management. We also provide a great deal of printed materials for patients that we distribute at events and send to clinics treating MOGAD all over the world.

Research Programs We work to affect research in MOGAD through patient participation in surveys in collaboration with reputable researchers/industry partners to help guide research to better understand the patient experience given that this is a newly discovered disease that requires better understanding of what symptoms patients experience and how their disease manifests over time. We also use these surveys to understand what the patient population needs in various world areas, including underserved communities. We also provide, when available, funds we raised as grants for adjudicated research as part of our Research for Rare program, which covers two types of grants one that funds research in impactful areas that will provide seed data for larger grants available at institutions like NIH, and another that funds infrastucture, such as registries for data collection and management.