UNITED PORPHYRIAS ASSOCIATION INC

EIN: 874143089 501(c)(3) Diseases & Disorders

BETHESDA, MD

Total Revenue
$458,112
Total Expenses
$254,907
Total Assets
$1,168,122
Net Assets
$1,164,774
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Financial Vulnerability Assessment (Tuckman-Chang)

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Financial Trends

Organization Details

Formation Year
2021
Legal Domicile
MD
Phone
8008681292
Tax Period
2024-07-01 to 2024-12-31

UNITED PORPHYRIAS ASSOCIATION INC, founded in 2021, is a small nonprofit in the Diseases & Disorders sector that reported $458K in total revenue in fiscal year 2024. Revenue fell 39% from the prior year — a significant decline worth monitoring. The organization ran a surplus of $203K, a strong 44% operating margin.

Mission

The United Porphyrias Association is committed to improving the quality of life of the porphyria patient community and is relentlessly focused on advancing disease awareness, research, and therapies in all the porphyrias.

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Trantor Score

Financial Health Score (300–850) · Liquidity · Solvency · Sustainability · Efficiency

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Liquidity (40%) • Solvency (30%) • Sustainability (20%) • Efficiency (10%)

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Financial Overview (2024)

Revenue Breakdown

Contributions & Grants $449,648
Program Service Revenue $0
Investment Income $8,464
Other Revenue $0
TOTAL REVENUE $458,112

Expense Breakdown

Grants Paid $0
Salaries & Benefits $77,170
Fundraising Expenses $0
Program Expenses $105,900
Other Expenses $177,737
TOTAL EXPENSES $254,907

Year-over-Year Comparison

2024 2023 Change
Revenue $458,112 $752,353 -0.4%
Expenses $254,907 $322,031 -0.2%
Net Income $203,205 $430,322 -0.5%
Key Indicators
Grants to Organizations Grants to Individuals Lobbying Political Activity Foreign Activities Donor Advised Fund Schedule B Required
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Financial Health Indicators

Comprehensive financial analysis: Altman Z-Score, liquidity, solvency, sustainability, efficiency, and growth metrics

Financial Distress Indicator

Liquidity & Cash Position

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Altman Z-Score • Liquidity Ratios • Solvency Analysis • Growth Indicators • Efficiency Metrics

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Governance

Voting Members
7
Independent Members
2
Employees
4
Volunteers
N/A

Governance Policies

Conflict of Interest Policy
Whistleblower Policy
Document Retention Policy

Special Practices & Reported Activities

Operated a School
Operated a Hospital
Provided First Class Travel
Reported Conflict of Interest
Reported Asset Diversion
Excess Benefit Transaction
Made Political Expenditures
Engaged in Lobbying
Operated Donor Advised Fund
Maintained Art Collections
Filed Form 720

Compensation of Officers, Directors & Key Employees

Total Officers
4
$74,063
Total Directors
6
$0
Key Employees
0
$0
Highest Compensated
0
reported
Name Title Hours/Week Role Reportable Comp Other Comp Total
KRISTEN WHEEDEN President 40.00
Officer
$74,063 $0 $74,063
ANDREW L TURELL Chairman 1.00
Officer Director
$0 $0 $0
HETANSHI NAIK PHD MS CGC Secretary 1.00
Officer Director
$0 $0 $0
SHAWN WILLIS Treasurer 1.00
Officer Director
$0 $0 $0
ROBERT J DESNICK PHD MD Director 1.00
Director
$0 $0 $0
HON JOSEPH CROWLEY Director 1.00
Director
$0 $0 $0
ARIEL LAGER Director 1.00
Director
$0 $0 $0
Note: Compensation data is self-reported by the organization on their Form 990. "Reportable Comp" includes salary, bonuses, and other reportable compensation from the organization and related organizations. "Other Comp" includes benefits, deferred compensation, and non-taxable benefits.

Historical Data

Year Revenue Expenses Assets Net Income
2024 No data No data No data No data
2024 $458,112 $254,907 $1,168,122 $203,205
2023 $623,636 $107,681 $531,248 $515,955
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