RARE DISEASE COMPANY COALITION INC

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Financial Vulnerability Assessment (Tuckman-Chang)

4 risk indicators measuring financial stability and operational resilience

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Financial Trends

Organization Details

Formation Year

2021

Legal Domicile

Principal Officer

CURT OLTMANS

Phone

2028097357

Tax Period

2024-01-01 to 2024-12-31

RARE DISEASE COMPANY COALITION INC, founded in 2021, is a small nonprofit in the Education sector that reported $595K in total revenue in fiscal year 2024. Revenue fell 38% from the prior year — a significant decline worth monitoring. Expenses of $954K exceeded revenue, resulting in a 60% operating deficit.

Mission

THE MISSION OF THE RARE DISEASE COMPANY COALITION IS TO STIMULATE DEVELOPMENT OF AND ACCESS TO RARE DISEASE TREATMENTS.

Program Service Accomplishments

Program 1

PROVIDE POLICY ADVOCACY SERVICES FOR RARE DISEASE COMPANIES AT THE FEDERAL LEVEL.

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Trantor Score

Financial Health Score (300–850) · Liquidity · Solvency · Sustainability · Efficiency

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Liquidity (40%) • Solvency (30%) • Sustainability (20%) • Efficiency (10%)

Financial Overview (2024)

Revenue Breakdown

Contributions & Grants $0

Program Service Revenue $595,000

Investment Income $0

Other Revenue $425

TOTAL REVENUE $595,425

Expense Breakdown

Grants Paid $0

Salaries & Benefits $0

Fundraising Expenses $0

Other Expenses $953,918

TOTAL EXPENSES $953,918

Year-over-Year Comparison

	2024	2023	Change
Revenue	$595,425	$958,500	-0.4%
Expenses	$953,918	$853,798	+0.1%
Net Income	$-358,493	$104,702	-4.4%

Key Indicators

✗ Grants to Organizations ✗ Grants to Individuals ✗ Lobbying ✗ Political Activity ✗ Foreign Activities ✗ Donor Advised Fund ✗ Schedule B Required

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Financial Health Indicators

Comprehensive financial analysis: Altman Z-Score, liquidity, solvency, sustainability, efficiency, and growth metrics

Financial Distress Indicator

Liquidity & Cash Position

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Altman Z-Score • Liquidity Ratios • Solvency Analysis • Growth Indicators • Efficiency Metrics

Governance

Voting Members

Independent Members

Employees

N/A

Volunteers

Governance Policies

✗ Conflict of Interest Policy

✗ Whistleblower Policy

✗ Document Retention Policy

Special Practices & Reported Activities

✗ Operated a School

✗ Operated a Hospital

✗ Provided First Class Travel

✗ Reported Conflict of Interest

✗ Reported Asset Diversion

✗ Excess Benefit Transaction

✗ Made Political Expenditures

✗ Engaged in Lobbying

✗ Operated Donor Advised Fund

✗ Maintained Art Collections

✗ Filed Form 720

Compensation of Officers, Directors & Key Employees

Total Officers

Total Directors

Key Employees

Highest Compensated

reported

Name	Title	Hours/Week	Role	Reportable Comp	Other Comp	Total
CURT OLTMANS	CHAIR	2.00	Officer Director	$0	$0	$0
DEL LEBEL	VICE-CHAIR	2.00	Officer Director	$0	$0	$0
CHRIS PORTER	TREASURER	2.00	Officer Director	$0	$0	$0
KATHY PEREZ	SECRETARY	2.00	Officer Director	$0	$0	$0
DIANE BERRY	MEMBER, COMMERCIAL AT-LARGE	2.00	Officer Director	$0	$0	$0
MAX BRONSTEIN MEMBER PRE-	COMMERCIAL AT-LARGE - UNTIL 06/2024	2.00	Officer Director	$0	$0	$0
MATTHEW WINTON	MEMBER, PRE-COMMERCIAL AT-LARGE	2.00	Officer Director	$0	$0	$0
MEG ALEXANDER	BOARD MEMBER - UNTIL 09/2024	0.50	Director	$0	$0	$0
RAQUEL CABO BOARD MEMBER	FROM 09/2024 TO 12/2024	0.50	Director	$0	$0	$0
GINA CIOFFI	BOARD MEMBER	0.50	Director	$0	$0	$0
ERIC ENDICOTT	BOARD MEMBER	0.50	Director	$0	$0	$0
CYNDI GOSS BOARD MEMBER	FROM 11/2024 TO 12/2024	0.50	Director	$0	$0	$0
BEN HARSHBARGER	BOARD MEMBER	0.50	Director	$0	$0	$0
SUSANNA HASTINGS BOARD MEMBER	FROM 07/2024 TO 12/2024	0.50	Director	$0	$0	$0
DAVELYN HOOD	BOARD MEMBER - UNTIL 09/2024	0.50	Director	$0	$0	$0
LISA KAHLMAN	BOARD MEMBER	0.50	Director	$0	$0	$0
JACQUI KIRBY	BOARD MEMBER	0.50	Director	$0	$0	$0
KATIE LANDES	BOARD MEMBER	0.50	Director	$0	$0	$0
KATHRYN LOWELL	BOARD MEMBER	0.50	Director	$0	$0	$0
AMANDA MALAKOFF	BOARD MEMBER	0.50	Director	$0	$0	$0
PETER NORMAN BOARD MEMBER	FROM 09/2024 TO 12/2024	0.50	Director	$0	$0	$0
DEIRDRE PARSONS	BOARD MEMBER	0.50	Director	$0	$0	$0
VISH SESHADRI	BOARD MEMBER	0.50	Director	$0	$0	$0
SUSAN STEWART BOARD MEMBER	FROM 09/2024 TO 12/2024	0.50	Director	$0	$0	$0
FRANCESCA TEDESCO	BOARD MEMBER	0.50	Director	$0	$0	$0
IZZY TYSZLER	BOARD MEMBER	0.50	Director	$0	$0	$0
LAUREN WALRATH	BOARD MEMBER	0.50	Director	$0	$0	$0
SONYA WEIGLE	BOARD MEMBER	0.50	Director	$0	$0	$0
JILL YERSAK	BOARD MEMBER	0.50	Director	$0	$0	$0

Note: Compensation data is self-reported by the organization on their Form 990. "Reportable Comp" includes salary, bonuses, and other reportable compensation from the organization and related organizations. "Other Comp" includes benefits, deferred compensation, and non-taxable benefits.

Historical Data

Year	Revenue	Expenses	Assets	Net Income
2024	$595,425	$953,918	$1,372,157	$-358,493
2023	$958,500	$853,798	$581,876	$104,702
2022	$1,117,083	$731,060	$477,461	$386,023
2021	$401,249	$310,097	$91,152	$91,152