HUNTINGTON'S DISEASE SOCIETY OF AMERICA GROUP (EIN 900658125) - Form 990 Financial Analysis & Trantor Score

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Financial Vulnerability Assessment (Tuckman-Chang)

4 risk indicators measuring financial stability and operational resilience

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Financial Trends

Organization Details

Formation Year

1986

Legal Domicile

Principal Officer

ARIK JOHNSON

Phone

2122421968

Tax Period

2023-01-01 to 2023-12-31

HUNTINGTON'S DISEASE SOCIETY OF AMERICA GROUP, founded in 1986, is a community nonprofit that reported $3.3M in total revenue in fiscal year 2023. Revenue decreased 9% compared to the prior year. Expenses of $3.0M left a modest 6% surplus.

Mission

DEDICATED TO IMPROVING THE LIVES OF PEOPLE WITH HUNTINGTON'S DISEASE AND THEIR FAMILIES.

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Trantor Score

Financial Health Score (300–850) · Liquidity · Solvency · Sustainability · Efficiency

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Liquidity (40%) • Solvency (30%) • Sustainability (20%) • Efficiency (10%)

Financial Overview (2023)

Revenue Breakdown

Contributions & Grants $3,222,635

Program Service Revenue $0

Investment Income $28

Other Revenue $29,419

TOTAL REVENUE $3,252,082

Expense Breakdown

Grants Paid $5,436

Salaries & Benefits $0

Fundraising Expenses $249,134

Program Expenses $2,795,349

Other Expenses $3,039,047

TOTAL EXPENSES $3,044,483

Year-over-Year Comparison

	2023	2022	Change
Revenue	$3,252,082	$3,567,800	-0.1%
Expenses	$3,044,483	$3,671,274	-0.2%
Net Income	$207,599	$-103,474	-3.0%

Key Indicators

✗ Grants to Organizations ✗ Grants to Individuals ✗ Lobbying ✗ Political Activity ✗ Foreign Activities ✗ Donor Advised Fund ✗ Schedule B Required

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Financial Health Indicators

Comprehensive financial analysis: Altman Z-Score, liquidity, solvency, sustainability, efficiency, and growth metrics

Financial Distress Indicator

Liquidity & Cash Position

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Altman Z-Score • Liquidity Ratios • Solvency Analysis • Growth Indicators • Efficiency Metrics

Governance

Voting Members

Independent Members

Employees

N/A

Volunteers

500

Governance Policies

✓ Conflict of Interest Policy

✓ Whistleblower Policy

✓ Document Retention Policy

Special Practices & Reported Activities

✗ Operated a School

✗ Operated a Hospital

✗ Provided First Class Travel

✗ Reported Conflict of Interest

✗ Reported Asset Diversion

✗ Excess Benefit Transaction

✗ Made Political Expenditures

✗ Engaged in Lobbying

✗ Operated Donor Advised Fund

✗ Maintained Art Collections

✗ Filed Form 720

Compensation of Officers, Directors & Key Employees

Total Officers

$713,297

Total Directors

Key Employees

$214,485

Highest Compensated

reported

Name	Title	Hours/Week	Role	Reportable Comp	Other Comp	Total
VICTOR SUNG MD	PAST CHAIR	3.00	Officer Director	$0	$0	$0
TERESA SRAJER	CHAIR	3.00	Officer Director	$0	$0	$0
KAMRAN ALAM	TREASURER	3.00	Officer Director	$0	$0	$0
JENNE COLER-DARK	CHAIR ELECT	3.00	Officer Director	$0	$0	$0
JAY HUGHES	SECRETARY	3.00	Officer Director	$0	$0	$0
ANGELA ALLEN	TRUSTEE	3.00	Director	$0	$0	$0
JEFFREY BROWN	TRUSTEE	3.00	Director	$0	$0	$0
JEFF CARROLL	TRUSTEE	3.00	Director	$0	$0	$0
MARK COE	TRUSTEE	3.00	Director	$0	$0	$0
ERIN FURR-STIMMING MD	TRUSTEE	3.00	Director	$0	$0	$0
BETH HOFFMAN	TRUSTEE	3.00	Director	$0	$0	$0
JONATHAN KLEIN ESQ	TRUSTEE	3.00	Director	$0	$0	$0
KELSEY PORTER	TRUSTEE	3.00	Director	$0	$0	$0
DOMINIQUE THOMAS	TRUSTEE	3.00	Director	$0	$0	$0
LESLIE M THOMPSON PHD	TRUSTEE	3.00	Director	$0	$0	$0
VICKI WHEELOCK MD	TRUSTEE	3.00	Director	$0	$0	$0
LOUISE VETTER	CHIEF EXECUTIVE OFFICER	3.00	Officer	$0	$53,072	$423,374
ROSEMARY COLUCCIO	CHIEF OPERATIONS OFFICER	3.00	Officer	$0	$29,750	$289,923
ARIK JOHNSON	CHIEF MISSION OFFICER	3.00	Key Emp	$0	$11,418	$214,485
JAMISON SKALA	DIRECTOR, NATIONAL DEVELOP	3.00	Highest	$0	$12,348	$185,469
DEBRA LOVECKY	DIR. OF EDUCATION PROG THRU MAY 2023	3.00	Highest	$0	$17,698	$275,177
DEBORAH BOYD	REGIONAL DEVELOPMENT DIREC	3.00	Highest	$0	$21,815	$139,482
REBECCA CHAN	CONTROLLER	3.00	Highest	$0	$42,564	$155,440

Note: Compensation data is self-reported by the organization on their Form 990. "Reportable Comp" includes salary, bonuses, and other reportable compensation from the organization and related organizations. "Other Comp" includes benefits, deferred compensation, and non-taxable benefits.

Historical Data

Year	Revenue	Expenses	Assets	Net Income
2024	No data	No data	No data	No data
2023	$3,252,082	$3,044,483	$890,427	$207,599
2022	$3,567,800	$3,671,274	$739,599	$-103,474
2021	$2,867,187	$2,897,324	$785,577	$-30,137
2020	$1,932,226	$2,053,345	$823,490	$-121,119
2019	$3,402,304	$3,565,306	$945,092	$-163,002

HUNTINGTON'S DISEASE SOCIETY OF AMERICA GROUP