UTAH HEMOPHILIA FOUNDATION

EIN: 876127162 501(c)(3) Diseases & Disorders

SALT LAKE CITY, UT

Total Revenue
$410,136
Total Expenses
$381,149
Total Assets
$1,143,420
Net Assets
$1,143,420
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Financial Trends

Organization Details

Formation Year
1959
Legal Domicile
UT
Principal Officer
JAN WESTERN
Phone
8014840325
Tax Period
2024-01-01 to 2024-12-31

UTAH HEMOPHILIA FOUNDATION, founded in 1959, is a small nonprofit in the Diseases & Disorders sector that reported $410K in total revenue in fiscal year 2024. Revenue decreased 17% compared to the prior year. Expenses of $381K left a modest 7% surplus.

Mission

PROVIDING EDUCATION AND SUPPORT SERVICES FOR INDIVIDUALS AND FAMILIES WITH BLEEDING DISORDERS AND EMPOWERING THEM TO LIVE HEALTHIER AND MORE SELF- SUFFICIENT LIVES.

Program Service Accomplishments

Program 1
Expenses: $343,801

COMMUNITY EDUCATION: CAMP VALOR - 48 CAMPERS ATTENDED. FOR THE CHILDREN IN UTAH'S BLEEDING DISORDERS COMMUNITY, CAMP VALOR REPRESENTS THE FOUNDATION FOR EFFECTIVE LIFE-LONG MANAGEMENT OF A BLEEDING...

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COMMUNITY EDUCATION: CAMP VALOR - 48 CAMPERS ATTENDED. FOR THE CHILDREN IN UTAH'S BLEEDING DISORDERS COMMUNITY, CAMP VALOR REPRESENTS THE FOUNDATION FOR EFFECTIVE LIFE-LONG MANAGEMENT OF A BLEEDING DISORDER. IT IS AT THIS CAMP THAT CHILDREN FIRST LEARN TO SELF-INFUSE. CAMPERS, ALSO, LEARN THE BASICS OF SELF-CARE REQUIRED FOR THE TREATMENT AND MANAGEMENT OF THEIR DISEASE STATE. BECAUSE OF THE SEVERITY OF THE CONDITION FROM WHICH THEY SUFFER, CHILDREN WITH HEMOPHILIA SELDOM HAVE THE OPPORTUNITY TO ENJOY MANY OF THE SAME PHYSICAL ACTIVITIES THAT THEIR UNAFFECTED PEERS DO. CAMP VALOR, ALLOWS CHILDREN WITH BLEEDING DISORDERS TO SPEND TIME OUTDOORS, RECREATING UNDER THE CONSTANT CARE AND SUPERVISION OF A FULL COMPLEMENT OF MEDICAL PROFESSIONALS. FOR MOST OF THESE CHILDREN, IT IS THE ONLY TIME THAT THEY CAN JUST BE KIDS. EVERYBODY'S HERE - 120 PEOPLE ATTENDED. A PROGRAM THAT BRINGS TOGETHER THE UHF, INDUSTRY PARTNERS, THE HEMOPHILIA TREATMENT CENTER STAFF, AND THE BLEEDING DISORDERS COMMUNITY. IT IS AN EVENING OF NETWORKING, INFORMATION, AND PEER SUPPORT. INFORMATIONAL EXHIBITS ARE PROVIDED BY PHARMACEUTICAL MANUFACTURERS AND HOME CARE COMPANIES, WHICH DISSEMINATE THE LATEST INFORMATION ON THE MANAGEMENT AND CARE OF BLEEDING DISORDERS. COMMUNITY MEMBERS ARE ABLE TO ASSOCIATE AND LEARN FROM ONE ANOTHER'S SHARED EXPERIENCES. FAMILY FEST & RESOURCE FAIR - 224 PEOPLE ATTENDED. PHARMACEUTICAL MANUFACTURERS AND HOME CARE COMPANY REPRESENTATIVES EXHIBIT WITH INFORMATION ABOUT THE LATEST TOOLS & TECHNIQUES IN MANAGING BLEEDING DISORDERS. AVAILABLE INFORMATION INCLUDES: LATEST TREATMENTS AND MEDICATIONS, INSURANCE CO-PAYMENT ASSISTANCE PROGRAMS, HOME HEALTH SERVICES, UHF PROGRAM SERVICES AND RESOURCES, AND MORE. FEMALES & BLEEDING DISORDERS (FAB) CONFERENCE - 56 PEOPLE ATTENDED. JUST FOR WOMEN IN THE BLEEDING DISORDERS COMMUNITY, AGES 12 AND OLDER, INCLUDING THOSE WITH VON WILLEBRAND DISEASE, CARRIERS, MOMS OF AFFECTED CHILDREN, WIVES OF AFFECTED MEN, AND CAREGIVERS. PARTICIPANTS ENJOY WORKSHOPS AND INFORMATION SPECIFICALLY FOCUSED ON THE UNIQUE ISSUES ASSOCIATED WITH WOMEN AND BLEEDING DISORDERS. TEEN SUPPORT GROUP - 55 TEENS ATTENDED. ACTIVITIES FOR TEENS WITH BLEEDING DISORDERS AND THEIR SIBLINGS, AGES 13- 19 THAT INCLUDES INTERACTIVE EDUCATION WORKSHOPS, DISCUSSION GROUPS, AND RECREATIONAL ACTIVITIES. MISCELLANEOUS SUPPORT GROUPS - 152 PEOPLE ATTENDED. PROVIDES AN OPPORTUNITY FOR PEOPLE WITH BLEEDING DISORDERS TO INTERACT AND LEARN FROM OTHERS IN THE GROUP.

Program 2

FINANCIAL ASSISTANCE PROGRAMS: LIFELINE - A FUND THROUGH WHICH INDIVIDUALS WITH BLEEDING DISORDERS CAN RECEIVE FINANCIAL ASSISTANCE WITH HIGH INSURANCE PREMIUMS, COBRA PAYMENTS, AND OUT OF POCKET...

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FINANCIAL ASSISTANCE PROGRAMS: LIFELINE - A FUND THROUGH WHICH INDIVIDUALS WITH BLEEDING DISORDERS CAN RECEIVE FINANCIAL ASSISTANCE WITH HIGH INSURANCE PREMIUMS, COBRA PAYMENTS, AND OUT OF POCKET MEDICAL EXPENSES ASSOCIATED WITH THE DIAGNOSIS AND TREATMENT OF BLEEDING DISORDER. 10 PEOPLE WERE SERVED THROUGH THIS PROGRAM. HOLIDAY ASSISTANCE (SUB FOR SANTA) - 7 FAMILIES WERE SERVED. FAMILIES WITHIN THE BLEEDING DISORDERS COMMUNITY MAY NEED SOME EXTRA FINANCIAL ASSISTANCE TO SUPPORT THEIR FAMILY THROUGH THE HOLIDAY SEASON. THE UHF PARTNERED WITH A LOCAL BUSINESS TO PROVIDE FOOD, CLOTHING AND TOYS FOR FAMILIES DETERMINED TO BE MOST IN NEED.

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Liquidity (40%) • Solvency (30%) • Sustainability (20%) • Efficiency (10%)

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Financial Overview (2024)

Revenue Breakdown

Contributions & Grants $371,579
Program Service Revenue $0
Investment Income $38,557
Other Revenue $0
TOTAL REVENUE $410,136

Expense Breakdown

Grants Paid $0
Salaries & Benefits $114,504
Fundraising Expenses $17,145
Program Expenses $343,801
Other Expenses $266,645
TOTAL EXPENSES $381,149

Year-over-Year Comparison

2024 2023 Change
Revenue $410,136 $493,442 -0.2%
Expenses $381,149 $319,470 +0.2%
Net Income $28,987 $173,972 -0.8%
Key Indicators
Grants to Organizations Grants to Individuals Lobbying Political Activity Foreign Activities Donor Advised Fund Schedule B Required
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Governance

Voting Members
15
Independent Members
15
Employees
2
Volunteers
68

Governance Policies

Conflict of Interest Policy
Whistleblower Policy
Document Retention Policy

Special Practices & Reported Activities

Operated a School
Operated a Hospital
Provided First Class Travel
Reported Conflict of Interest
Reported Asset Diversion
Excess Benefit Transaction
Made Political Expenditures
Engaged in Lobbying
Operated Donor Advised Fund
Maintained Art Collections
Filed Form 720

Compensation of Officers, Directors & Key Employees

Total Officers
4
$75,000
Total Directors
14
$0
Key Employees
0
$0
Highest Compensated
0
reported
Name Title Hours/Week Role Reportable Comp Other Comp Total
JAN WESTERN EXECUTIVE DI 40.00
Officer
$75,000 $0 $75,000
TABITHA ALLRED TRUSTEE 1.00
Director
$0 $0 $0
PATTY EASTIN INDUSTRY ADV 1.00
Director
$0 $0 $0
SHANNON HOWELL TRUSTEE 1.00
Director
$0 $0 $0
ANGELA KOURI TRUSTEE 1.00
Director
$0 $0 $0
GEORGE RODGERS MD TRUSTEE 1.00
Director
$0 $0 $0
TYLER MERTLICH SECRETARY 1.00
Officer Director
$0 $0 $0
KRISDEE NELSON TRUSTEE 1.00
Director
$0 $0 $0
KIM NMEZI TREASURER 3.00
Officer Director
$0 $0 $0
ZAC REDFORD TRUSTEE 1.00
Director
$0 $0 $0
CRAIG THURGOOD TRUSTEE 3.00
Director
$0 $0 $0
DAVID WALSH TRUSTEE 1.00
Director
$0 $0 $0
BONNIE WEBB TRUSTEE 3.00
Director
$0 $0 $0
RON WEBB TRUSTEE 1.00
Director
$0 $0 $0
KARI WOOLF PRESIDENT 5.00
Officer Director
$0 $0 $0
Note: Compensation data is self-reported by the organization on their Form 990. "Reportable Comp" includes salary, bonuses, and other reportable compensation from the organization and related organizations. "Other Comp" includes benefits, deferred compensation, and non-taxable benefits.

Historical Data

Year Revenue Expenses Assets Net Income
2024 $410,136 $381,149 $1,143,420 $28,987
2023 $493,442 $319,470 $1,114,433 $173,972
2022 $350,196 $280,237 $940,461 $69,959
2021 $367,861 $258,436 $870,590 $109,425
2020 $256,078 $304,884 $789,277 $-48,806
2019 $375,388 $277,332 $809,883 $98,056
2018 $402,392 $324,842 $711,814 $77,550
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