FOUNDATION FOR RARE DISEASE RESEARCH INC

EIN: 920534021 501(c)(3) Medical Research

SILVER SPRING, MD

Total Revenue
$1,319,799
Total Expenses
$2,380
Total Assets
$2,997,419
Net Assets
$2,997,419
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Financial Vulnerability Assessment (Tuckman-Chang)

4 risk indicators measuring financial stability and operational resilience

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Financial Trends

Organization Details

Formation Year
2022
Tax Period
2023-01-01 to 2023-12-31

FOUNDATION FOR RARE DISEASE RESEARCH INC, founded in 2022, is a community nonprofit in the Medical Research sector that reported $1.3M in total revenue in fiscal year 2023. Revenue fell 21% from the prior year — a significant decline worth monitoring. The organization ran a surplus of $1.3M, a strong 100% operating margin.

Mission

Discover, pursue and support the development of clinical diagnostics tools that can lead to cures for rare and orphan diseases by contributing to the advancement in research and development.

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Trantor Score

Financial Health Score (300–850) · Liquidity · Solvency · Sustainability · Efficiency

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Liquidity (40%) • Solvency (30%) • Sustainability (20%) • Efficiency (10%)

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Financial Overview (2023)

Revenue Breakdown

Contributions & Grants $1,280,278
Program Service Revenue $0
Investment Income $39,521
Other Revenue $0
TOTAL REVENUE $1,319,799

Expense Breakdown

Grants Paid $0
Salaries & Benefits $0
Fundraising Expenses $0
Other Expenses $2,380
TOTAL EXPENSES $2,380

Year-over-Year Comparison

2023 2022 Change
Revenue $1,319,799 $1,680,000 -0.2%
Expenses $2,380 N/A N/A
Net Income $1,317,419 $1,680,000 -0.2%
Key Indicators
✗ Grants to Organizations ✗ Grants to Individuals ✗ Lobbying ✗ Political Activity ✗ Foreign Activities ✗ Donor Advised Fund ✓ Schedule B Required
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Financial Health Indicators

Comprehensive financial analysis: Altman Z-Score, liquidity, solvency, sustainability, efficiency, and growth metrics

Financial Distress Indicator

Liquidity & Cash Position

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Altman Z-Score • Liquidity Ratios • Solvency Analysis • Growth Indicators • Efficiency Metrics

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Governance

Voting Members
6
Independent Members
6
Employees
N/A
Volunteers
N/A

Governance Policies

✗ Conflict of Interest Policy
✗ Whistleblower Policy
✗ Document Retention Policy

Special Practices & Reported Activities

✗ Operated a School
✗ Operated a Hospital
✗ Provided First Class Travel
⚠ Reported Conflict of Interest
✗ Reported Asset Diversion
✗ Excess Benefit Transaction
✗ Made Political Expenditures
✗ Engaged in Lobbying
✗ Operated Donor Advised Fund
✗ Maintained Art Collections
✗ Filed Form 720

Compensation of Officers, Directors & Key Employees

Total Officers
0
$0
Total Directors
4
$0
Key Employees
0
$0
Highest Compensated
0
reported
Name Title Hours/Week Role Reportable Comp Other Comp Total
HUAMIN LI President 1.00
Director
$0 $0 $0
JOSEPH CHIAO Director 1.00
Director
$0 $0 $0
JEFFREY YANG Director 1.00
Director
$0 $0 $0
JUAN YU Director 0.00
Director
$0 $0 $0
Note: Compensation data is self-reported by the organization on their Form 990. "Reportable Comp" includes salary, bonuses, and other reportable compensation from the organization and related organizations. "Other Comp" includes benefits, deferred compensation, and non-taxable benefits.

Historical Data

Year Revenue Expenses Assets Net Income
2024 No data No data No data No data
2023 $1,319,799 $2,380 $2,997,419 $1,317,419
2022 $1,680,000 No data $1,680,000 No data
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