UNDIAGNOSED DISEASES NETWORK FOUNDATION

EIN: 873474254 501(c)(3) Diseases & Disorders

WASHINGTON, DC

Total Revenue
$328,998
Total Expenses
$1,427,906
Total Assets
$1,444,511
Net Assets
$1,397,143
🔒

Financial Vulnerability Assessment (Tuckman-Chang)

4 risk indicators measuring financial stability and operational resilience

Sign in with your work email to view Tuckman-Chang indicators

Sign In — Free (10 views/day)

Financial Trends

Organization Details

Formation Year
2021
Legal Domicile
DC
Principal Officer
DANIELLE CARNIVAL
Phone
2025994465
Tax Period
2024-01-01 to 2024-12-31

UNDIAGNOSED DISEASES NETWORK FOUNDATION, founded in 2021, is a small nonprofit in the Diseases & Disorders sector that reported $329K in total revenue in fiscal year 2024. Revenue fell 87% from the prior year — a significant decline worth monitoring. Expenses of $1.4M exceeded revenue, resulting in a 334% operating deficit.

Mission

THE UDNF'S MISSION IS TO IMPROVE ACCESS TO DIAGNOSIS, RESEARCH, AND CARE FOR ALL WITH UNDIAGNOSED AND ULTRA-RARE CONDITIONS. WE AIM TO FOSTER COLLABORATION BETWEEN PATIENTS, CLINICIANS, AND SCIENTISTS TO ENHANCE THE QUALITY OF LIFE OF UNDIAGNOSED PATIENTS. WE DO THIS BY MITIGATING BARRIERS TO EQUITY AND ACCESS IN HEALTHCARE; SETTING STANDARDS FOR PATIENT MANAGEMENT; AND BRIDGING DIAGNOSIS AND THERAPEUTICS AS WELL AS RESEARCH AND CLINICAL CARE IN UNDIAGNOSED AND ULTRA-RARE DISEASES.

🔒

Trantor Score

Financial Health Score (300–850) · Liquidity · Solvency · Sustainability · Efficiency

Sign in to view Trantor Score and financial metrics

Liquidity (40%) • Solvency (30%) • Sustainability (20%) • Efficiency (10%)

Sign In — Free (10 views/day)

Financial Overview (2024)

Revenue Breakdown

Contributions & Grants $324,360
Program Service Revenue $0
Investment Income $4,638
Other Revenue $0
TOTAL REVENUE $328,998

Expense Breakdown

Grants Paid $2,500
Salaries & Benefits $354,309
Fundraising Expenses $7,878
Program Expenses $1,399,761
Other Expenses $1,071,097
TOTAL EXPENSES $1,427,906

Year-over-Year Comparison

2024 2023 Change
Revenue $328,998 $2,579,825 -0.9%
Expenses $1,427,906 $218,337 +5.5%
Net Income $-1,098,908 $2,361,488 -1.5%
Key Indicators
Grants to Organizations Grants to Individuals Lobbying Political Activity Foreign Activities Donor Advised Fund Schedule B Required
🔒

Financial Health Indicators

Comprehensive financial analysis: Altman Z-Score, liquidity, solvency, sustainability, efficiency, and growth metrics

Financial Distress Indicator

Liquidity & Cash Position

Sign in to view all financial metrics

Altman Z-Score • Liquidity Ratios • Solvency Analysis • Growth Indicators • Efficiency Metrics

Sign In

Governance

Voting Members
15
Independent Members
14
Employees
N/A
Volunteers
25

Governance Policies

Conflict of Interest Policy
Whistleblower Policy
Document Retention Policy

Special Practices & Reported Activities

Operated a School
Operated a Hospital
Provided First Class Travel
Reported Conflict of Interest
Reported Asset Diversion
Excess Benefit Transaction
Made Political Expenditures
Engaged in Lobbying
Operated Donor Advised Fund
Maintained Art Collections
Filed Form 720

Compensation of Officers, Directors & Key Employees

Total Officers
4
$352,756
Total Directors
15
$1,554
Key Employees
0
$0
Highest Compensated
0
reported
Name Title Hours/Week Role Reportable Comp Other Comp Total
AMY GRAY CEO 40
Officer
$352,756 $0 $352,756
STEPHANIE TOMLINSON BOARD MEMBER 2
Director
$1,554 $0 $1,554
MEGHAN HALLEY BOARD CHAIRMAN 10
Officer Director
$0 $0 $0
F SESSIONS COLE SECRETARY 10
Officer Director
$0 $0 $0
TROY EVANS TREASURER 10
Officer Director
$0 $0 $0
ANNE PARISER BOARD MEMBER 2
Director
$0 $0 $0
EFFIE PARKS BOARD MEMBER 2
Director
$0 $0 $0
GERALD SWEENEY BOARD MEMBER 2
Director
$0 $0 $0
LILIANA FERNANDEZ BOARD MEMBER 2
Director
$0 $0 $0
PARVATHY KRISHNAN BOARD MEMBER 2
Director
$0 $0 $0
SIKA DUNYOH BOARD MEMBER 2
Director
$0 $0 $0
STEPHAN ZUCHNER BOARD MEMBER 2
Director
$0 $0 $0
TOM KELLEY BOARD MEMBER 2
Director
$0 $0 $0
TANIA SIMONCELLI BOARD MEMBER 2
Director
$0 $0 $0
JESSICA SWANSON BORAD MEMBER 2
Director
$0 $0 $0
KELLY CERVENTES BOARD MEMBER 2
Director
$0 $0 $0
Note: Compensation data is self-reported by the organization on their Form 990. "Reportable Comp" includes salary, bonuses, and other reportable compensation from the organization and related organizations. "Other Comp" includes benefits, deferred compensation, and non-taxable benefits.

Historical Data

Year Revenue Expenses Assets Net Income
2024 $328,998 $1,427,906 $1,444,511 $-1,098,908
2023 $2,579,825 $218,337 $2,406,337 $2,361,488
Explore More Nonprofits
Top 100 Nonprofits in District of Columbia Largest U.S. Nonprofits Best Rated Nonprofits Most Efficient Nonprofits

Compare UNDIAGNOSED DISEASES NETWORK FOUNDATION with other nonprofits in District of Columbia and across the country.