PKU HOPE FOUNDATION

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Financial Vulnerability Assessment (Tuckman-Chang)

4 risk indicators measuring financial stability and operational resilience

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Financial Trends

Organization Details

Formation Year

2023

Legal Domicile

Tax Period

2023-01-01 to 2023-12-31

PKU HOPE FOUNDATION, founded in 2023, is a small nonprofit in the Medical Research sector that reported $818K in total revenue in fiscal year 2023. The organization ran a surplus of $726K, a strong 89% operating margin.

Mission

The mission of the PKU Hope Foundation is to improve the quality of life for those with PKU by fostering community influencing and supporting research treatment therapies and easing the burden of managing the diet.

Program Service Accomplishments

Program 1

Expenses: $42,930 Revenue: $0

FOSTERING COMMUNITY FOR A RARE DISEASE PROVIDES A SUPPORT NETWORK FOR INDIVIDUALS AND FAMILIES FACING SIMILAR CHALLENGES FACILITIES INFORMATION SHARING AND RESOURCES RAISES AWARENESS ABOUT THE...

FOSTERING COMMUNITY FOR A RARE DISEASE PROVIDES A SUPPORT NETWORK FOR INDIVIDUALS AND FAMILIES FACING SIMILAR CHALLENGES FACILITIES INFORMATION SHARING AND RESOURCES RAISES AWARENESS ABOUT THE DISEASE PROMOTES ADVOCACY FOR RESEARCH AND FUNDING AND COMBATS FEELINGS OF ISOLATION OFTEN EXPERIENCED BY THOSE AFFECTED. ULTIMATELY IT HELPS EMPOWER INDIVIDUALS TO NAVIGATE THEIR JOURNEY WITH THE DISEASE MORE EFFECTIVELY.

Program 2

Expenses: $0 Revenue: $0

INFLUENCING AND SUPPORTING RESEARCH TREATMENT THERAPIES FOR THE RARE DISEASE COMMUNITY IS CRUCIAL TO HELP ACCELERATE THE DEVELOPMENT OF EFFECTIVE TREATMENTS AND THERAPIES TAILORED TO THE SPECIFIC...

INFLUENCING AND SUPPORTING RESEARCH TREATMENT THERAPIES FOR THE RARE DISEASE COMMUNITY IS CRUCIAL TO HELP ACCELERATE THE DEVELOPMENT OF EFFECTIVE TREATMENTS AND THERAPIES TAILORED TO THE SPECIFIC NEEDS OF INDIVIDUALS WITH PKU. BY ADVOCATING FOR RESEARCH THE COMMUNITY CAN ATTRACT FUNDING INCREASE AWARENESS AMONG RESEARCHERS AND HEALTHCARE PROFESSIONALS AND FOSTER COLLABORATION BETWEEN STAKEHOLDERS. ADDITIONALLY IT OFFERS HOPE TO PATIENTS AND THEIR FAMILIES BY PROVIDING ACCESS TO POTENTIALLY LIFE-IMPROVING INTERVENTIONS. OVERALL ADVANCING RESEARCH AND TREATMENT OPTIONS IMPROVES THE QUALITY OF LIFE AND PROGNOSIS FOR THOSE LIVING WITH RARE DISEASES.

Program 3

Expenses: $0 Revenue: $0

EASING THE BURDEN OF MANAGING THE RESTRICTIVE PHENYLKETONURIA DIET IS ESSENTIAL TO IMPROVE THE QUALITY OF LIFE FOR INDIVIDUALS AFFECTED BY THIS CONDITION. IT INVOLVES PROVIDING SUPPORT RESOURCES AND EDUCATION TO HELP PATIENTS AND THEIR FAMILIES NAVIGATE THE COMPLEXITIES OF THE DIET EFFECTIVELY. BY EASING THE BURDEN OF THE PKU DIET INDIVIDUALS CAN BETTER MAINTAIN THEIR HEALTH PREVENT COMPLICATIONS AND IRREVERSIBLE BRAIN DAMAGE AND LIVE MORE FULFILLING LIVES.

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Trantor Score

Financial Health Score (300–850) · Liquidity · Solvency · Sustainability · Efficiency

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Liquidity (40%) • Solvency (30%) • Sustainability (20%) • Efficiency (10%)

Financial Overview (2023)

Revenue Breakdown

Contributions & Grants $817,773

Program Service Revenue $0

Investment Income $0

Other Revenue $0

TOTAL REVENUE $817,773

Expense Breakdown

Grants Paid $42,930

Salaries & Benefits $0

Fundraising Expenses $42,830

Program Expenses $42,930

Other Expenses $48,429

TOTAL EXPENSES $91,359

Year-over-Year Comparison

	2023	2022	Change
Revenue	$817,773	N/A	N/A
Expenses	$91,359	N/A	N/A
Net Income	$726,414	N/A	N/A

Key Indicators

✓ Grants to Organizations ✗ Grants to Individuals ✗ Lobbying ✗ Political Activity ✗ Foreign Activities ✗ Donor Advised Fund ✓ Schedule B Required

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Financial Health Indicators

Comprehensive financial analysis: Altman Z-Score, liquidity, solvency, sustainability, efficiency, and growth metrics

Financial Distress Indicator

Liquidity & Cash Position

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Altman Z-Score • Liquidity Ratios • Solvency Analysis • Growth Indicators • Efficiency Metrics

Governance

Voting Members

Independent Members

Employees

N/A

Volunteers

Governance Policies

✗ Conflict of Interest Policy

✗ Whistleblower Policy

✗ Document Retention Policy

Special Practices & Reported Activities

✗ Operated a School

✗ Operated a Hospital

✗ Provided First Class Travel

⚠ Reported Conflict of Interest

✗ Reported Asset Diversion

✗ Excess Benefit Transaction

✗ Made Political Expenditures

✗ Engaged in Lobbying

✗ Operated Donor Advised Fund

✗ Maintained Art Collections

✗ Filed Form 720

Compensation of Officers, Directors & Key Employees

Total Officers

Total Directors

Key Employees

Highest Compensated

reported

Name	Title	Hours/Week	Role	Reportable Comp	Other Comp	Total
JILL ELKINS	EXEC DIRECTOR BOARD VP TREASURER	35.00	Officer Director	$0	$0	$0
JERRY ELKINS	BOARD PRESIDENT	3.00	Officer	$0	$0	$0
SUSAN ANDERSON	BOARD SECRETARY	1.00	Officer	$0	$0	$0

Note: Compensation data is self-reported by the organization on their Form 990. "Reportable Comp" includes salary, bonuses, and other reportable compensation from the organization and related organizations. "Other Comp" includes benefits, deferred compensation, and non-taxable benefits.

Historical Data

Year	Revenue	Expenses	Assets	Net Income
2025	No data	No data	No data	No data
2024	No data	No data	No data	No data
2023	$817,773	$91,359	$807,344	$726,414