RARE DISEASE COMPANY COALITION INC

EIN: 862999172 Education

WASHINGTON, DC

Total Revenue
$595,425
Total Expenses
$953,918
Total Assets
$1,372,157
Net Assets
$223,383
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Financial Vulnerability Assessment (Tuckman-Chang)

4 risk indicators measuring financial stability and operational resilience

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Financial Trends

Organization Details

Formation Year
2021
Legal Domicile
DC
Principal Officer
CURT OLTMANS
Phone
2028097357
Tax Period
2024-01-01 to 2024-12-31

RARE DISEASE COMPANY COALITION INC, founded in 2021, is a small nonprofit in the Education sector that reported $595K in total revenue in fiscal year 2024. Revenue fell 38% from the prior year — a significant decline worth monitoring. Expenses of $954K exceeded revenue, resulting in a 60% operating deficit.

Mission

SEE PART III, LINE 1.

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Trantor Score

Financial Health Score (300–850) · Liquidity · Solvency · Sustainability · Efficiency

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Liquidity (40%) • Solvency (30%) • Sustainability (20%) • Efficiency (10%)

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Financial Overview (2024)

Revenue Breakdown

Contributions & Grants $0
Program Service Revenue $595,000
Investment Income $0
Other Revenue $425
TOTAL REVENUE $595,425

Expense Breakdown

Grants Paid $0
Salaries & Benefits $0
Fundraising Expenses $0
Other Expenses $953,918
TOTAL EXPENSES $953,918

Year-over-Year Comparison

2024 2023 Change
Revenue $595,425 $958,500 -0.4%
Expenses $953,918 $853,798 +0.1%
Net Income $-358,493 $104,702 -4.4%
Key Indicators
✗ Grants to Organizations ✗ Grants to Individuals ✗ Lobbying ✗ Political Activity ✗ Foreign Activities ✗ Donor Advised Fund ✗ Schedule B Required
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Financial Health Indicators

Comprehensive financial analysis: Altman Z-Score, liquidity, solvency, sustainability, efficiency, and growth metrics

Financial Distress Indicator

Liquidity & Cash Position

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Altman Z-Score • Liquidity Ratios • Solvency Analysis • Growth Indicators • Efficiency Metrics

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Governance

Voting Members
26
Independent Members
26
Employees
N/A
Volunteers
26

Governance Policies

✗ Conflict of Interest Policy
✗ Whistleblower Policy
✗ Document Retention Policy

Special Practices & Reported Activities

✗ Operated a School
✗ Operated a Hospital
✗ Provided First Class Travel
✗ Reported Conflict of Interest
✗ Reported Asset Diversion
✗ Excess Benefit Transaction
✗ Made Political Expenditures
✗ Engaged in Lobbying
✗ Operated Donor Advised Fund
✗ Maintained Art Collections
✗ Filed Form 720

Compensation of Officers, Directors & Key Employees

Total Officers
7
$0
Total Directors
29
$0
Key Employees
0
$0
Highest Compensated
0
reported
Name Title Hours/Week Role Reportable Comp Other Comp Total
CURT OLTMANS CHAIR 2.00
Officer Director
$0 $0 $0
DEL LEBEL VICE-CHAIR 2.00
Officer Director
$0 $0 $0
CHRIS PORTER TREASURER 2.00
Officer Director
$0 $0 $0
KATHY PEREZ SECRETARY 2.00
Officer Director
$0 $0 $0
DIANE BERRY MEMBER, COMMERCIAL AT-LARGE 2.00
Officer Director
$0 $0 $0
MAX BRONSTEIN MEMBER PRE- COMMERCIAL AT-LARGE - UNTIL 06/2024 2.00
Officer Director
$0 $0 $0
MATTHEW WINTON MEMBER, PRE-COMMERCIAL AT-LARGE 2.00
Officer Director
$0 $0 $0
MEG ALEXANDER BOARD MEMBER - UNTIL 09/2024 0.50
Director
$0 $0 $0
RAQUEL CABO BOARD MEMBER FROM 09/2024 TO 12/2024 0.50
Director
$0 $0 $0
GINA CIOFFI BOARD MEMBER 0.50
Director
$0 $0 $0
ERIC ENDICOTT BOARD MEMBER 0.50
Director
$0 $0 $0
CYNDI GOSS BOARD MEMBER FROM 11/2024 TO 12/2024 0.50
Director
$0 $0 $0
BEN HARSHBARGER BOARD MEMBER 0.50
Director
$0 $0 $0
SUSANNA HASTINGS BOARD MEMBER FROM 07/2024 TO 12/2024 0.50
Director
$0 $0 $0
DAVELYN HOOD BOARD MEMBER - UNTIL 09/2024 0.50
Director
$0 $0 $0
LISA KAHLMAN BOARD MEMBER 0.50
Director
$0 $0 $0
JACQUI KIRBY BOARD MEMBER 0.50
Director
$0 $0 $0
KATIE LANDES BOARD MEMBER 0.50
Director
$0 $0 $0
KATHRYN LOWELL BOARD MEMBER 0.50
Director
$0 $0 $0
AMANDA MALAKOFF BOARD MEMBER 0.50
Director
$0 $0 $0
PETER NORMAN BOARD MEMBER FROM 09/2024 TO 12/2024 0.50
Director
$0 $0 $0
DEIRDRE PARSONS BOARD MEMBER 0.50
Director
$0 $0 $0
VISH SESHADRI BOARD MEMBER 0.50
Director
$0 $0 $0
SUSAN STEWART BOARD MEMBER FROM 09/2024 TO 12/2024 0.50
Director
$0 $0 $0
FRANCESCA TEDESCO BOARD MEMBER 0.50
Director
$0 $0 $0
IZZY TYSZLER BOARD MEMBER 0.50
Director
$0 $0 $0
LAUREN WALRATH BOARD MEMBER 0.50
Director
$0 $0 $0
SONYA WEIGLE BOARD MEMBER 0.50
Director
$0 $0 $0
JILL YERSAK BOARD MEMBER 0.50
Director
$0 $0 $0
Note: Compensation data is self-reported by the organization on their Form 990. "Reportable Comp" includes salary, bonuses, and other reportable compensation from the organization and related organizations. "Other Comp" includes benefits, deferred compensation, and non-taxable benefits.

Historical Data

Year Revenue Expenses Assets Net Income
2024 $595,425 $953,918 $1,372,157 $-358,493
2023 $958,500 $853,798 $581,876 $104,702
2022 $1,117,083 $731,060 $477,461 $386,023
2021 $401,249 $310,097 $91,152 $91,152
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