The Assoc of Hidradenitis Suppurativa and Inflammatory Disease

EIN: 873340305 501(c)(3) Unknown

Ypsilanti, MI

Total Revenue
$304,570
Total Expenses
$324,241
Total Assets
$23,861
Net Assets
$23,861
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Financial Trends

Organization Details

Formation Year
2021
Legal Domicile
MI
Principal Officer
Jasmine Ivanna Espy
Phone
2489259816
Tax Period
2024-01-01 to 2024-12-31

The Assoc of Hidradenitis Suppurativa and Inflammatory Disease, founded in 2021, is a small nonprofit in the Unknown sector that reported $305K in total revenue in fiscal year 2024. Revenue surged 233% from the prior year, signaling strong growth momentum.

Mission

We empower individuals with Hidradenitis Suppurativa HS inflammatory diseases to reclaim their lives through holistic resources personalized care that address physical, emotional, mental, and spiritual challenges. Committed to health equity and policy reform, we advocate for accessible and inclusive care while fostering community.

Program Service Accomplishments

Program 1
Expenses: $196,393

Summits Reclaim Hidradenitis Suppurativa HS Summit is a patient-centered event created to educate, advocate for, and heal patients through a series of sessions led by top HS specialists, influencers...

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Summits Reclaim Hidradenitis Suppurativa HS Summit is a patient-centered event created to educate, advocate for, and heal patients through a series of sessions led by top HS specialists, influencers, and somatic practitioners. What started as a virtual event has now evolved into a three-day in-person/ virtual hybrid summit, providing a safe and supportive space for individuals with HS and other inflammatory diseases to learn, heal, and grow physically, mentally, and emotionally. This summit empowers participants to better understand their condition, its causes, and potential short - and long-term solutions. It fosters connections with HS specialists and other HS Warriors, making expert care more accessible and combating the isolation and shame often felt by those living with HS. Through deep knowledge and lived experience of both scientific and patient perspectives, we aim to show the HS community that they deserve to feel supported, understood, and valued as patients and as people.

Program 2
Expenses: $20,636

Education Awareness The organizaiton aims to improve awareness, facilitate timely diagnosis, and guide patients through culturally competent care pathways. This is accomplished by participating in...

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Education Awareness The organizaiton aims to improve awareness, facilitate timely diagnosis, and guide patients through culturally competent care pathways. This is accomplished by participating in community events, establishing local partnerships, and delivering impactful resources.The Ambassador Program is made up of highly engaged patients with HS and inflammatory diseases, providing the community a voice and a platform to share their experiences and connect with others. Through a volunteer network of advocates and influencers, we are bringing together patients at various points in their journeys and willing to share their experiences, knowledge, concerns, and hopes with others. The My Gold Lining is a medical and educational documentary delving into the lives of two women battling hidradenitis suppurativa. The organization also hosts a podcast to bring about awareness and educaiton.

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Trantor Score

Financial Health Score (300–850) · Liquidity · Solvency · Sustainability · Efficiency

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Liquidity (40%) • Solvency (30%) • Sustainability (20%) • Efficiency (10%)

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Financial Overview (2024)

Revenue Breakdown

Contributions & Grants $304,570
Program Service Revenue $0
Investment Income $0
Other Revenue $0
TOTAL REVENUE $304,570

Expense Breakdown

Grants Paid $0
Salaries & Benefits $0
Fundraising Expenses $0
Program Expenses $217,029
Other Expenses $324,241
TOTAL EXPENSES $324,241

Year-over-Year Comparison

2024 2023 Change
Revenue $304,570 $91,552 +2.3%
Expenses $324,241 $48,020 +5.8%
Net Income $-19,671 $43,532 -1.5%
Key Indicators
Grants to Organizations Grants to Individuals Lobbying Political Activity Foreign Activities Donor Advised Fund Schedule B Required
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Governance

Voting Members
6
Independent Members
6
Employees
N/A
Volunteers
25

Governance Policies

Conflict of Interest Policy
Whistleblower Policy
Document Retention Policy

Special Practices & Reported Activities

Operated a School
Operated a Hospital
Provided First Class Travel
Reported Conflict of Interest
Reported Asset Diversion
Excess Benefit Transaction
Made Political Expenditures
Engaged in Lobbying
Operated Donor Advised Fund
Maintained Art Collections
Filed Form 720

Compensation of Officers, Directors & Key Employees

Total Officers
3
$0
Total Directors
6
$0
Key Employees
0
$0
Highest Compensated
0
reported
Name Title Hours/Week Role Reportable Comp Other Comp Total
Muriel Espy Secretary 002.00
Officer Director
$0 $0 $0
Jerome Espy Sr Treasurer 002.00
Officer Director
$0 $0 $0
Martin DeBenedetto Patient Engagement Advisor 005.00
Director
$0 $0 $0
Lynn Petukhova Secientific Advisor 002.00
Director
$0 $0 $0
Yasmeen Yount Patient Advocate 005.00
Director
$0 $0 $0
Dr Iltefat Hamzavi Director 002.00
Director
$0 $0 $0
Jasmine Espy CEO / President 040.00
Officer
$0 $0 $0
Note: Compensation data is self-reported by the organization on their Form 990. "Reportable Comp" includes salary, bonuses, and other reportable compensation from the organization and related organizations. "Other Comp" includes benefits, deferred compensation, and non-taxable benefits.

Historical Data

Year Revenue Expenses Assets Net Income
2024 $304,570 $324,241 $23,861 $-19,671
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