NATIONAL TUBEROUS SCLEROSIS ASSOCIATION (EIN 953018799) - Form 990 Financial Analysis & Trantor Score

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Financial Vulnerability Assessment (Tuckman-Chang)

4 risk indicators measuring financial stability and operational resilience

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Financial Trends

Organization Details

Formation Year

1975

Legal Domicile

Principal Officer

KARI L ROSBECK

Phone

3015629890

Tax Period

2025-01-01 to 2025-12-31

NATIONAL TUBEROUS SCLEROSIS ASSOCIATION, founded in 1975, is a community nonprofit in the Diseases & Disorders sector that reported $9.8M in total revenue in fiscal year 2025. Expenses of $9.1M left a modest 7% surplus.

Mission

TO IMPROVE QUALITY OF LIFE FOR EVERYONE AFFECTED BY TUBEROUS SCLEROSIS COMPLEX BY CATALYZING NEW TREATMENTS, DRIVING RESEARCH TOWARD A CURE AND EXPANDING ACCESS TO LIFELONG SUPPORT.

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Trantor Score

Financial Health Score (300–850) · Liquidity · Solvency · Sustainability · Efficiency

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Liquidity (40%) • Solvency (30%) • Sustainability (20%) • Efficiency (10%)

Financial Overview (2025)

Revenue Breakdown

Contributions & Grants $6,133,143

Program Service Revenue $2,653,098

Investment Income $23,937

Other Revenue $997,142

TOTAL REVENUE $9,807,320

Expense Breakdown

Grants Paid $1,040,281

Salaries & Benefits $3,268,560

Fundraising Expenses $1,233,462

Program Expenses $7,267,682

Other Expenses $4,824,961

TOTAL EXPENSES $9,133,802

Year-over-Year Comparison

	2025	2024	Change
Revenue	$9,807,320	$10,000,895	0.0%
Expenses	$9,133,802	$8,660,018	+0.1%
Net Income	$673,518	$1,340,877	-0.5%

Key Indicators

✓ Grants to Organizations ✗ Grants to Individuals ✓ Lobbying ✗ Political Activity ✓ Foreign Activities ✗ Donor Advised Fund ✓ Schedule B Required

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Financial Health Indicators

Comprehensive financial analysis: Altman Z-Score, liquidity, solvency, sustainability, efficiency, and growth metrics

Financial Distress Indicator

Liquidity & Cash Position

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Altman Z-Score • Liquidity Ratios • Solvency Analysis • Growth Indicators • Efficiency Metrics

Governance

Voting Members

Independent Members

Employees

Volunteers

385

Governance Policies

✓ Conflict of Interest Policy

✓ Whistleblower Policy

✓ Document Retention Policy

Special Practices & Reported Activities

✗ Operated a School

✗ Operated a Hospital

✗ Provided First Class Travel

✗ Reported Conflict of Interest

✗ Reported Asset Diversion

✗ Excess Benefit Transaction

✗ Made Political Expenditures

✓ Engaged in Lobbying

✗ Operated Donor Advised Fund

✗ Maintained Art Collections

✗ Filed Form 720

Compensation of Officers, Directors & Key Employees

Total Officers

$436,179

Total Directors

Key Employees

$287,347

Highest Compensated

reported

Name	Title	Hours/Week	Role	Reportable Comp	Other Comp	Total
PAUL WAXLAX	BOARD CHAIR	5.00	Officer Director	$0	$0	$0
BRITTANY SMITH	VICE CHAIR	5.00	Officer Director	$0	$0	$0
MARK SPOTTS	TREASURER	5.00	Officer Director	$0	$0	$0
KRISTI LENGYEL	SECRETARY	2.00	Officer Director	$0	$0	$0
DEREK BAUER	DIRECTOR	2.00	Director	$0	$0	$0
JULIE BLUM	DIRECTOR	2.00	Director	$0	$0	$0
ANGELIQUE BORDEY	DIRECTOR	2.00	Director	$0	$0	$0
FRANCES BRIONES	DIRECTOR	2.00	Director	$0	$0	$0
CHIP BURKHALTER	DIRECTOR	2.00	Director	$0	$0	$0
LISA CARLTON	DIRECTOR	2.00	Director	$0	$0	$0
MARK CARROLL	DIRECTOR	2.00	Director	$0	$0	$0
SARA CHIEFFO	DIRECTOR	2.00	Director	$0	$0	$0
DANIELLE CLARK	DIRECTOR	2.00	Director	$0	$0	$0
ANDREW DUFFY	DIRECTOR	2.00	Director	$0	$0	$0
JUIAN GANGOLLI	DIRECTOR	2.00	Director	$0	$0	$0
TANJALA GIPSON	DIRECTOR	2.00	Director	$0	$0	$0
JONATHAN GOLDSTEIN	DIRECTOR	2.00	Director	$0	$0	$0
RICH GOLLUB	DIRECTOR	2.00	Director	$0	$0	$0
LISA HENSKE	DIRECTOR	2.00	Director	$0	$0	$0
LESLEY HOLMES	DIRECTOR	2.00	Director	$0	$0	$0
SHAFALI JESTE	DIRECTOR	2.00	Director	$0	$0	$0
DAVID JOHNSTON	DIRECTOR	2.00	Director	$0	$0	$0
BILL JOSEPH	DIRECTOR	2.00	Director	$0	$0	$0
JESSICA KREFTING	DIRECTOR	2.00	Director	$0	$0	$0
PATROSKI LAWSON	DIRECTOR	2.00	Director	$0	$0	$0
LAURA MARKS	DIRECTOR	2.00	Director	$0	$0	$0
JIM O'HEIR	DIRECTOR	2.00	Director	$0	$0	$0
NOOR PANJWANI	DIRECTOR	2.00	Director	$0	$0	$0
ANDREW SPERLING	DIRECTOR	2.00	Director	$0	$0	$0
VANESSA VAZQUEZ	DIRECTOR	2.00	Director	$0	$0	$0
KARI LUTHER ROSBECK	PRESIDENT & CEO	54.00	Officer	$254,957	$32,411	$287,368
JAMIE SAYLOR	CHIEF FINANCIAL OFFICER	45.00	Officer	$143,473	$5,338	$148,811
STEVEN ROBERDS	CHIEF SCIENTIFIC OFFICER	45.00	Key Emp	$256,275	$31,072	$287,347
DEAN RAGER-AGUIAR	VICE PRESIDENT, TRANSLATIO	45.00	Highest	$191,780	$33,526	$225,306
LISA MOSS	VICE PRESIDENT, DONOR RELA	45.00	Highest	$136,007	$28,840	$164,847
GAIL SAUNDERS	DIRECTOR, COMMUNITY PROGRAMS	45.00	Highest	$103,236	$15,481	$118,717
HEATHER RADTKE	DIRECTOR, CLINICAL PROGRAMS	45.00	Highest	$119,764	$15,673	$135,437

Note: Compensation data is self-reported by the organization on their Form 990. "Reportable Comp" includes salary, bonuses, and other reportable compensation from the organization and related organizations. "Other Comp" includes benefits, deferred compensation, and non-taxable benefits.

Historical Data

Year	Revenue	Expenses	Assets	Net Income
2025	$9,807,320	$9,133,802	$18,024,174	$673,518
2024	$10,000,895	$8,660,018	$17,254,701	$1,340,877
2023	$10,016,383	$8,467,648	$16,085,768	$1,548,735
2023	$10,016,383	$8,467,648	$16,085,768	$1,548,735
2022	$8,909,542	$8,063,684	$14,827,937	$845,858
2022	$8,909,542	$8,063,684	$14,827,937	$845,858
2021	$9,015,987	$6,869,562	$14,046,866	$2,146,425
2020	$5,128,164	$5,422,190	$11,657,873	$-294,026
2019	$6,716,234	$5,639,335	$10,351,316	$1,076,899
2018	$5,491,441	$5,868,533	$9,281,566	$-377,092

NATIONAL TUBEROUS SCLEROSIS ASSOCIATION