SIEGEL RARE NEUROIMMUNE ASSOCIATION (EIN 911780467) - Form 990 Financial Analysis & Trantor Score

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Financial Vulnerability Assessment (Tuckman-Chang)

4 risk indicators measuring financial stability and operational resilience

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Financial Trends

Organization Details

Formation Year

1996

Legal Domicile

Principal Officer

Sanford J Siegel

Phone

8553803330

Tax Period

2023-01-01 to 2023-12-31

SIEGEL RARE NEUROIMMUNE ASSOCIATION, founded in 1996, is a community nonprofit in the Diseases & Disorders sector that reported $1.3M in total revenue in fiscal year 2023. Expenses of $1.2M left a modest 4% surplus.

Mission

TO SUPPORT AND ADVOCATE FOR INDIVIDUALS AND THEIR FAMILIES DIAGNOSED WITH RARE NEUROIMMUNE DISORDERS OF THE CENTRAL NERVOUS SYSTEM; TO PROMOTE AWARENESS AND TO EMPOWER PATIENTS, FAMILIES, CLINICIANS AND SCIENTISTS THROUGH EDUCATION PROGRAMS AND PUBLICATIONS AND TO ADVANCE THE SCIENTIFIC UNDERSTANDING OF AND THERAPY DEVELOPMENT FOR THESE RARE DISORDERS BY SUPPORTING THE TRAINING OF CLINICIANS-SCIENTISTS DEDICATED TO THESE RARE DISORDERS AND BY SUPPORTING BASIC AND CLINICAL RESEARCH. OUR GOAL IS TO IMPROVE THE QUALITY OF LIFE OF INDIVIDUALS WITH RARE NEUROIMMUNE DISORDERS.

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Trantor Score

Financial Health Score (300–850) · Liquidity · Solvency · Sustainability · Efficiency

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Liquidity (40%) • Solvency (30%) • Sustainability (20%) • Efficiency (10%)

Financial Overview (2023)

Revenue Breakdown

Contributions & Grants $1,222,107

Program Service Revenue $0

Investment Income $48,161

Other Revenue $0

TOTAL REVENUE $1,270,268

Expense Breakdown

Grants Paid $105,942

Salaries & Benefits $602,681

Fundraising Expenses $51,558

Program Expenses $1,085,254

Other Expenses $516,598

TOTAL EXPENSES $1,225,221

Year-over-Year Comparison

	2023	2022	Change
Revenue	$1,270,268	$1,218,351	+0.0%
Expenses	$1,225,221	$1,096,315	+0.1%
Net Income	$45,047	$122,036	-0.6%

Key Indicators

✓ Grants to Organizations ✗ Grants to Individuals ✗ Lobbying ✗ Political Activity ✗ Foreign Activities ✗ Donor Advised Fund ✓ Schedule B Required

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Financial Health Indicators

Comprehensive financial analysis: Altman Z-Score, liquidity, solvency, sustainability, efficiency, and growth metrics

Financial Distress Indicator

Liquidity & Cash Position

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Altman Z-Score • Liquidity Ratios • Solvency Analysis • Growth Indicators • Efficiency Metrics

Governance

Voting Members

Independent Members

Employees

Volunteers

100

Governance Policies

✓ Conflict of Interest Policy

✗ Whistleblower Policy

✗ Document Retention Policy

Special Practices & Reported Activities

✗ Operated a School

✗ Operated a Hospital

✗ Provided First Class Travel

✗ Reported Conflict of Interest

✗ Reported Asset Diversion

✗ Excess Benefit Transaction

✗ Made Political Expenditures

✗ Engaged in Lobbying

✗ Operated Donor Advised Fund

✗ Maintained Art Collections

✗ Filed Form 720

Compensation of Officers, Directors & Key Employees

Total Officers

Total Directors

$102,113

Key Employees

$211,215

Highest Compensated

reported

Name	Title	Hours/Week	Role	Reportable Comp	Other Comp	Total
Gabrielle deFiebre	Director of Research and Programs	40	Key Emp Highest	$103,907	$5,195	$109,102
Chitra Krishnan	Executive Director	30.00	Director Key Emp Highest	$97,250	$4,863	$102,113
Lana Harder	Director	5	Director	$0	$0	$0
Sanford J Siegel	President	20	Officer Director	$0	$0	$0
Deborah Capen	Secretary	20	Officer Director	$0	$0	$0
Linda Malecky	Treasurer, Vice President	20	Officer Director	$0	$0	$0
Bruce L Downey	Director	3	Director	$0	$0	$0
Benjamin M Greenberg MD	Director	5	Director	$0	$0	$0
Douglas A Kerr MD PHD	Director	5	Director	$0	$0	$0
Carlos A Pardo-Villamizar MD	Director	5	Director	$0	$0	$0
Barbara Sattler	Director	5	Director	$0	$0	$0
Jason Robbins	Director	5	Director	$0	$0	$0
Peter C Johnson	Director	3	Director	$0	$0	$0
Dennis Wolfe	Director	3	Director	$0	$0	$0
James T Lubin	Executive Committee Member	20	Officer Director	$0	$0	$0
Dave Evans	Director	3	Director	$0	$0	$0
Michael Levy	Director	5	Director	$0	$0	$0

Note: Compensation data is self-reported by the organization on their Form 990. "Reportable Comp" includes salary, bonuses, and other reportable compensation from the organization and related organizations. "Other Comp" includes benefits, deferred compensation, and non-taxable benefits.

Historical Data

Year	Revenue	Expenses	Assets	Net Income
2024	No data	No data	No data	No data
2023	$1,270,268	$1,225,221	$1,723,037	$45,047
2022	$1,218,351	$1,096,315	$1,636,191	$122,036
2021	$1,415,891	$683,121	$1,538,757	$732,770
2020	$752,124	$577,003	$776,844	$175,121
2019	$906,729	$966,213	$675,082	$-59,484

SIEGEL RARE NEUROIMMUNE ASSOCIATION