ALAGILLE SYNDROME ALLIANCE (EIN 931243619) - Form 990 Financial Analysis & Trantor Score

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Financial Vulnerability Assessment (Tuckman-Chang)

4 risk indicators measuring financial stability and operational resilience

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Financial Trends

Organization Details

Formation Year

1997

Legal Domicile

Principal Officer

ROBERTA SMITH

Phone

9012868869

Tax Period

2024-01-01 to 2024-12-31

ALAGILLE SYNDROME ALLIANCE, founded in 1997, is a small nonprofit in the Medical Research sector that reported $648K in total revenue in fiscal year 2024. Revenue grew 13% year-over-year, indicating healthy expansion. The organization ran a surplus of $135K, a strong 21% operating margin.

Mission

MOBILIZE RESOURCES, FACILITATE CONNECTIONS, PROMOTING UNITY, AND ADVOCATING FOR A CURE TO INSPIRE, EMPOWER, AND ENRICH THE LIVES OF PEOPLE LIVING WITH ALAGILLE SYNDROME.

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Trantor Score

Financial Health Score (300–850) · Liquidity · Solvency · Sustainability · Efficiency

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Liquidity (40%) • Solvency (30%) • Sustainability (20%) • Efficiency (10%)

Financial Overview (2024)

Revenue Breakdown

Contributions & Grants $604,567

Program Service Revenue $0

Investment Income $43,403

Other Revenue $0

TOTAL REVENUE $647,970

Expense Breakdown

Grants Paid $52,003

Salaries & Benefits $303,202

Fundraising Expenses $41,857

Program Expenses $354,387

Other Expenses $157,409

TOTAL EXPENSES $512,614

Year-over-Year Comparison

	2024	2023	Change
Revenue	$647,970	$571,645	+0.1%
Expenses	$512,614	$539,670	-0.1%
Net Income	$135,356	$31,975	+3.2%

Key Indicators

✗ Grants to Organizations ✓ Grants to Individuals ✗ Lobbying ✗ Political Activity ✗ Foreign Activities ✗ Donor Advised Fund ✓ Schedule B Required

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Financial Health Indicators

Comprehensive financial analysis: Altman Z-Score, liquidity, solvency, sustainability, efficiency, and growth metrics

Financial Distress Indicator

Liquidity & Cash Position

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Altman Z-Score • Liquidity Ratios • Solvency Analysis • Growth Indicators • Efficiency Metrics

Governance

Voting Members

Independent Members

Employees

Volunteers

Governance Policies

✗ Conflict of Interest Policy

✗ Whistleblower Policy

✗ Document Retention Policy

Special Practices & Reported Activities

✗ Operated a School

✗ Operated a Hospital

✗ Provided First Class Travel

✗ Reported Conflict of Interest

✗ Reported Asset Diversion

✗ Excess Benefit Transaction

✗ Made Political Expenditures

✗ Engaged in Lobbying

✗ Operated Donor Advised Fund

✗ Maintained Art Collections

✗ Filed Form 720

Compensation of Officers, Directors & Key Employees

Total Officers

$130,744

Total Directors

Key Employees

Highest Compensated

reported

Name	Title	Hours/Week	Role	Reportable Comp	Other Comp	Total
ROBERTA SMITH	PRESIDENT	40.00	Officer	$130,744	$0	$130,744
SEAN KELLY	DIRECTOR	2.00	Director	$0	$0	$0
MIKE LAROSA	DIRECTOR	2.00	Director	$0	$0	$0
SHAMY RAVISHANKAR	DIRECTOR	2.00	Director	$0	$0	$0
TODD ALLEN	TREASURER	10.00	Officer	$0	$0	$0
JULIA BIRD	CHAIRMAN	2.00	Officer	$0	$0	$0

Note: Compensation data is self-reported by the organization on their Form 990. "Reportable Comp" includes salary, bonuses, and other reportable compensation from the organization and related organizations. "Other Comp" includes benefits, deferred compensation, and non-taxable benefits.

Historical Data

Year	Revenue	Expenses	Assets	Net Income
2024	No data	No data	No data	No data
2024	$647,970	$512,614	$640,163	$135,356
2023	$571,645	$539,670	$501,551	$31,975
2022	$585,146	$554,545	$468,720	$30,601
2021	$414,469	$276,866	$436,833	$137,603
2020	$258,130	$234,277	$286,569	$23,853
2019	$344,094	$292,715	$251,504	$51,379
2018	$169,326	$231,156	$214,024	$-61,830

ALAGILLE SYNDROME ALLIANCE