FOUNDATION FOR ICHTHYOSIS AND RELATED SKIN TYPES INC

EIN: 942738019 501(c)(3)

LANSDALE, PA

Total Revenue
$1,970,863
Total Expenses
$1,182,513
Total Assets
$3,282,013
Net Assets
$3,235,069
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Financial Trends

Organization Details

Formation Year
1981
Legal Domicile
PA
Principal Officer
CHRISTOPHER BOYNTON
Phone
2159779400
Tax Period
2023-10-01 to 2024-09-30

FOUNDATION FOR ICHTHYOSIS AND RELATED SKIN TYPES INC, founded in 1981, is a community nonprofit that reported $2.0M in total revenue in fiscal year 2023. Revenue surged 168% from the prior year, signaling strong growth momentum. The organization ran a surplus of $788K, a strong 40% operating margin.

Mission

TO IMPROVE THE LIVES AND SEEK CURES FOR THOSE AFFECTED BY ICHTHYOSIS AND RELATED SKIN TYPES.

Program Service Accomplishments

Program 1
Expenses: $811,703

FIRST EDUCATES, INSPIRES, AND CONNECTS FAMILIES AND INDIVIDUALS AFFECTED BY ICHTHYOSIS AND RELATED SKIN TYPES. FIRST HOSTS PATIENT SUPPORT FORUMS AND ALSO PROVIDES CRITICAL INFORMATION TO ITS MEMBERS...

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FIRST EDUCATES, INSPIRES, AND CONNECTS FAMILIES AND INDIVIDUALS AFFECTED BY ICHTHYOSIS AND RELATED SKIN TYPES. FIRST HOSTS PATIENT SUPPORT FORUMS AND ALSO PROVIDES CRITICAL INFORMATION TO ITS MEMBERS AND THE GENERAL PUBLIC THROUGH ITS WEBSITE AND CALLS TO ITS KNOWLEDGEABLE STAFF. FIRST MAINTAINS AN ACTIVE SOCIAL MEDIA PRESENCE AND FACILITATES GROUP DISCUSSIONS. FIRST PROVIDES ACCURATE, NON-BIASED INFORMATION ON THE LATEST IN RESEARCH, DIAGNOSIS, AND MANAGEMENT OF ICHTHYOSIS AND RELATED SKIN TYPES, AND CRITICAL SUPPORT TO THOSE AFFECTED WITH THESE GENETIC CONDITIONS AND THOSE THAT CARE FOR THEM.

Program 2
Expenses: $138,689

ONE OF THE CORNERSTONES OF FIRST IS ITS EMPHASIS ON RESEARCH AND ITS SUPPORT OF THE YALE ICHTHYOSIS REGISTRY BOTH FINANCIALLY AND THROUGH ITS PROMOTION ACCROSS ITS COMMUNICATION CHANNELS. CRITICAL TO...

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ONE OF THE CORNERSTONES OF FIRST IS ITS EMPHASIS ON RESEARCH AND ITS SUPPORT OF THE YALE ICHTHYOSIS REGISTRY BOTH FINANCIALLY AND THROUGH ITS PROMOTION ACCROSS ITS COMMUNICATION CHANNELS. CRITICAL TO IMPROVING THE MANAGEMENT OF THEIR CONDITION, PARTICIPATION IN THE YALE REGISTRY PROVIDES EACH AFFECTED INDIVIDUAL A GENETIC DIAGNOSIS OF THEIR PARTICULAR TYPE OF ICHTHYOSIS OR OTHER SKIN TYPE. THE REGISTRY IS ALSO VITALLY IMPORTANT TO THE RESEARCH COMMUNITY AND CONTINUES TO BE REFERENCED IN NUMEROUS STUDIES AND MANUSCRIPTS. THE REGISTRY ALSO SERVES TO PROVIDE RESEARCH OPPORTUNITIES FOR TRAINING THE NEXT GENERATION OF PHYSICIAN SCIENTISTS.

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Trantor Score

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Liquidity (40%) • Solvency (30%) • Sustainability (20%) • Efficiency (10%)

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Financial Overview (2023)

Revenue Breakdown

Contributions & Grants $1,914,968
Program Service Revenue $0
Investment Income $55,895
Other Revenue $0
TOTAL REVENUE $1,970,863

Expense Breakdown

Grants Paid $208,504
Salaries & Benefits $393,268
Fundraising Expenses $100,912
Program Expenses $950,392
Other Expenses $580,741
TOTAL EXPENSES $1,182,513

Year-over-Year Comparison

2023 2022 Change
Revenue $1,970,863 $734,946 +1.7%
Expenses $1,182,513 $756,091 +0.6%
Net Income $788,350 $-21,145 -38.3%
Key Indicators
Grants to Organizations Grants to Individuals Lobbying Political Activity Foreign Activities Donor Advised Fund Schedule B Required
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Governance

Voting Members
17
Independent Members
17
Employees
3
Volunteers
80

Governance Policies

Conflict of Interest Policy
Whistleblower Policy
Document Retention Policy

Special Practices & Reported Activities

Operated a School
Operated a Hospital
Provided First Class Travel
Reported Conflict of Interest
Reported Asset Diversion
Excess Benefit Transaction
Made Political Expenditures
Engaged in Lobbying
Operated Donor Advised Fund
Maintained Art Collections
Filed Form 720

Compensation of Officers, Directors & Key Employees

Total Officers
7
$208,365
Total Directors
17
$0
Key Employees
0
$0
Highest Compensated
0
reported
Name Title Hours/Week Role Reportable Comp Other Comp Total
CHRISTOPHER BOYNTON CHIEF EXEC. 40.00
Officer
$208,365 $0 $208,365
SARAH AUGHENBAUGH BOARD MEMBER 1.00
Director
$0 $0 $0
JACKIE BARRETT BOARD MEMBER 1.00
Director
$0 $0 $0
JEFFREY BLAKE BOARD MEMBER 1.00
Director
$0 $0 $0
JOLIE CINA BOARD MEMBER 1.00
Director
$0 $0 $0
MARK EVANS VICE PRESIDE 2.00
Officer Director
$0 $0 $0
BETH HAMPSHIRE BOARD CHAIR 2.00
Officer Director
$0 $0 $0
TEJAL KAMDAR SECRETARY 2.00
Officer Director
$0 $0 $0
SEAN MCTERNAN CHAIR 3.00
Officer Director
$0 $0 $0
BRITTANY CRAIGLOW MD BOARD MEMBER 1.00
Director
$0 $0 $0
LATANYA BENJAMIN MD BOARD MEMBER 1.00
Director
$0 $0 $0
SARAH ASCH MD BOARD MEMBER 1.00
Director
$0 $0 $0
KEITH CHOATE MD PHD BOARD MEMBER 1.00
Director
$0 $0 $0
BAILEY PRETAK SECRETARY 2.00
Officer Director
$0 $0 $0
JASON THOGMARTIN CFO 2.00
Officer Director
$0 $0 $0
FULVIA VERONESE BOARD MEMBER 1.00
Director
$0 $0 $0
JENNIE WIKLOW-RILEY BOARD MEMBER 1.00
Director
$0 $0 $0
LOWELL WRIGHT BOARD MEMBER 1.00
Director
$0 $0 $0
Note: Compensation data is self-reported by the organization on their Form 990. "Reportable Comp" includes salary, bonuses, and other reportable compensation from the organization and related organizations. "Other Comp" includes benefits, deferred compensation, and non-taxable benefits.

Historical Data

Year Revenue Expenses Assets Net Income
2024 $1,970,863 $1,182,513 $3,282,013 $788,350
2023 $734,946 $756,091 $2,074,173 $-21,145
2022 $708,551 $891,681 $1,958,602 $-183,130
2021 $1,013,506 $626,277 $2,615,715 $387,229
2021 $1,013,506 $626,248 $2,615,716 $387,258
2020 $510,721 $706,451 $2,228,652 $-195,730
2020 $591,429 $653,951 $2,302,341 $-62,522
2019 $598,014 $523,059 $2,275,431 $74,955
2018 $833,887 $663,808 $2,122,220 $170,079
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