ARIZONA HEMOPHILIA ASSOCIATION INC

EIN: 860209257 501(c)(3) Diseases & Disorders

PHOENIX, AZ

Total Revenue
$1,284,868
Total Expenses
$1,412,144
Total Assets
$1,759,462
Net Assets
$1,097,250
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Financial Trends

Organization Details

Formation Year
1967
Legal Domicile
AZ
Principal Officer
LEIGH GOLDSTEIN
Tax Period
2023-07-01 to 2024-06-30

ARIZONA HEMOPHILIA ASSOCIATION INC, founded in 1967, is a community nonprofit in the Diseases & Disorders sector that reported $1.3M in total revenue in fiscal year 2023. Revenue decreased 19% compared to the prior year.

Mission

THE AHA IS DEDICATED TO ENHANCING THE QUALITY OF LIFE FOR THOSE LIVING WITH CHRONIC BLEEDING DISORDERS WHILE ADVOCATING FOR A CURE.

Program Service Accomplishments

Program 1
Expenses: $814,698 Revenue: $2,446

COMMUNITY EDUCATION - PROMOTE COMMUNITY AWARENESS THROUGH VARIOUS CONFERENCES AND OTHER MEDIA:1. ANNUAL STATEWIDE EDUCATIONAL SYMPOSIUM - BRINGS TOGETHER THOSE WITH BLEEDING DISORDERS AND THEIR...

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COMMUNITY EDUCATION - PROMOTE COMMUNITY AWARENESS THROUGH VARIOUS CONFERENCES AND OTHER MEDIA:1. ANNUAL STATEWIDE EDUCATIONAL SYMPOSIUM - BRINGS TOGETHER THOSE WITH BLEEDING DISORDERS AND THEIR FAMILIES FROM ACROSS THE STATE TO PROVIDE EDUCATION TO HELP THEM BETTER MANAGE THIS CHRONIC CONDITION.2. CONDUCTED AN ADVOCACY SUMMIT CONFERENCE TO PROMOTE AWARENESS WITHIN THE BLEEDING DISORDER COMMUNITY AND THE GENERAL PUBLIC.3. CONDUCTED AN HISPANIC HERITAGE DAY WITH THE HISPANIC POPULATION AFFECTED BY BLEEDING DISORDERS TO EDUCATE AND SUPPORT THEIR UNIQUE STRUGGLES IN THEIR NATIVE LANGUAGE.4. CONDUCTED TWO (NOW) CONFERENCES (NATIONAL EDUCATIONAL CONFERENCE FOR INDIVIDUALS AND FAMILIES WHO ARE LIVING WITH VONWILLEBRANDS).

Program 2
Expenses: $259,964

COMMUNITY SUPPORT PROGRAMS - PROVIDE EDUCATION AND SUPPORT GROUP MEETINGS INCLUDING:1. QUARTERLY MEETINGS FOR THE COMMUNITY AS A WHOLE THAT INCLUDE EDUCATION, PHARMACEUTICAL INFORMATION, AND TIME FOR...

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COMMUNITY SUPPORT PROGRAMS - PROVIDE EDUCATION AND SUPPORT GROUP MEETINGS INCLUDING:1. QUARTERLY MEETINGS FOR THE COMMUNITY AS A WHOLE THAT INCLUDE EDUCATION, PHARMACEUTICAL INFORMATION, AND TIME FOR INTERACTION.2. EDUCATIONAL MEETINGS THAT INCLUDED: A. LEARNING TO DISCLOSE YOUR BLEEDING DISORDER IN A SAFE WAY. B. UNDERSTANDING INSURANCE AND OPTIONS AVAILABLE TO OUR COMMUNITY. C. HOW TO INTERACT WITH LEGISLATORS TO PROMOTE INSURANCE REFORM. D. NUTRITION AND EXERCISE - HOW TO IMPROVE QUALITY OF LIFE. E. MENTAL HEALTH - HOW TO IMPROVE QUALITY OF LIFE. F. EDUCATIONAL MEETINGS FOR SPANISH-SPEAKING COMMUNITY. G. ON-GOING PROGRAM FOR AT-RISK YOUTH.3. YOUTH CAMPS:

Program 3
Expenses: $111,014

FAMILY ASSISTANCE - PROVIDE EMERGENCY AND TEMPORARY FINANCIAL ASSISTANCE TO HEMOPHILIA PATIENTS AND THEIR FAMILIES. LIFELINE- PROVIDES ASSISTANCE FOR MEDICAL BILLS, INSURANCE PREMIUMS AND COBRA...

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FAMILY ASSISTANCE - PROVIDE EMERGENCY AND TEMPORARY FINANCIAL ASSISTANCE TO HEMOPHILIA PATIENTS AND THEIR FAMILIES. LIFELINE- PROVIDES ASSISTANCE FOR MEDICAL BILLS, INSURANCE PREMIUMS AND COBRA PAYMENT ASSISTANCE FOR THE COMMUNITY.

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Liquidity (40%) • Solvency (30%) • Sustainability (20%) • Efficiency (10%)

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Financial Overview (2023)

Revenue Breakdown

Contributions & Grants $1,216,165
Program Service Revenue $2,446
Investment Income $36,106
Other Revenue $30,151
TOTAL REVENUE $1,284,868

Expense Breakdown

Grants Paid $19,510
Salaries & Benefits $379,551
Fundraising Expenses $112,282
Program Expenses $1,190,390
Other Expenses $1,013,083
TOTAL EXPENSES $1,412,144

Year-over-Year Comparison

2023 2022 Change
Revenue $1,284,868 $1,594,171 -0.2%
Expenses $1,412,144 $1,586,449 -0.1%
Net Income $-127,276 $7,722 -17.5%
Key Indicators
Grants to Organizations Grants to Individuals Lobbying Political Activity Foreign Activities Donor Advised Fund Schedule B Required
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Governance

Voting Members
10
Independent Members
10
Employees
8
Volunteers
100

Governance Policies

Conflict of Interest Policy
Whistleblower Policy
Document Retention Policy

Special Practices & Reported Activities

Operated a School
Operated a Hospital
Provided First Class Travel
Reported Conflict of Interest
Reported Asset Diversion
Excess Benefit Transaction
Made Political Expenditures
Engaged in Lobbying
Operated Donor Advised Fund
Maintained Art Collections
Filed Form 720

Compensation of Officers, Directors & Key Employees

Total Officers
6
$130,068
Total Directors
13
$0
Key Employees
0
$0
Highest Compensated
0
reported
Name Title Hours/Week Role Reportable Comp Other Comp Total
LEIGH GOLDSTEIN EXECUTIVE DIRECTOR 40.00
Officer
$129,535 $533 $130,068
GRADY BRENNAN DIRECTOR 2.00
Director
$0 $0 $0
SONIA VOHNOUT DIRECTOR 2.00
Director
$0 $0 $0
TIM TSAI DIRECOTR 2.00
Director
$0 $0 $0
RICK HALL DIRECTOR 2.00
Director
$0 $0 $0
HEATHER POORE DIRECTOR 2.00
Director
$0 $0 $0
JAIME NEILSON DIRECTOR 2.00
Director
$0 $0 $0
SEAN OKEEFE DIRECTOR 2.00
Director
$0 $0 $0
KARIN GERLACH SECRETARY 2.00
Director
$0 $0 $0
ELLEN OWENS-KARCSAY CHAIR 2.00
Officer Director
$0 $0 $0
WILLIAM KIRSCHNER CHAIR 2.00
Officer Director
$0 $0 $0
CHELSEA GUFFY SECRETARY 2.00
Officer Director
$0 $0 $0
EVAN RAHAEUSER VICE CHAIR 2.00
Officer Director
$0 $0 $0
RACHEL VERDUGO TREASURER 2.00
Officer Director
$0 $0 $0
Note: Compensation data is self-reported by the organization on their Form 990. "Reportable Comp" includes salary, bonuses, and other reportable compensation from the organization and related organizations. "Other Comp" includes benefits, deferred compensation, and non-taxable benefits.

Historical Data

Year Revenue Expenses Assets Net Income
2025 No data No data No data No data
2024 $1,284,868 $1,412,144 $1,759,462 $-127,276
2023 $1,594,171 $1,586,449 $1,883,270 $7,722
2022 $1,135,762 $995,371 $1,897,473 $140,391
2021 $1,644,664 $1,279,766 $2,376,389 $364,898
2019 $2,335,637 $2,280,326 $1,703,702 $55,311
2018 $2,756,798 $2,461,987 $1,753,319 $294,811
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