BATTEN DISEASE SUPPORT & RESEARCH ASSOCIATION (EIN 911397792) - Form 990 Financial Analysis & Trantor Score

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Financial Vulnerability Assessment (Tuckman-Chang)

4 risk indicators measuring financial stability and operational resilience

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Financial Trends

Organization Details

Formation Year

1987

Legal Domicile

Principal Officer

AMY FENTON PARKER

Phone

8004484570

Tax Period

2024-01-01 to 2024-12-31

BATTEN DISEASE SUPPORT & RESEARCH ASSOCIATION, founded in 1987, is a small nonprofit in the Diseases & Disorders sector that reported $602K in total revenue in fiscal year 2024. Revenue decreased 19% compared to the prior year. Expenses of $967K exceeded revenue, resulting in a 61% operating deficit.

Mission

OUR LONG-TERM VISION IS A WORLD WITHOUT BATTEN DISEASE. OUR MISSION IS TO SUPPORT BATTEN FAMILIES, FUND AND FACILITATE RESEARCH AND ADVOCATE FOR TREATMENTS AND A CURE.

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Trantor Score

Financial Health Score (300–850) · Liquidity · Solvency · Sustainability · Efficiency

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Liquidity (40%) • Solvency (30%) • Sustainability (20%) • Efficiency (10%)

Financial Overview (2024)

Revenue Breakdown

Contributions & Grants $566,255

Program Service Revenue $0

Investment Income $35,709

Other Revenue $0

TOTAL REVENUE $601,964

Expense Breakdown

Grants Paid $135,863

Salaries & Benefits $369,612

Fundraising Expenses $79,600

Program Expenses $685,086

Other Expenses $461,851

TOTAL EXPENSES $967,326

Year-over-Year Comparison

	2024	2023	Change
Revenue	$601,964	$746,147	-0.2%
Expenses	$967,326	$952,036	+0.0%
Net Income	$-365,362	$-205,889	+0.8%

Key Indicators

✓ Grants to Organizations ✗ Grants to Individuals ✗ Lobbying ✗ Political Activity ✗ Foreign Activities ✗ Donor Advised Fund ✓ Schedule B Required

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Financial Health Indicators

Comprehensive financial analysis: Altman Z-Score, liquidity, solvency, sustainability, efficiency, and growth metrics

Financial Distress Indicator

Liquidity & Cash Position

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Altman Z-Score • Liquidity Ratios • Solvency Analysis • Growth Indicators • Efficiency Metrics

Governance

Voting Members

Independent Members

Employees

Volunteers

Governance Policies

✗ Conflict of Interest Policy

✗ Whistleblower Policy

✗ Document Retention Policy

Special Practices & Reported Activities

✗ Operated a School

✗ Operated a Hospital

✗ Provided First Class Travel

✗ Reported Conflict of Interest

✗ Reported Asset Diversion

✗ Excess Benefit Transaction

✗ Made Political Expenditures

✗ Engaged in Lobbying

✗ Operated Donor Advised Fund

✗ Maintained Art Collections

✗ Filed Form 720

Compensation of Officers, Directors & Key Employees

Total Officers

$100,000

Total Directors

Key Employees

Highest Compensated

reported

Name	Title	Hours/Week	Role	Reportable Comp	Other Comp	Total
AMY FENTON PARKER	PRESIDENT &	40.00	Officer	$100,000	$0	$100,000
DARLENE ROYALTY	BOARD CHAIR	1.00	Officer Director	$0	$0	$0
BARBARA WUEBBELS	BOARD VICE C	1.00	Officer Director	$0	$0	$0
BARBARA MCDONOUGH	SECRETARY	1.00	Officer Director	$0	$0	$0
FRED SURREY	TREASURER	1.00	Officer Director	$0	$0	$0
JOHN IRELAND	DIRECTOR	1.00	Director	$0	$0	$0
WAYNE KIEFER	DIRECTOR	1.00	Director	$0	$0	$0
KATE HALLER	DIRECTOR	1.00	Director	$0	$0	$0
DAVE PEARCE	DIRECTOR	1.00	Director	$0	$0	$0
SUZETTE JAMES	DIRECTOR	1.00	Director	$0	$0	$0
FERNANDA LEAL-PARDINAS	DIRECTOR	1.00	Director	$0	$0	$0
ANTHONY FERRANDINO	DIRECTOR	1.00	Director	$0	$0	$0
DONNA FOGEL	DIRECTOR	1.00	Director	$0	$0	$0
JOHN PATTERSON	DIRECTOR	1.00	Director	$0	$0	$0

Note: Compensation data is self-reported by the organization on their Form 990. "Reportable Comp" includes salary, bonuses, and other reportable compensation from the organization and related organizations. "Other Comp" includes benefits, deferred compensation, and non-taxable benefits.

Historical Data

Year	Revenue	Expenses	Assets	Net Income
2024	$601,964	$967,326	$965,863	$-365,362
2023	$746,147	$952,036	$1,203,251	$-205,889
2022	$1,099,485	$858,302	$1,291,125	$241,183
2021	$875,074	$668,937	$1,208,507	$206,137
2020	$1,228,607	$718,019	$1,028,529	$510,588

BATTEN DISEASE SUPPORT & RESEARCH ASSOCIATION