Ted Community Organization

EIN: 921885014 501(c)(3) Diseases & Disorders

Pacific Grove, CA

Total Revenue
$492,544
Total Expenses
$186,219
Total Assets
$518,130
Net Assets
$518,130
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Financial Vulnerability Assessment (Tuckman-Chang)

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Financial Trends

Organization Details

Formation Year
2023
Legal Domicile
CA
Principal Officer
Christine Gustafson
Phone
8312412243
Tax Period
2025-01-01 to 2025-12-31

Ted Community Organization, founded in 2023, is a small nonprofit in the Diseases & Disorders sector that reported $493K in total revenue in fiscal year 2025. Revenue surged 37% from the prior year, signaling strong growth momentum. The organization ran a surplus of $306K, a strong 62% operating margin.

Mission

As a dedicated thyroid eye disease TED 501c3 nonprofit our vision and quest is to ensure that no one need ever walk alone through the arduous and often isolating ted journey. to this end we provide education support and connection for all who are affected by TED.

Program Service Accomplishments

Program 1
Expenses: $90,800 Revenue: $0

The TED Patient & Partner Global Online Conference is the first event of its kind dedicated to bringing together patients caregivers healthcare professionals and industry leaders to discuss the...

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The TED Patient & Partner Global Online Conference is the first event of its kind dedicated to bringing together patients caregivers healthcare professionals and industry leaders to discuss the latest advancements in thyroid eye disease TED education treatment and patient support. Hosted by the TED Community Organization the only 501c3 nonprofit exclusively supporting TED patients this virtual conference will offer a comprehensive platform for learning connection and advocacy.

Program 2
Expenses: $35,677 Revenue: $0

The in-person workshop is all expenses paid for TED patients to come together to work on specific programs that will benefit the global TED Community. It is a 2.5 day event that includes...

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The in-person workshop is all expenses paid for TED patients to come together to work on specific programs that will benefit the global TED Community. It is a 2.5 day event that includes brainstorming program ideation building curriculum and taking on an active role in the execution of the program. Normally 15-18 TED Community Builders are involved. This is supplemented by our 15-person Medical Council. And 18 person Corporate Council.

Program 3
Expenses: $24,560 Revenue: $0

The TED Patient Corporate & Medical Global Outreach Initiative is a groundbreaking effort to connect educate and empower the global TED community through strategic collaboration and outreach . By...

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The TED Patient Corporate & Medical Global Outreach Initiative is a groundbreaking effort to connect educate and empower the global TED community through strategic collaboration and outreach . By leveraging the expertise of our Medical & Scientific Council Corporate Council and Patient Advocate Council we are ensuring that all TED Community Organization programs including the TED Quality of Life Program the Global Virtual Conference TED ART and support groups reach the widest and most diverse audience possible. Key Outreach Components Global Network Expansion: Strengthening relationships with TED specialists researchers patient advocates and corporate partners worldwide to ensure access to the latest research treatments and patient resources. TED Corporate Council Engagement: Bringing together pharmaceutical biotech and healthcare industry leaders to collaborate on patient education access to care and innovation in TED treatment. TED Medical & Scientific Council Collaboration: Ensuring medical accuracy research-driven initiatives and high-quality patient education in all outreach efforts. TED Patient Advocate Council Leadership: Ensuring that patient voices remain central in all decision-making programming and outreach strategies. Global Awareness Campaigns: Developing multilingual educational materials social media campaigns and virtual events to enhance TED awareness and engagement. As well as attendance and exhibits at relevant conferences and meetings.

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Trantor Score

Financial Health Score (300–850) · Liquidity · Solvency · Sustainability · Efficiency

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Liquidity (40%) • Solvency (30%) • Sustainability (20%) • Efficiency (10%)

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Financial Overview (2025)

Revenue Breakdown

Contributions & Grants $492,544
Program Service Revenue $0
Investment Income $0
Other Revenue $0
TOTAL REVENUE $492,544

Expense Breakdown

Grants Paid $0
Salaries & Benefits $0
Fundraising Expenses $0
Program Expenses $186,219
Other Expenses $186,219
TOTAL EXPENSES $186,219

Year-over-Year Comparison

2025 2024 Change
Revenue $492,544 $359,170 +0.4%
Expenses $186,219 $154,707 +0.2%
Net Income $306,325 $204,463 +0.5%
Key Indicators
Grants to Organizations Grants to Individuals Lobbying Political Activity Foreign Activities Donor Advised Fund Schedule B Required
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Financial Health Indicators

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Governance

Voting Members
N/A
Independent Members
N/A
Employees
N/A
Volunteers
N/A

Governance Policies

Conflict of Interest Policy
Whistleblower Policy
Document Retention Policy

Special Practices & Reported Activities

Operated a School
Operated a Hospital
Provided First Class Travel
Reported Conflict of Interest
Reported Asset Diversion
Excess Benefit Transaction
Made Political Expenditures
Engaged in Lobbying
Operated Donor Advised Fund
Maintained Art Collections
Filed Form 720

Compensation of Officers, Directors & Key Employees

Total Officers
3
$0
Total Directors
0
$0
Key Employees
0
$0
Highest Compensated
0
reported
Name Title Hours/Week Role Reportable Comp Other Comp Total
Leslie Williams Chair of Board 0.00
Officer
$0 $0 $0
Elizabeth Nee Williams Treasurer Secretary 0.00
Officer
$0 $0 $0
Christine Gustafson CEO Executive Director 0.00
Officer
$0 $0 $0
Note: Compensation data is self-reported by the organization on their Form 990. "Reportable Comp" includes salary, bonuses, and other reportable compensation from the organization and related organizations. "Other Comp" includes benefits, deferred compensation, and non-taxable benefits.

Historical Data

Year Revenue Expenses Assets Net Income
2025 $492,544 $186,219 $518,130 $306,325
2024 $359,170 $154,707 $211,805 $204,463
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